Hi Barb -

My thoughts, prayers and love are with you.  Hang in there and May God Bless.

Joni Craighead

Tom -

My husband, Mike, underwent chemoembolization of the liver in 2/06 and 3/06.  His 10 cm tumor as well as some of the smaller ones remained stable until 10/06, at which time there was slight growth.  His oncologist continued to monitor the size of the tumors, and they began growing again.  In 12/06 he had 4 cycles of gemcitabine and oxalilplatin, and an MRI after this treatment showed it was not successful.  He started on 5-FU, but because of other issues, it was discontinued.  There is no standard treatment or protocols for this disease, and every patient responds differently to treatments.  Talk to your Dad's oncologist, who I'm sure will guide you.  My thoughts and prayers are with you as you fight this disease.

Joni Craighed


(5 replies, posted in In Remembrance)

Shannon and Wes -

I am so sorry for your loss.  Your beloved Mother certainly did live a life of success, and she now lives forever with the Lord.  My thoughts and prayers are with you.

Joni Craighead

Chase -
Fabulous idea.  My daughter, Staci, who will be 15 next month, has been waiting for this.  Mike, my husband and Staci's Dad died on April 27, 2007.
Thank you for doing this, and may God Bless.

Joni Craighead

Michele -
I am so very sorry for your loss.  May God hold you very close, and may the wonderful memories of your lives together sustain you.

Joni Craighead


(3 replies, posted in Grief Management)

Charlene -
You will never, ever forget your Dad.  And why should you?  The horrible anguish of loss will ease, and your memories will become sweet and warm and will make you smile.  We don't get over grief...we get through it.  Because of our experiences, we are forever changed.  Remember the wonderful blessing that your father was not only to you, but to the many people's lives he touched.  He is with you in spirit and always will be, and will live forever in your heart.  And he will be waiting for you at the gate of Heaven to welcome you to your eternal home with our Lord and Savior.  I am at 10 months post today, and while I still grieve for my wonderful husband, Mike, I am thankful that I had him in my life for 30 years.  My thoughts are with you.

Joni Craighead


(10 replies, posted in In Remembrance)

Dear Martin Family -

I am so sorry for your loss.  May God hold you very close.

Joni Craighead

I am so sorry that cholangiocarcinoma is now a part of your lives.  There is so much love and support from the people on this website, and we are here for you...always.  May God be with you and hold you close.

Joni Craighead

Joe and Maryanne -
My thoughts and prayers are with you.  Hang in there!  Read your blog faithfully.

Joni Craighead

Tiffany -

May God be with you and your family and give you strength.  I know the wonderful memories of your beloved father will sustain you.

Joni Craighead

Dan -

May God be with you and give you strength and peace.  I wish I could say I didn't understand, but I do.  I lost my husband (age 57) in April to cholangiocarcinoma.  We're all here for you!



(14 replies, posted in General Discussion)

Kris -

Just keep Kung Fu Fighting!  Hang in there.  My thoughts are with you and I'm sending you a big hug.


Fran -

We went through a similar situation with Mike.  May God be with you and give you peace and strength.  Know that all of us on this board love you and Colin.  Keep talking to him, holding his hand, whatever is meaningful to you, let him know how much you love him, how blessed you've been to have such a beautiful life with him, and when he crosses over, just how much you will miss him.  Also remember that it will be very helpful if you give him permission to go when he's ready, if you haven't already done that.  And, that you will be fine (even though you know that this is the hardest situation you've ever endured.)  I'm sending you a huge hug, and am here for you.

Love, Joni



(15 replies, posted in In Remembrance)

Caroline's family...our hearts ache for you.  Caroline has such a beautiful, positive spirit and was a such a wonderful lady.  My you find peace and comfort in the memories of your life with Caroline.

