I am so happy for you and your mother!! Thanks again for sharing and bringing hope to others!! Please keep us posted on her progress. When will she be evaluated again? I absolutely agree with you .....this is the future for fighting cancer and with such great quality of life! Thanks for sharing and give your mom a hug!

Dear Catherine,
I want to join in the "YIPEE" song and dance as well!!! Congratulations on your mother's good news. It sounds like she is due for a much deserved break. It is always good to keep thinking and always staying one step ahead in this game, sounds like you are exploring the is always comforting to have a future plan. Enjoy some quality time with your momma and love on her lots!

Dear Val,
I am so sorry for the loss of your father. I will be praying for comfort, strength and peace for you and your family.

Thanks for the update and information on your dad's treatment. I am so happy he is responding and doing better. Always love to hear good news and stories of hope!

Awesome news Nancy! Love to hear these stories of hope and success!

Such wonderful news Julie!!! I am so very happy for you! LIVE your life to the fullest, as I would expect nothing less from such an amazing person!


(8 replies, posted in In Remembrance)

I am sending prayers for peace and strength for you and your family.....I am so sorry for the loss of your brother.
Hugs and prayers,


(8 replies, posted in Announcements)

So exciting!! Awesome news!!


(11 replies, posted in Members' Cafe)

Dear Duke,
I love your post! I always pray that everyone on this journey reaches this point sooner rather than later. We do have a future and I will take whatever God has in store for me. He is the author of my I am pretty sure it will be a good read!! Thanks for the positive post! Go for the Grand Canyon!!!

Yes...Amen to that! Last round....last chemo!!! Go Julie GO!!

Dear Kevin,

My deepest sympathy for the loss of your dad. I have not had the experience of losing someone to this disease....just the experience of fighting it. Many a night I have laid awake wondering how my end would come or look to my loved ones....I am sorry for the pain and anguish you witnessed. I only pray that you find some comfort in peace in knowing your father is no longer in pain.

Your post makes me want to fight harder to win this battle, to keep hoping for more treatments and quicker diagnosis. I want to live to see the day that children will not have to witness their parents die to this and especially for the parents to not have to witness their children die from this disease. Prayers for you and your family.....
Melinda Bachini

Great news, I am so happy for you and your husband!! Celebration in order for sure!! Keep us posted and I will keep you two in my prayers.
Melinda B.

Dear Julie....I agree, go to the ED and try and get to the bottom of this! Praying and sending positive thoughts your way.....and you are STRONG! It is ok to be scared when things are out of your control. Hang in there...Melinda

Dear Reacher,

I have heard of some people using Nplates, I have is a link and might be worth asking your doc about.

I was given several platelet transfusions after my treatment at NIH, but mostly it just took time for my body to kick into gear and produce them on my own. Keep us posted and sending high platelet counts your way!!

Dear Caroline,
I too want to welcome you to this site. I can't advise on this matter as I have no experience with stents but I am sure others will chime in who do. Please hang in there and I will say a prayer for you and your dad. Please keep us posted on your father's progress....take care.

Dear Cholangotango,

I have not at this time heard of the results of the most recent treatments of the TIL trial, but I will see what I can find out. I do know that there is a cholangio patient who is due to have treatment in about a week. She had tumors resected from her liver and she tells me her cells are growing, of course her outcome will not be determined for at least 2-3 months from now. The treatment takes a month....and then first checkup a month after that, but truly they wait for the 2nd month checkup to consider it is working. I am praying so hard for success for her! I have asked her to share her experience with us on the board as well and I believe she will.

I also know of lady with colon cancer who is due to repeat the TIL treatment soon....with very promising outlook. It sounds like they were able to narrow done her t-cells with a good response to mutation as well.

Thanks for the info on your dad's trial....positive thoughts coming his way! Keep us posted!

Dear Cazgirl,
I too, am so sorry for the sudden passing of your husband. I can't even imagine going through that so fast. I also wonder about passing this horrid disease on to my children....but I try not to let it consume my thoughts. Knowledge is is good to know as much as we possibly can and to be aware for the future.....but to continue to live everyday to the fullest!  Blessings!
Melinda B.

Dear Julie,
Wow have been through the ringer. I sense how strong you are and I personally think you are making the right decision to sit out the chemo one more time.

You brought back some dreaded memories for me today....the weight gain....I literally gained about 25 pounds on the gem/cis  combo as well.....the feet and legs used to swell quite a bit as well, especially in the summer heat. I absolutely DO NOT miss that chemo cocktail!

Hang in are amazing and strong and I am praying for you!!
Melinda B.


(11 replies, posted in General Discussion)

Dear Rob,
Sending positive thoughts and prayers your way for the next CT in September to be clear! Keep on living your life everyday! Please keep us posted and know we are thinking of you!
Melinda B.


(17 replies, posted in Good News / What's Working)


That is so awesome and so very inspiring!! Thank you so much for the good news today.....I was in need of a bit of a pick me up and you just gave me one!! Congratulations on conquering three different battles! You are my hero! smile

Dear Sad,

I too, am so sorry that your dad has to go through this. He is added to my list of prayers. Sending lots of positive thoughts your way and huge amounts of hope!!
Melinda B.

Dear Melinda and Mary Beth,

I am keeping both your husbands in my prayers. I hope the wait is made shorter so the anticipation and anxiety will lessen. Please keep us informed of your results and sending all my positive thoughts your way!

Melinda B.


(4 replies, posted in General Discussion)

Thank you so much for sharing these great tips and your experience. I know they will be of help to someone. I pray that your frustration will ease and that things will become easier as time goes on. You sound like an amazingly strong lady!! Take care of yourself.
Melinda B.

Here is a good explanation of sepsis from the Mayo Clinic... … n-20031900

Basically, a weakened immune system puts us at risk for an infection to turn into sepsis. I hope the antibiotics work quickly. Prayers to you both.

Dear Cholangotango,

It is a tango isn't it?   This dance we do! Love the name! I am so happy to hear the STABLE results from your father's first scan! It is always so inspiring to hear some good news coming from some hopefully new treatments....could you elaborate a little more on the treatment? How is it given? Side effects??   and any other pertinent info....please keep us posted on his progress and thank you so much for the information.