Have you tried contacting Dr. Shulick in Colorado? My doctor whom I adore at JH also left this past fall and I felt abandoned! , but before he left, he reassured me that I could always contact him in Texas if the cancer returns. I understand so well what it feels like to have the doctor who saved your life ..leave. We were referred to Dr. Tim Pawlick at JH for continued follow up…he has quite a bio and the nurse practitioner whispered to me that that is the one to go to. He is NOT Dr. Choti who was very warm, caring and an excellent listener but if he is competent, I guess that's what is important. Maybe you were being PC to not mention who is doing the follow-up at JH. If you did not go to Dr. Pawlick you might want to try him as he does have considerable experience and seems well respected in the larger community. Marion may know of him.
Do NOT give up. Call Dr. Shulick for advice or try Dr. Choti who is at U of Texas Hospital in Dallas or any of the other wonderful doctors people will recommend here.
Keep us posted. I know you will hear from others who have much more knowledge than I do. This is an amazing site.
Thinking of you,
PS….I went to someone other than Dr. Choti at JH at first, but after 7 weeks of dallying around with NO progress and no decision, I switched and it made all the difference. Do not hesitate a moment to switch doctors at JH.
PPS…I am just rereading your posting. That was exactly my first experience..two endoscopies, a stent which they removed for the second endoscopy and although I had protested the second endoscopy because I didn't want the stent to be removed and replaced, I was told "a piece of cake." End result…it couldn't be replaced ! Then the same doctor wanted a THIRD endoscopy and a stent put in from the outside. I switched doctors as this was now 7 weeks from my first appointment and I was getting panicked at letting it go/grow so long. When I went to Dr. Choti, he was very professional but reassured me that whoever I chose, it was entirely up to me and to not worry about the other doctor. He operated within 5 days and no further endoscopies SO….it really does depend who you get. Call Dr. Shulick and ask for a referral to one of the other doctors at JH…or who he would recommend as you felt so much confidence in him in the first place.