May God hold you very close -
Joni and Staci Craighead
Omaha, NE

Dear Ted,

     The video tribute to Patty was lovely.  She was obviously a warm, wonderful woman who loved life, a good time, and her family and friends.  I am so very sorry for your loss, and wish you peace and comfort.  My husband, Mike, 57, died seven months ago...with a smile on his face.  It is comforting to know that we will see our loved ones again, and also to know their hard-fought battles and suffering have come to an end.  Even though it doesn't seem possible right now, you will get your arms around the anguish and grief that comes with losing a spouse, and you will incorporate all of those lovely memories of your years with Patty, and her passing, into your life.  And you will move on.  Please know that you have the love, friendship and support of all of us touched by cholangiocarcinoma.  Whatever we can do for you to ease your pain, we will.


Michelle -

My husband, Mike had intrahepatic cc and also developed ascites.  One paracentesis was done, and then his physician said insertion of an abdominal drain would be kinder and less painful than a paracentesis on a regular basis.  He did pretty well with it, and we utilized the drain for about three months.  I drained the fluid here at home.  The nurses at the hospital will teach you how to do this, should you decide to go ahead with this procedure.  Please let me know what else I can do to help you, and know that you and Dirk are in my thoughts and prayers.



(2 replies, posted in Websites)

This is lovely.  Thanks, Stacie!

Karen -

Hospice is a difficult decision, but when the time comes, it is the right decision.  Your Mom may have more fight left in her than you think she does...but she may be ready to let the Lord take her home.  These last few days or weeks will be very special to all of you, and the memories made will sustain you forever.  We went through this with my husband Mike in April, and while it was so very difficult to accept that his time on earth was very limited after only 57 years, I was determined that that last act of love I showed him was to help him to have a peaceful crossing over to Heaven.  He died with a smile on his face, so I know we accomplished that...and I know where he is and that he will be waiting for me at the gate for all eternity.  My thoughts and prayers are with you and your family.  Please know that all of us on this website are thinking of you.


Jules -

This is awesome!  Cholangiocarcinoma is a global disease, and you will represent us well!  Thank you!



(6 replies, posted in General Discussion)

Amilcar -

I think when we don't hear from people, either life is going well and we try to soak that up, or maybe it is just overwhelming because things aren't going as well as we'd like them to.  However, we are all here in the good times and the tough times!


Marianne -

Our experience with hospice (and it was a hospice house) was so positive.  Crossing over to Heaven can and should be as easy as possible.  When it was time for Mike to go, I was determined that the last act of love I showed him here on earth was to help him have a peaceful passing.  I believe that was accomplished.  He died with a smile on his face.


Peter and Bill -

Thank you for sharing these wonderful, miraculous stories with us.  You give hope to every single person here!


Fatherson -

When we don't know what to pray, or cannot put our thoughts into words, the Holy Spirit intercedes on our behalf, and offers up our prayers to the Lord.  The Lord hears our groans, which is sometimes all we can get out.  From the experience of my husband's diagnosis and battle with cholangiocarcinoma, my faith was strengthened, and it was strong prior to his illness.  Your faith WILL sustain you during this difficult time, and we are all praying for you and your family.



(8 replies, posted in Grief Management)

Marylloyd -

I understand so well what you are feeling right now.  I lost my husband of nearly 30 years in April to cholangiocarcinoma after a 16 month valiant battle.  And it is very, very difficult.  I experienced a tremendous amount of anticipatory grief, as I believe you are.  We are never prepared to let go of our loved ones.  Just enjoy every moment you have together and make lots of memories, for they will sustain you.  Put one foot in front of the other and just do the next thing - whatever that is.  Take life moment by moment, hour by hour, and day by day.  I can't say anything that will ease your load, except that I do truly understand, because I have walked in your shoes.  May God be with you and give you strength, and may you know you have many friends on this website.


Maridiana -

I would suggest finding a hospital/medical center with expertise in chemoembolization.  The University of Nebraska Medical Center in Omaha, NE is one of the best places in the U.S. for liver.