Daisy,

I am so happy for you and your mother!! That is such awesome news! Prayers for continued clear scans.....Melinda

2

(44 replies, posted in Introductions!)

Olga,
I hope you two have a blast! I love spontaneous adventures, they create such great memories! Safe travels and can't wait to hear about it.
Melinda

Jan,

I agree with Marion...it ultimately comes down to chemo benefits vs. quality of life. We all handle it differently.  After two years of chemo treatment, I chose quality of life and by the grace of God, I found the NIH trial and have had such great success with it. For me, Cisplatin side effects are still haunting me and I have been off it for over 3 years. I still have severe neuropathy in my feet and tinnitus in my ears. I enjoyed my chemo holidays and I hope your husband will regain strength to enjoy his as well....prayers to you and your husband.
Melinda

Awesome News!!!!
smile

Dear Kathy,
Congratulations on the great news! Always so good to hear such wonderful stories of success! Gives such HOPE to so many others! Thank you!
Melinda

Great news! Tell your wife to keep up the good work! I am so glad her cough has eased up, that was one of my worst symptoms.....take care and keep us posted!
Melinda

Hi all....I have not always had a potty mouth, but since diagnosis I have found that sometimes I just can't stop! One minute I am cussing up a storm and the next I am apologizing to God for my bad language! When going through treatment, I swear the SH word would come out every other word. It described how I felt.....what I smelled, what I did every 10 seconds!! I am working to improve my potty mouth, but sometimes it just feels good to let it out!!

I also do  the driving and singing as loud as I can.....I must look like a mad woman to other drivers but I don't care....it is a great stress reliever! It is good to have a place to vent smile
Melinda

8

(6 replies, posted in Chemotherapy)

Duke,
I did Gem/Cis for the first 6 months with only stable results....due to toxicity of the cisplatnin, they left me on Gem only in which my tumors started to grow again. I then went to Avastin with stable results again.....until toxicity took effect again. That is when I found the clinical trial at NIH. I know that everyone responds differently to each chemotherapy regimen so it is hard to say what results to expect.

I also wanted to state that STABLE is not a bad thing, as long as they are not growing that gives you some time to research other options. Hang in there and keep being proactive! God Bless.

Melinda

Dear Sara,
I am so sorry for the loss of your sister. I am glad the pain and suffering are over for her and that she has moved on to a better place with no more death, or mourning or crying or pain..... I will pray for her son, you and her family to find the strength and peace to get through this time. Her love will live on in the life of her son and family. I can feel the strong connection you had with her and I am so sorry for your sadness. Comfort and peace to you....love and hugs....Melinda

10

(76 replies, posted in Introductions!)

Great news Matt!! Hope is what we need!

Helen,
What a great friend you are to Bonnie. I am so sorry she is going through this. I have had incredible friends come along beside me through this journey and I know what a huge difference it makes to have your true friends beside you through the hard times. Hugs and prayer to you and Bonnie.
Melinda

12

(5 replies, posted in Members' Cafe)

Dear Emad,
I am so sorry for your sadness and pain. Sometimes there is no explanation for the things we must go through in life. Sometimes in the moment we can't possibly understand why things happen......we may never understand......or maybe in the future we will be able to look back on the pain and understand why we had to go through it.....to get to where we are. It is a journey this life we live....one day at a time. I will be praying for your peace and comfort.
Melinda

Sending lots of good wishes and prayers your way for great results on this trial!! Please keep us informed. .....Melinda

Dear Sprinter,
Sorry about the biopsy results, way to be proactive in getting it done as soon as possible. I wish you continued success with this fight....sounds like you are conquering each battle as they come along. Please keep us posted with the results after treating your shoulder mets. Prayers to you!
Melinda

15

(27 replies, posted in Clinical Trials)

That is awesome news Richard!!!! I am looking forward to hearing back what you find out, progress is all we can ask for....one foot in front of the other! Keep up the good work and tell Jeanne to hang in there! Lots of prayers coming your way!!
Melinda

Awesome news Kris! You deserve it....have an amazing time!

Cathy that is such great and wonderful news! I love your attitude and how you tell your story! I love the fact that you never lose sight of what it took to get your new livers....the sacrifice that others made. I love that you are so adamant about not wasting your gift! You Rock!!
Melinda

Suzy and Crissie,

I understand how that fear could creep up in your mind....but please don't let it rule your life. We have no control over how or when we will die. Don't let this fear cripple your ability to be able to live the life you have NOW. I often worry about the possibilities of my children getting it....that is definitely one legacy I DO NOT want to leave them......but I do my best to teach them how to live each day to the fullest. They have learned so much from my journey and one of the best gifts we have received as a family battling this monster is to not let fear control the time we have left. We truly do believe that each day is a gift! My prayers to you both for peace and comfort for the future.....take care!
Melinda

19

(27 replies, posted in Clinical Trials)

Oh Kim....thank you so much for the kind words, I just want to help in anyway I possibly can! You and your dad are so inspiring to me! I love the way you fight with all you have for your mom! I hope that with the sequencing she had done it will open more doors! Please keep us updated with her progress. I will continue to pray for her....please give a hug to your dad for me, I so enjoyed my conversations with him! I could feel the love he has for your mom.....so special!
Love and prayers to you!
Melinda

Sara,
Wishing you and your sister strength, comfort and peace...praying for you both!!
Melinda

I am happy to help in anyway I possibly can! Just let me know!!
Melinda

22

(5 replies, posted in Members' Cafe)

Enjoy!! Sounds like it will be a great time!!

23

(1 replies, posted in Thought for the Day)

Love this!!!

Dear Eric,

I have had great success with TIL trial at National Institute of Health. It is an immunotherapy trial. The only thing is that if you have any stents in place, I believe that could possibly disqualify you due to the risk of infection. I always believe it is worth a call to NIH to find out....there could always be other trials available as well. The link is below and the contact numbers are listed at the bottom of the page when you open the link. Please let me know if you have any other questions, I would be very happy to help!!

http://www.cancer.gov/clinicaltrials/se … d=11220695

All my best,
Melinda

Hi Michael,
So sorry to hear about your father, I am glad he has you to be such great support in his fight. From personal experience, the TIL trial can be harsh. Don't get me wrong I would do it again in a heartbeat but going through it is rough.

I know how you feel though....my dad is 79 and fighting leukemia. I want to do everything possible to help him and find treatment for him, but the truth is the treatment is harder on him at this stage of his life then the cancer....so he does what he can for as long as he can without altering too much quality of life for now.

I hope and pray that you are able to find something that will work for your father, I truly believe that immunotherapy is going to be the answer for so many.....just can't come soon enough!!

Take care and God Bless!
Melinda