(14 replies, posted in Good News / What's Working)

Hi Carole,

Just wanted to say that Neulasta kicked my butt too! I did better with the neupogen shots. After my experience with both, someone gave me advice to take a Claritan before shots and that would ease the side effects, you might want to ask your doctor about this.


You will rock this trial!!!!

Dear Tom and Ash,

Sending good thoughts, lots of prayers and big hugs that all goes well with the surgery and that the chemo will shrink tumors drastically! I am so glad you were able to speak with Dr. Javle, and have set forth another plan. One day at a time. Thinking of you.

Dear Boston guy,

Thanks for sharing about your mom and bringing more to the table as a physician and a son. Please keep us informed as to your mom's progress and how she does on the trial.

I am an almost 7 year survivor of Intrahepatic Cholangiocarcinoma. I have had a resection, recurrence, chemotherapy treatments of Gem/Cis, Gem alone and then Taxotere, and for the past 4 years have had great response on an immunotherapy trial at NIH under Dr. Rosenberg.

Sending all my best,
Melinda Bachini

Dear Jack,

I am sending prayers for you and Diane for peace, comfort and God's strength to get you through this difficult time. I am glad you have hospice and that she is relatively without pain and is comfortable.

Thinking of you,

Here is a picture of our first day at the booth. Sorry I am late in responding.....ASCO was incredible! I had a great time with Barbara manning the booth and as always I love to see  Marion, Stacie, Donna and all the others! They all work so hard to further the goal of finding a CURE!!

Sending prayers, love and hugs your way! Hoping the side effects stay minimal and the results are amazing! Thanks for paving the way! Enjoy your summer sweet lady....everyday is a good day!!!!


(26 replies, posted in General Discussion)

Glad you are home Kris....hopefully things will mellow out for you! Sending hugs!!


(38 replies, posted in General Discussion)

Hoping and praying for great results with the Keytruda!!


(10 replies, posted in General Discussion)

You go girl!! You got this! Sending lots of love and hugs!


(9 replies, posted in General Discussion)

Dear Frank,

I am so sorry for the loss of your wife. Sending prayers for peace, comfort and strength to get through this difficult time.


(49 replies, posted in Members' Cafe)

Dear Catherine,

All I can think of is how STRONG your family is! Wow so much to go through and you all seem to tackle it ....one thing at a time. Hoping and praying that all will be good for mom, dad and hubby! I am glad your daughter is home safe and sound. You take care dear Catherine, and know I am sending hugs and prayers your way.


(8 replies, posted in Members' Cafe)

Sending hugs and prayers.


(84 replies, posted in Clinical Trials)

Yes, that is right. Thanks Marion! They are doing everything as fast as they can to get everything and everyone back up and running! I am sure they will contact you Maria as soon as it is a go.


I also gained weight being on Gem/Cis combo. I think it was definietly a combonation of everything.....the steroids, chemo induced menopause messing with hormones, lack of energy to be as active as I once was, lack of sleep.......and of course my Reeses pnut butter cup diet didn't help either!!



(9 replies, posted in Members' Cafe)


Great article! Nicely said and I agree whole heartedly with not forgetting to live life!!


(6 replies, posted in Clinical Trials)

HI Cindy,
That is such great news! Could you post the link to your trial and where people could look into it at? Thanks for participating  in this trial and helping others to find hope!

Go Kris Go!!
Cheering for you, and keeping you in my prayers!

So happy to hear of the shrinking of tumors! I think you will be so happy with the port in place. Please keep us posted on how everything goes this nest go around.....sending prayers for shrinkage of the next 2/3rds!!


(84 replies, posted in Clinical Trials)

Dear All,

I had my checkup at NIH this past Tuesday. I am very happy to report that there is absolutely NO change from January. The reactive t-cells are still present in my circulation and keeping the cancer in check. I will return in another 3 months or so and have a PET again to compare to the one I had in January. I can't tell you how grateful, happy and relieved I am, after January's check up I have been a bit nervous!

So to date it has been 30 months since last treatment. I am not cancer free, but can live a great quality of life. I am very happy with these results and hope for others to have them as well. I know that a colon cancer patient has made her official partial response in this treatment. I believe there is a cc patient who has been stable for 4 months now......more hope.

I was able to meet Chris and Laura in person at NIH this week and enjoyed getting to know them in person. Chris posted his story in this thread a few posts up.

All my best,


(2 replies, posted in Websites)

I said those exact same words....."Thank you God and thank you Dr. Rosenberg!!!"

Great videos!


(3 replies, posted in Introductions!)

Dear Virginia,

Welcome to the discussion boards and thank you so very much for sharing your story. I am so very sorry and saddened about the loss of your baby girl......my words can't express it enough.

Please keep us posted with how you are handling chemo and with any updates. We are here to help and support in any way we can. Hugs and prayer sent to you.



(4 replies, posted in Insurance)

Sounds like a great plan! So happy for you! smile
Here is to new beginnings! Take care!


(7 replies, posted in Members' Cafe)

Hey Brigitte,

I know how you feel......I personally think it is normal to go through some low times. The key is not staying there. We are human, we get scared, we get depressed, we get anxious. It goes with battling the unknown of this disease.

I am going on six and a half years, I have had resection, recurrence, chemo treatments, clinical trial with great results but now find myself at a point where it looks to be growing again.......scans on April 18th and results on 19th. I have been a little depressed lately too. I have two girls graduating high school in May, family coming this summer, a high school reunion I am looking forward to.....and all I can think about is how I just don't have time for this DAMN cancer!!!! smile And when it comes to feeling like an old fat sausage......I get it!!  I would add Old, Fat, and Wrinkled Sausage!

So I take a deep breath and realize it is what it is...... I rely on my faith, family, friends, medical team, BUT ultimately it is up to me how I want to live my life, and as long as I am breathing, I am living! So I do what I can, the best that I can, and I let the rest go. I also have a very dear black lab who is near and dear to my heart, he brings me much joy when I am sad. I pray that you find a way out of this depression, but please don't feel alone, we are here for you!! Love, hugs and prayers coming your way!

Awesome info......thanks Karen!