Julie,
When I go back to NIH for checkups, I have both a CT and MRI. I remember asking why both but for the life of me can't remember the answer. I am sure one views a little different than the other so both can be beneficial for different areas??? Anyway when I go back in February, I will ask again.
Melinda

Christopher,
Welcome to the cc boards and thank you for sharing your amazing story. You have had some great blessings along the way! I always wanted twins!! Please keep us updated on your progress and I will keep you and your family in my prayers.  Hugs to you....Melinda

I second what Duke said....Amen to that!

4

(5 replies, posted in General Discussion)

Hi Carrie,
Welcome to this site....I am glad your father was able to enjoy the Thanksgiving day parade with his grandson...how wonderful is that!!

When I was first diagnosed....I also had right shoulder pain and back pain. My tumor was quite large as well and I was told that the pain was "referred pain" from the liver. I hope his pain is alleviated soon and all is well. Please keep us posted. Hugs and prayers to you and your father.
Melinda

5

(7 replies, posted in Introductions!)

Dear Bea,

What you describe about your ears being blocked is exactly what I get when I am in crowds or anywhere there is a lot of background noise. In those situations it is very hard to hear someone who is talking to me.  That is really the only time I can notice a deficit in my hearing. Please let me know what you find out...thanks....Melinda

6

(7 replies, posted in Introductions!)

Dear Bgeo,

Welcome to this site. I am glad you are tolerating chemo so well with good results! I too, had the gem/cis combo for about 6 months. I developed the ringing in my ears as well, also slight hearing damage which I still have both to this day and it has been about 4 years since treatment. I am glad you onc was on top of it to lower the dose right away.

It is definitely comforting to have options...glad you have had some genetic testing done. I celebrate my 5 year mark today thanks to an immunotherapy trial at NIH! All my best to you and please keep us posted on your progress.
Hugs and prayers,
Melinda B.

7

(13 replies, posted in General Discussion)

Dear Heather,

You have not offended me or anyone! I and the others totally understand. I am 46 also, I have 6 children. ....I know the emotions of fear, anger and all the other emotions you could fathom! Please feel safe to vent here...we all just care and want to help in anyway we can.
Melinda

It was five years ago today that I first heard those fateful words from my doctor....."I am so sorry, but you have cancer." My life would never be the same normal it was before those words. I now have a new normal, a new outlook on life. The last five years have not all been bad, there has been good, really good and not so good days. I have had the opportunity to grow closer in my relationships, grow in my faith and share my journey with so many other cancer survivors.

I have grown close with many other cancer fighters and cried when some have lost their fight. I want so desperately to help others win this fight. I find it hard some days that I am doing so well when others are not. I do know how truly blessed I am, and I get so angry at myself when I waste a single moment being angry, grumpy or so concerned with a clean house that I forget what is really important. I do know how precious each moment is.......I am so thankful to God, my family and my doctors and research scientists at the National Institute of Health for the gift of these past almost 3 years.

I just spent the past year fighting stage IV cholangiocarcinoma with no chemo or radiation! My immune system is doing the work! It is a miracle! I believe with all my heart that they will perfect this treatment so that many others will benefit from it as well.

Thank you all for your continued support and prayers.....lots of love to you all.....Melinda B.

9

(11 replies, posted in In Remembrance)

Dear Jason,

My heart is saddened for the loss of Andrea. I am so sorry for your pain and I pray for strength, love, comfort and peace to fill your heart and mind.....and for your children as well. Thank you for all you do for the fight of cholangiocarcinoma and thank you for sharing Andrea's story with us.

I promise to keep fighting too, I promise to do what I can to help in this fight for all those who have been taken way to early from this disease.

All my love,
Melinda Bachini

Hi Sarah,
Welcome to this site! Gavin is so great with all the information he posts! I am excited to hear how your gene testing comes back and am hoping they find a more targeted therapy for you. I like your determination and am so glad you are here. Please keep us informed of your progress and know we are here to encourage and support you in any way we can! Prayers and hugs to you!
Melinda

11

(6 replies, posted in Members' Cafe)

Always happy to have a reason to celebrate! Happy St. Andrew's Day!!

