(9 replies, posted in Good News / What's Working)

oh Lainy!  I am so happy to see this today when I checked in!  You have given all of us so much support and encouragement that it is WONDERFUL to see your good news.  Keep on ordering it not to return.... Congratulations! xxKathy

CONGRATULATIONS to you loyal, faithful, loving people who have supported us beyond what you could even imagine.  The information and caring are unbelievable....you deserve every accolade!


(7 replies, posted in Good News / What's Working)

Thank you, all....Debbie, I do feel incredibly lucky and blessed with time that at one time, I doubted....you are on your way, too!  And Pat, you are amazing..thanks for more info about scar tissue..if you figure a way to keep it at bay, let me know.  Seems that's where I am having trouble. And to Gavin, Marion and Lainy....you have been here the whole time I have been going through this...quite a cheer leading crew!  THANK YOU ... you are the best. xx00


(7 replies, posted in Good News / What's Working)

I have just read all the latest "Good News" postings and am so happy for all of you.  Today I had my 5 year scan and luckily there is no evidence of any cancer.  I would not have thought this five years ago!  And, Marian, you know Dr. Choti is so much in my thoughts today.  Feeling so much gratitude toward him and his wonderful team.  This board has also been a mainstay for me as it has been for so many others.  While I wander in and out, I always go to familiar names to see how you all are doing and read up on new members...always delighted when things go well for everyone...and sad when they don't. It is a frightening disease.

I have a couple of questions someone might know the answers to.  Last year I was told if I hit the five year mark, I could go to once scan/year.  Today I was told to return in 6 months.  I have read from some of you that your doctors have gone to once/year way sooner.  Any opinions out there?

They also are setting it for an MRI rather than a CT Scan because of the radiation factor.  Does MRI do as good, or better than CT Scans?  If it is as effective as a CT Scan, in detecting tumors, why not use it in the first place..no radiation then, ever....

Thank you all for your wonderful, courageous, sharing presence on this board and in my life...


(6 replies, posted in Good News / What's Working)

Have a wonderful trip to Florida.  You all deserve it!  And two years is a great milestone!


(5 replies, posted in Good News / What's Working)

This is indeed a red letter day!  Congratulations on 10 years..did you ever think?  Thanks for your explanation about the scar tissue...wish there was a way to stop it from developing.  I was told today by the nurse practitioner that  it is the reason why I have pain in my side and under my ribs at times.  Of course, when that happens my immediate thought is that the cancer  has come back...Thanks for your words of wisdom!  And here's to another 10 years!  It is indeed good news!

Just saw this and have to add....YES to Lainy.  She is a tremendous support and positive Light for us and accepts us just where we are in this journey!


(12 replies, posted in Good News / What's Working)

Fantastic news and wonderful, too, that you are looking forward to starting a family.  Life DOES go on and good things in your future.  Thanks for sharing...


(12 replies, posted in Good News / What's Working)

Wonderful news, Randi!  Stop by with more good news in a year smile  That's exciting!


(19 replies, posted in Good News / What's Working)

Congratulations Julie on your new little grandson.  Over a month old by now!  Hopefully everyone is not too sleep deprived!  You are so lucky to live close by.


(12 replies, posted in Members' Cafe)

Congratulations!  Hope your husband's shingles clear up soon so he doesn't miss out on all the fun.  Enjoy every minute.  I leave April 7 to see my new grandson in Ireland..b. March 11.  Can't wait to meet him.

Looking forward to seeing your pics.



(15 replies, posted in Good News / What's Working)

I am just seeing your post.  I hope he has continued to heal and what good news that the resection was a success.


(41 replies, posted in Good News / What's Working)

Well your last post answers my question!  I guess you do live close, lucky you!  And you are certainly going to be involved in his life! smile  Let us know when he's here!


(19 replies, posted in Good News / What's Working)

Thanks for the congratulations!  I am going April 7 so I can join in the birthday celebrations for our granddaughter (new little one's big sister) who will be 6 years on April 9.   Even closer now for you Julie!  I hope you live closer to your grandchildren than I do mine!


(41 replies, posted in Good News / What's Working)

Julie…This is wonderful news!  I, too, have nodules in my lungs which have not changed since my surgery 4 1/2 years ago…. and we also share grand babies!  Mine was born March 11.  Wonderful to be here to enjoy!
Keep the good news coming!


