(24 replies, posted in General Discussion)

Glad you are home Kris....hopefully things will mellow out for you! Sending hugs!!


(38 replies, posted in General Discussion)

Hoping and praying for great results with the Keytruda!!

You go girl!! You got this! Sending lots of love and hugs!


(9 replies, posted in General Discussion)

Dear Frank,

I am so sorry for the loss of your wife. Sending prayers for peace, comfort and strength to get through this difficult time.


(49 replies, posted in Members' Cafe)

Dear Catherine,

All I can think of is how STRONG your family is! Wow so much to go through and you all seem to tackle it ....one thing at a time. Hoping and praying that all will be good for mom, dad and hubby! I am glad your daughter is home safe and sound. You take care dear Catherine, and know I am sending hugs and prayers your way.


(8 replies, posted in Members' Cafe)

Sending hugs and prayers.


(82 replies, posted in Clinical Trials)

Yes, that is right. Thanks Marion! They are doing everything as fast as they can to get everything and everyone back up and running! I am sure they will contact you Maria as soon as it is a go.


I also gained weight being on Gem/Cis combo. I think it was definietly a combonation of everything.....the steroids, chemo induced menopause messing with hormones, lack of energy to be as active as I once was, lack of sleep.......and of course my Reeses pnut butter cup diet didn't help either!!



(9 replies, posted in Members' Cafe)


Great article! Nicely said and I agree whole heartedly with not forgetting to live life!!


(6 replies, posted in Clinical Trials)

HI Cindy,
That is such great news! Could you post the link to your trial and where people could look into it at? Thanks for participating  in this trial and helping others to find hope!

Go Kris Go!!
Cheering for you, and keeping you in my prayers!

So happy to hear of the shrinking of tumors! I think you will be so happy with the port in place. Please keep us posted on how everything goes this nest go around.....sending prayers for shrinkage of the next 2/3rds!!


(82 replies, posted in Clinical Trials)

Dear All,

I had my checkup at NIH this past Tuesday. I am very happy to report that there is absolutely NO change from January. The reactive t-cells are still present in my circulation and keeping the cancer in check. I will return in another 3 months or so and have a PET again to compare to the one I had in January. I can't tell you how grateful, happy and relieved I am, after January's check up I have been a bit nervous!

So to date it has been 30 months since last treatment. I am not cancer free, but can live a great quality of life. I am very happy with these results and hope for others to have them as well. I know that a colon cancer patient has made her official partial response in this treatment. I believe there is a cc patient who has been stable for 4 months now......more hope.

I was able to meet Chris and Laura in person at NIH this week and enjoyed getting to know them in person. Chris posted his story in this thread a few posts up.

All my best,


(2 replies, posted in Websites)

I said those exact same words....."Thank you God and thank you Dr. Rosenberg!!!"

Great videos!


(3 replies, posted in Introductions!)

Dear Virginia,

Welcome to the discussion boards and thank you so very much for sharing your story. I am so very sorry and saddened about the loss of your baby girl......my words can't express it enough.

Please keep us posted with how you are handling chemo and with any updates. We are here to help and support in any way we can. Hugs and prayer sent to you.



(4 replies, posted in Insurance)

Sounds like a great plan! So happy for you! smile
Here is to new beginnings! Take care!


(7 replies, posted in Members' Cafe)

Hey Brigitte,

I know how you feel......I personally think it is normal to go through some low times. The key is not staying there. We are human, we get scared, we get depressed, we get anxious. It goes with battling the unknown of this disease.

I am going on six and a half years, I have had resection, recurrence, chemo treatments, clinical trial with great results but now find myself at a point where it looks to be growing again.......scans on April 18th and results on 19th. I have been a little depressed lately too. I have two girls graduating high school in May, family coming this summer, a high school reunion I am looking forward to.....and all I can think about is how I just don't have time for this DAMN cancer!!!! smile And when it comes to feeling like an old fat sausage......I get it!!  I would add Old, Fat, and Wrinkled Sausage!

So I take a deep breath and realize it is what it is...... I rely on my faith, family, friends, medical team, BUT ultimately it is up to me how I want to live my life, and as long as I am breathing, I am living! So I do what I can, the best that I can, and I let the rest go. I also have a very dear black lab who is near and dear to my heart, he brings me much joy when I am sad. I pray that you find a way out of this depression, but please don't feel alone, we are here for you!! Love, hugs and prayers coming your way!

Awesome info......thanks Karen!


(5 replies, posted in Introductions!)

Dear Carla,

Welcome to your first of many posts, I hope! So glad to hear your hubby is doing well, and getting great care at MDA. Please keep us updated with all his progress and please know we are here to support you both in anyway we can. Hugs and prayers headed your way.


(6 replies, posted in Introductions!)

Hi Paul,

Welcome to the discussion board. Sorry to hear about your wife's diagnosis. What has she had for treatment? Any chance she has had genetic testing done on any biopsy samples? Please know we are all here to support in anyway we can.  Take care!


(6 replies, posted in Good News / What's Working)

Congratulations on surgery! That is great news, sending lots of good thoughts, hugs and prayers your way! Please keep us posted on your husband's results and recovery! Looking forward to great news.

So happy surgery is scheduled! Sending lots of good thoughts and prayers your way for both of you. Please keep us updated!

I too, welcome you to these discussion boards. Please seek another opinion with Vanderbilt as Marion suggested. It is so crucial to see a team who have experience with cholangiocarcinoma. Request your records be sent asap. Please keep us updated on your husband's progress and let us know if we can help in any way. We are all here to support you. Take care, hugs and prayers sent your way.



(43 replies, posted in Introductions!)

Dear Georgia,

I too, welcome you to these discussion boards but am sorry you are here. I feel the love you have for your mom, and I recognize the frustration of this stupid cancer. Please keep us updated on her progress and know we are here to support you and your mother in any way we can. Please take care.


Thanks all, it was definitely my privilege to represent the most amazing people in the world!! I can't help but be biased to cholangiocarcinoma patients and care givers!