12

(8 replies, posted in Good News / What's Working)

Dear Lisa,
I am so happy for your results! You are an amazing and incredible woman who gives so much to others. Thanks for all your support here on the boards and thanks for encouraging me this week when I needed it the most!!
Love and hugs,
Melinda

Julie,

Congratulations on clear scans!! I am so happy for you and your family. May this news bring some comfort for you, especially through the holidays so you can relax and enjoy the blessings of your family. I wish I was there to hear your spontaneous singing of Silent Night...one of my favorites! Love, hugs and prayers to you!
Melinda B.

Dear Christian,
Hoping your mother was able to get some stabilization at the hospital and the cause of the fever was found and treated. Love your sense of humor! Keep it up...it helps! Hugs and prayers...Melinda

15

(10 replies, posted in General Discussion)

Duke,

Keeping you in my prayers as always.....and laughed out loud at the constipation comment!

Melinda

Serena,
Please keep us updated on your mom's condition. Hoping they can pin this down and find a targeted treatment for your mom to start. Hang in there and sending hugs and prayers for you both!
Melinda

17

(13 replies, posted in General Discussion)

Dear Heather,
I am so sorry. I appreciate your raw and true emotion that came through your post. This sucks and it is scary and I understand your anger. I agree with Lainy....maybe another opinion and try and direct your anger to what would be the most beneficial for you and Gordon. Stay strong and seek support here and in anyway you can....lean on those who can be strong for you right now. My prayers do go out to you and your husband.....Melinda

18

(6 replies, posted in Introductions!)

Wendy,
I also want to welcome you to this site and send you lots of hugs and support! Praying that the 5FU treatment shows great results. I am also a mother fighting this disease so I know your determination! Stay positive and don't lose hope....I will be a stageIV, ICC 5 year survivor as of tomorrow!!
Melinda

19

(7 replies, posted in Introductions!)

Dear Christian,
I also want to welcome you to this site and am sorry to hear of your mom's diagnosis. I like her attitude of wanting to make the most of everyday but can definitely understand the days when the thoughts of "Let's just get this over with" come in......it is a day to day, hour to hour journey. Prayers for both of you....Melinda

Dear Suzanne,
I will be praying that your husbands upcoming scan will have great results, and that the two of you can have clarity on the next plan of action. One step at a time is how we all have to take this journey. One thing I do know is that everyone responds differently and you have to find what works best for you. Hang in there and know we are here to help encourage and support you in anyway we can. Hugs....Melinda

Dear Janet,
I am also sending prayers your way for both you and your husband. Prayer is powerful! Please keep us informed of your husband's progress as we truly care and want to help and encourage anyway we can! Blessings....Melinda

Dear Stephanie,
I am so sorry for the loss of your mother....as a fighter of this disease ...my greatest fear is the hurt and pain it would cause my children if I were to die. So my heart goes out to you. I admire the faith and positive attitude your mother had and I admire the way you portrayed that for all of us. My prayers go out to you for strength, peace and comfort and for the joy of your mother's memories to fill your mind and heart...Blessings to you.
Melinda

Dear Beadlover,
Welcome to this site and sorry about your mother. I know you will find lots of support here. Please feel free to ask any questions you need and someone here is bound to find an answer or have an experience to help in your situation. Please keep us informed as to your mother's progress as we truly do care. I have been stage 4 for five years...there is always hope! Hugs and prayers to you and your mother.
Melinda

24

(10 replies, posted in General Discussion)

Dear all,
I too, think this is a normal fear for any of us to have. I think the trick is....to not stay paralyzed in that fear. We all know how precious each day is and how important it is to be positive and on and on and on......and while I am a firm believer in all of that, I am also human and that fear creeps back in because we all know the possibility is there for growth/reoccurrence. So maybe if we can lean on each other and encourage each other it won't be so bad in those moments. I have had mixed feelings the past few appointments......I am excited that they don't want to see me for four months, but dear Lord, that is a lifetime in the cc world. I grew accustom to every one or two month scans the past two years and while I am grateful for the break in scans, the comfort of knowing what was going on was always so reassuring. Hang in there and I am glad we are not alone in this anxiety.
Melinda

25

(4 replies, posted in General Discussion)

Oh Duke....I wish that I had some advice for you. Chemo was never a good option for me so it is hard to weigh in on this matter. I did have growth with gem alone. I am hoping that you can get some answers for the trametinib trial. I just wanted you to know I am thinking and praying for you to get the answers for your next plan of attack! Stay strong and keep up your awesome attitude! You bring so many smiles to this board!
Melinda