(19 replies, posted in Good News / What's Working)

And my sweet new grandson was born one week ago today! 9 pounds, 8 ounces in Waterford, Ireland.   Seems to be in good health although there were concerns (hydrocephalus) in sonograms, but seems everything sorted itself out…scans in 3 weeks.  But he is beautiful and everyone (his 3 older brothers and sister) are delighted. He and I had a good Skype smile


(21 replies, posted in Introductions!)

Wonderful news, Anne-Marie.   I hope you are enjoying a bit of Australia!    All visitors there that I know, love it!  Hopefully you are recovered from the surgery and getting on with life.


(11 replies, posted in Good News / What's Working)

Hi, Lisa,  You know i am THRILLED to hear the good news..you are a superstar!  We WILL talk soon, I promise!
xxoo K.


(6 replies, posted in Members' Cafe)

May that "lightened load" continue to free you to enjoy all that you deserve.  Now it's time to make a box and decorate it with pictures of all the things you are going to do and enjoy and some symbols of what you will do to continue LIVING and ENJOYING life!  Keep us posted as you journey on.


(11 replies, posted in Good News / What's Working)

Have a wonderful trip to Oregon!  I know you will enjoy every minute (and not be deterred by the snow that seems to have hit the East this year smile!  Such great news about the CA19-9 marker!


(19 replies, posted in Good News / What's Working)

You are right.  I remember thinking I would never see 70, the youngest to die in my family (I'm the third out of four); that I wouldn't get to see my youngest make it even through middle school…my grandchildren would never know me.  It seems to be a whole grieving process and you are right,  It IS about family and friends.  I am grateful for every chance I have had to be with my 7 children and 6, almost 7, grandchildren.
I recently read on here about the way one man coped with the uncertainty..by being involved in helping others.  It gave him a sense of peace in doing this.   All of you on this board have given so much in support, it is truly amazing.  It's time for me to expand my circle that narrowed while I dealt with this ( the husband of a friend of mine called it a "dilemma "..fits, doesn't it?).

Kris, Happy Anniversary coming up!  Almost Valentine's Day anniversary smile


(31 replies, posted in General Discussion)

Porter….sorry to hear you are going through another operation.  Will be thinking of you.  Have a friend who has just gone through her 3rd since original surgery..for scar tissue blockage.  I have had a lot of pain on and off, too, with scar tissue.  It's amazing that it continues to form and cause pain so long after surgery.  As others have said, you seem to be in good hands and you will get through this.  Sending lots of healing thoughts to you for a quick recovery.


(19 replies, posted in Good News / What's Working)

I had scan last week and CA-19-9 check…good news and 17.5 CA-19-9.  It is hard to believe it has been 4.5 years.  Dr. Pawlick said if the August scan is clear, I can go to once year.  As some one else posted recently, it is hard to think of having no reassurances for a year, but it is a toss up between that and the anxiety that goes with the scan!

It has been such a boost to go through all of this with you…such beautiful spirits and support for all.  I have recently read posts by people whose messages I had not seen over the past few years and am in awe of the courage and faith and hope that people have.  It has helped me in more ways than anyone could know.

And my 7th little grand baby is due in two weeks in Ireland and our 50th wedding anniversary on February 27.  I feel so blessed.

Much love to all of you on this same journey…...


(11 replies, posted in Good News / What's Working)

Wonderful news, Kris!  I understand about going longer..my doctor said if clear in July, I can go to every year!  I gasped.  He took it to mean I was unhappy to still have to have a scan.  I had to explain that I didn't know if my nerves could take going a full year without reassurances!  It is so hard to "let go."  But I am so glad to hear such good news for you all!

Just want to post an update.  Just had my 4 1/2 year scan..longest I have gone without a scan..6 months.  Clear, CA-19-9 at 19.5.  Have another scan at 5 years and if clear, I can go to yearly scans.  And yes, I, too, STILL look through the Good News section to stay positive!  I never thought I'd get to this point.  As with others, many good things have happened through these years and one of the best will happen at the end of February..another grandchild..number 4 for our Irish clan!
Thanks everyone for posting their good news.  I love it and I hope you will continue to post.