1

(10 replies, posted in Members' Cafe)

Wishing you beautiful moments and wonderful memories on Saturday.....Nancy

2

(18 replies, posted in Grief Management)

Andie - Your Mom is going through her own form of grief.  It is so hard, but try not to take anything personally right now.  You're doing your best and that's all you can do.  Maybe when things settle down a little, you can take your Mom out for lunch and have a long chat about the reality of how you have to work and don't have time for everything and that you're all doing your best.  Go to Florida - - have time for yourself and your family -- and try to enjoy. - Hugs - Nancy

Jen - Happy to hear your hubby got great news.  Hugs - Nancy

4

(7 replies, posted in Good News / What's Working)

Jtoro - Good news that things are stable.  Good luck to your son at College - I'm sure he will get home to visit you as often as possible.  Your doctor is right.....go out and live!  Best wishes to you - Nancy

5

(17 replies, posted in Chemotherapy)

Wow, Jukka - a Jag!   You go!!!!  Take that baby for a spin and enjoy life.....Nancy

6

(14 replies, posted in Introductions!)

pkcorc30 - Welcome to the site and good thoughts are with you and your wife.....it sounds like she is in good hands.  We are always here for questions/answers, support, rants or rages.   This is a wonderful forum for anyone dealing with "cc". - Nancy

Tom - Wonderful news!

Beautiful post, Helen!  Do you have your tickets to the big event on Friday?????  Nancy

Dear Winnie's Daughter - You have every reason to be angry and feeling selfish right now.....this is your Mom and you love her!  Feel free to vent here any time you need to............best wishes and lots of hugs - Nancy

10

(4 replies, posted in General Discussion)

Thanks, Sara.  I didn't realize the implications.  Although I am not selling the shirts for a profit, I was just trying to make them available if anyone wanted one.  The ones being used in the cancer walk are being purchased by me personally for my team, in an effort to honor my son.  Please let me know if this is o.k. - Nancy

11

(7 replies, posted in General Discussion)

Ashley - Just like Andie, I did not experience the "horror" of CC death.  The evening my son passed, he had asked to get out of bed.  He wanted to sit on a chaise that was in his room and then he hugged my daughter, my husband, my sister and me.  He smiled like he never smiled before.  He continued to sit up for a while and then said he wanted to brush his teeth!  He got back into bed and went to sleep, quietly and peacefully.  Over an hour later, his heart stopped.  There was no trauma, no difficulty in breathing, just sleep.  It was peaceful and calm.  The final decision is your Mom's to make and if she feels well enough to keep fighting, she should have that option.  Your job is to be near her as much as possible and to let her know how much you love her, no matter what.  The rest is up to someone bigger than all of us.  You have our support here whenever you need to rant - Peace - Nancy

Lisa - It takes a lot of courage to make these types of decisions, but you know what is best for you and I think you are doing the right thing.  You are right, you may be prolonging your life as well.  I believe my son's last chemo treatment actually did him more harm than good (it was a clinical trial so he knew he was taking a chance).  May you be pain free and enjoy all these big events coming up.  We're all here....cheering you on.  Bless you - Nancy

13

(24 replies, posted in General Discussion)

Ken - I am so very, very sorry for your loss.  I know what is is like to lose a son.  You are right about one thing:   this disease SUCKS!  - Nancy

14

(11 replies, posted in General Discussion)

Stacey - Hospice will know exactly how to deal with all the issues.  The hallucinations are not uncommon with pain meds.  Good luck - Nancy

Judip - I am so saddened to hear about your brother.  I understand how your mother is feeling right now.  Parents should never outlive children....it's just not the natural order of things.  Please know your entire family has my deepest sympathy. - Nancy

Sam - Also a good at surgical oncologist at Robert Wood Johnson (via NJ Cancer Institute) - Dr. Gannon.

Wow!  That's all I have to say......

18

(4 replies, posted in General Discussion)

Kathy - Got your message and responded.  - smile

19

(4 replies, posted in General Discussion)

HI all - I have joined the American Cancer Society's DetermiNATION 2011 George Washington Bridge Challenge (a walk/run/bike for cancer awareness).  I have a team in memory of my son ("Team John Ur").  My niece is in the t-shirt business and has designed a t-shirt with the cholangio-carcinoma tree on the front left and Team John Ur on the back.  However, she has indicated that she could also prints shirts with just the CC insignia on the front.  I am ordering regular men's t-shirts as well as women's v-neck t-shirts.  They are white with the brown and green insignia.  If anyone might be interested, I could order one for you.  The total cost (with shipping) should only be about $10, since my niece is giving me a nice break on the normal price.  I would be glad to try and share the art work via email if you are interested in seeing it before ordering.  In any event, if you think you might want one, please email me at :  nur1954@gmail.com and I'll provide more details.  Just thought I would share with anyone who might want to have a shirt.  Thanks - Nancy

--------------------------------------------------------------------------------
Mother of John who lost his battle on Oct. 9, 2009 at age 30....

20

(20 replies, posted in General Discussion)

Never forget Carnation Instant Breakfast as a supplement.  It has all the good stuff at half the cost of Ensure......

21

(1 replies, posted in Members' Cafe)

HI all - I have joined the American Cancer Society's DetermiNATION 2011 George Washington Bridge Challenge (a walk/run/bike for cancer awareness).  I have a team in memory of my son ("Team John Ur").  My niece is in the t-shirt business and has designed a t-shirt with the cholangio-carcinoma tree on the front left and Team John Ur on the back.  However, she has indicated that she could also prints shirts with just the CC insignia on the front.  I am ordering regular men's t-shirts as well as women's v-neck t-shirts.  They are white with the brown and green insignia.  If anyone might be interested, I could order one for you.  The total cost (with shipping) should only be about $10, since my niece is giving me a nice break on the normal price.  I would be glad to try and share the art work via email if you are interested in seeing it before ordering.  In any event, if you think you might want one, please email me at :  nur1954@gmail.com and I'll provide more details.  Just thought I would share with anyone who might want to have a shirt.  Thanks - Nancy

Dear Ichase - My son was diagnosed at age 29, so I know how incredibly overwhelming this is to you as a Mom.  I have been reading this site for quite a while now.  I think if I could do one thing over it would be to insist on seeing Dr. Kato at NY Presbyterian.  Even when given no options, this doctor seems to have some answers.  I read nothing but positive things about him and, sadly, now wish we had put him on our list of doctors to see.  You're in my thoughts - Nancy

Dear Isellure - I believe the doctor may be referring to the portal vein which is the main vein through which blood flows through the liver (at least, that is my understanding).....I admire you all for honoring your MIL's wishes.  I'm sure it is very hard for all of you.  - Nancy

24

(16 replies, posted in Introductions!)

Kris - One other thing I wanted to mention.  I have a good friend being treated in NY for leukemia.  There is a wondeful facility in NYC called The Hope Lodge where cancer patients can stay -- for free -- if they are being treated and have difficulty with transportation or need to stay nearby a hospital.  Check into their website -- it may be something that may come in handy if you need to stay nearby Sloan. - Nancy

25

(16 replies, posted in Introductions!)

Kris - Welcome to our support group; so sorry you have to be here.  It sounds like you are your own best advocate which is so very important.  Memorial Sloan Kettering is a great hospital.  Attitude means so much and you seem to have a wonderful one!  Keep us posted and search on the many threads on this website to find valuable information and answers to many questions you may have.  Keep us posted.  All the best - Nancy