How can it be that our cheerleader has to endure more. Since I usually go to the Good News section, I missed your January challenge. And now you have another one! You are one positive lady....wishing you Godspeed over this hurdle and looking forward to seeing you back doing somersaults! We will do a few for you this time....
Sending love...and also belated birthday wishes....
Re: Question for patients who have undergone resection (5 replies, posted in General Discussion)
I just want to chime in about the pain....I had my resection 5.5 years ago and from time to time I still have pain. Someone else on the website talked about pain, also, and was told that it was due to scar tissue. I was also told that. I did have an incisional hernia which was repaired after two years and now have a hiatal hernia which could also contribute to pain. But I continue to attribute it to scar tissue. Since my scans continue to be clear, I'm going to continue to believe it's the scar tissue! Also the issues that Julie raised of food passing through. I notice that after emptying out, the pain goes away...important to keep everything moving!
Someone else who had kidney cancer at a very young age (21) who is now in his 40s told me he still has intermittent pain...again scar tissue. At this point, a small price to pay for being otherwise healthy!
Re: inoperable, but clean PET at 15 months (now 28 months) (36 replies, posted in Good News / What's Working)
Catherine, I just noticed that you are in Bel Air. I am in Maryland also, but nearer to Columbia (although in Montgomery County). Where did you mom go for treatment? I have been at Johns Hopkins. I am so glad to hear that she is doing well and thank you for all your support on my postings....Kathy
What a rollercoaster ride you and your family have been on for the past few months. I hope the ride can proceed without too many ups and downs from here on out. What a relief you must feel that it is not the c-word! Best of luck to you......
I have a special niche for the Irish...my son and his wife and their four little ones live outside of Waterford...too far away for a grandmother..but I do love Ireland...
Big hugs to you all,
What a wonderful message. The picture is beautiful. I hope it's been a wonderful vacation soaking up the sun...Kathy
oh Lainy! I am so happy to see this today when I checked in! You have given all of us so much support and encouragement that it is WONDERFUL to see your good news. Keep on ordering it not to return.... Congratulations! xxKathy
Re: The Cholangiocarcinoma Foundation - a spot on the 2015 Top-Rated List (8 replies, posted in Announcements)
CONGRATULATIONS to you loyal, faithful, loving people who have supported us beyond what you could even imagine. The information and caring are unbelievable....you deserve every accolade!
Thank you, all....Debbie, I do feel incredibly lucky and blessed with time that at one time, I doubted....you are on your way, too! And Pat, you are amazing..thanks for more info about scar tissue..if you figure a way to keep it at bay, let me know. Seems that's where I am having trouble. And to Gavin, Marion and Lainy....you have been here the whole time I have been going through this...quite a cheer leading crew! THANK YOU ... you are the best. xx00
I have just read all the latest "Good News" postings and am so happy for all of you. Today I had my 5 year scan and luckily there is no evidence of any cancer. I would not have thought this five years ago! And, Marian, you know Dr. Choti is so much in my thoughts today. Feeling so much gratitude toward him and his wonderful team. This board has also been a mainstay for me as it has been for so many others. While I wander in and out, I always go to familiar names to see how you all are doing and read up on new members...always delighted when things go well for everyone...and sad when they don't. It is a frightening disease.
I have a couple of questions someone might know the answers to. Last year I was told if I hit the five year mark, I could go to once scan/year. Today I was told to return in 6 months. I have read from some of you that your doctors have gone to once/year way sooner. Any opinions out there?
They also are setting it for an MRI rather than a CT Scan because of the radiation factor. Does MRI do as good, or better than CT Scans? If it is as effective as a CT Scan, in detecting tumors, why not use it in the first place..no radiation then, ever....
Thank you all for your wonderful, courageous, sharing presence on this board and in my life...
Have a wonderful trip to Florida. You all deserve it! And two years is a great milestone!
This is indeed a red letter day! Congratulations on 10 years..did you ever think? Thanks for your explanation about the scar tissue...wish there was a way to stop it from developing. I was told today by the nurse practitioner that it is the reason why I have pain in my side and under my ribs at times. Of course, when that happens my immediate thought is that the cancer has come back...Thanks for your words of wisdom! And here's to another 10 years! It is indeed good news!
Re: I just felt the need to dedicate this post to this wonderful woman (4 replies, posted in Members' Cafe)
Just saw this and have to add....YES to Lainy. She is a tremendous support and positive Light for us and accepts us just where we are in this journey!
Fantastic news and wonderful, too, that you are looking forward to starting a family. Life DOES go on and good things in your future. Thanks for sharing...
Wonderful news, Randi! Stop by with more good news in a year That's exciting!
Congratulations Julie on your new little grandson. Over a month old by now! Hopefully everyone is not too sleep deprived! You are so lucky to live close by.
Congratulations! Hope your husband's shingles clear up soon so he doesn't miss out on all the fun. Enjoy every minute. I leave April 7 to see my new grandson in Ireland..b. March 11. Can't wait to meet him.
Looking forward to seeing your pics.
I am just seeing your post. I hope he has continued to heal and what good news that the resection was a success.
Well your last post answers my question! I guess you do live close, lucky you! And you are certainly going to be involved in his life! Let us know when he's here!
Thanks for the congratulations! I am going April 7 so I can join in the birthday celebrations for our granddaughter (new little one's big sister) who will be 6 years on April 9. Even closer now for you Julie! I hope you live closer to your grandchildren than I do mine!
Julie…This is wonderful news! I, too, have nodules in my lungs which have not changed since my surgery 4 1/2 years ago…. and we also share grand babies! Mine was born March 11. Wonderful to be here to enjoy!
Keep the good news coming!
And my sweet new grandson was born one week ago today! 9 pounds, 8 ounces in Waterford, Ireland. Seems to be in good health although there were concerns (hydrocephalus) in sonograms, but seems everything sorted itself out…scans in 3 weeks. But he is beautiful and everyone (his 3 older brothers and sister) are delighted. He and I had a good Skype
Wonderful news, Anne-Marie. I hope you are enjoying a bit of Australia! All visitors there that I know, love it! Hopefully you are recovered from the surgery and getting on with life.
Hi, Lisa, You know i am THRILLED to hear the good news..you are a superstar! We WILL talk soon, I promise!
May that "lightened load" continue to free you to enjoy all that you deserve. Now it's time to make a box and decorate it with pictures of all the things you are going to do and enjoy and some symbols of what you will do to continue LIVING and ENJOYING life! Keep us posted as you journey on.