Marion and Cathy-
Since my reoccurrence in Oct and the subsequent Whipple, I've had some complications. I have no hepatic artery; the only blood flow to my liver is collateral from my Roux-en-y. I'm relisted for tx with a Meld of 8. The left lobe of my liver is necrotic but the right lobe seems to be working properly. Labs are decent and mostly within normal range.
Day to day life post tx was basically normal but some things have changed post Whipple. I don't know if it is the necrotic liver, after effects of surgery, getting older, etc. but I tire more easily and it takes me longer to recover. Eating is different and I'm much more sensitive to food than I used to be.
That being said, I'm alive and fairly well. I have a 4 yr old who most days I can keep up. I even "coached" her spring soccer team.
As far as meds, I'm on prograf, prednisone, protonix, Coumadin, ursodiol, mag + protein, mag oxide, fish oil, and a multivitamin.
Cathy- what meds are you on? Did they remove the spot on your lung? How big was it? Mine was only 3mm. What is your protocol now?