(134 replies, posted in General Discussion)


Congratulations on your success! So happy things went well and for the money raised. I am sure your dad is smiling big!


(7 replies, posted in Good News / What's Working)


Great news! So happy to hear this.....give all my best to your mother!


Happy Thanksgiving Everyone! So thankful for all of you! Enjoy your families, your day and all the blessings that come with it!!

Love to you all,


(17 replies, posted in Chemotherapy)

It is definitely a ride one does not tend to forget, but might be a little more appealing if we could wear mouse ears while riding!! smile

We make our own statistics!!!!! Good blog Sarah, thanks for sharing Gavin.

Such great news! So very happy for you and your mother......and she brings much hope. Keep telling her story and shining her hope on others. Hugs to you both.


(17 replies, posted in Chemotherapy)

Yes, low platelets tend to make some nasty nosebleeds, impressive bruising, and don't even think about having your teeth cleaned........I still have low platelets 2 years post last treatment....and my gums bled like crazy this past checkup! Welcome to the not so wonderful world of chemo!! sad


(17 replies, posted in General Discussion)

Dear Julie,

I am so sorry to hear this news, but I  have complete faith that all will go well. They will get this spot out, you will heal and be right back to being the best grandma ever!!!

You are in great hands when it comes to medical care, and ask all the questions that come to you in this time before surgery. Do what ever you need to put your mind at ease.

I am so jealous you are so ahead of the game for Christmas.......my resection was December 21st, 2009. We did Christmas on the 20th.....kids didn't complain they were able to open presents early! I remember the rush of getting everything in order, so I could be at ease for surgery. You got this thing down....everything is going to be great. Sending prayers and hugs your way.



(134 replies, posted in General Discussion)

It is so wonderful that you are doing something so positive to remember your dad. I can't wait to hear all about it! Hugs to you.

Send the snow my way!!! I will take it all! Better skiing and snowmobiling seasons with snow!


(17 replies, posted in Chemotherapy)


I actually remember having an ammonia smell for awhile too! I am thinking it could possibly have to do with not eating as much and maybe going into a state of ketosis???? Not sure, but it did go away for me....and I have never had it again. Sending lots of positive thoughts your way for your treatments.


(6 replies, posted in In Remembrance)

Dear Michelle,

My deepest sympathy for the loss of your dear sister Kim. Sending prayers for strength, peace and comfort in this trying time. Love and prayers to you and your family.


(5 replies, posted in Introductions!)

Congratulations on surgery and clean margins! Praying for little side effects for your husband from chemo. Please keep us posted on his success.

I can't imagine just being done, I would think that every 6 months would be perfectly acceptable until 5 years and then yearly......I know I have heard that somewhere but would have to research where. I also think it depends on insurance coverage of course!!

Congrats on 3 years of clean reports!!! That calls for a party!!!! Celebrate!


Oh Katia,

I am so sorry you are going through this. I wish I could help with the stent problem, but I have no experience with them. I am sure someone will chime in soon. Please hang in there and keep us informed of your dad's progress. Praying the bilirubin comes down so he can have additional treatment.



So happy for you and your great news!! Enjoy every moment!


(269 replies, posted in Introductions!)


Just a thought for you to ponder......maybe the rise in the CA19-9 is that the Keytruda is demolishing the cancer cells and it is in your blood. For me, the only time my CA19-9 was high was when my tumors were shrinking. So I choose to believe that for you as well!!



(28 replies, posted in Introductions!)

Dear Scott,

Welcome to this amazing family that no one really wants to be a part of, but are so glad to have each other. Keep that positive attitude, I believe it will get you far. I was diagnosed at age 41 and am now 47! I have had resection, recurrence, several rounds of chemo and most recently have had great success with an immunotherapy clinical trial. Don't lose hope. Please keep us updated on your progress and don't hesitate to come here for support.  Here is a great link to start with...
Sending good thoughts and prayers your way.



(24 replies, posted in General Discussion)

Love this Marion!!!

Dear Iyvyo,

Welcome to this group. I know you will find much support here. I have been in a clinical trial for the past 3 years, and fortunately having a great response. I don't know much about the trials in Italy, but as with any treatment, gather as much information as possible and your girlfriend's mom will have to choose what she feels best about. Please keep us posted on what she decides and on what her progress is. Hugs and prayers your way!


(6 replies, posted in Introductions!)


Welcome to this amazing family. I am glad to see you have been given some great links by Marion. These will get you started and give you tons of great information and education. Please keep us posted with updates and please don't hesitate to come here for support! We are all here for you.
Hugs and prayers,


(13 replies, posted in Introductions!)


This trial sounds great. Praying your girlfriend gets amazing results. Please keep us posted how everything is working. Take care.


(19 replies, posted in Introductions!)


Welcome! I so admire the attitude and positive outlook. Congratulations on such a long, great marriage and amazing family! Sounds like a wonderful life. Keep up the good work, and keep us posted of your progress. Best of everything to you!


(15 replies, posted in Introductions!)

Dear Nancy,

I am so sorry for the loss of your mother. Sending prayers for peace, comfort and strength to get through this difficult time.


(5 replies, posted in Good News / What's Working)

Awesome Catherine!! Enjoy your vacation with your mom and soak some sun up for me!