Wish I could have kept everyone posted on my dads condition but he lost his battle with this quick killing cancer on December 28, one day before his dads birthday and of course three days after Christmas. I hope and pray they find a cure for this disease for everyone on this site. I never seen what cancer could do to a persons until my dad quickly was diagnosed with CC . Good luck everyone I'll pray for all of you still fighting.
I'd like to first tell you that my Dad has Cholangiocarcinoma and he was diagnosed with this killer cancer about 6 weeks ago and that this is my first post. Now I will start from the beginning. My has had diabetes and non- alcoholic cirrhosis of the liver(the cirrhosis for about 8 years now and the diabetes for longer than that). He has also had problems with kidney stones since his early 50s and it seemed as if they would never go away, or when they did get rid of them , more would return within a couple of years. He will be 63 on the 18th of this month. He had his gall bladder removed years ago. I am the second of three boys. The last time he had any type of procedure to break up the stones was in June of 2010. At that point he was in so much pain he couldn't stand it as they hit his kidney and liver with the device used to break up the stones so he could pass them. As he started urinating blood and getting very sick(up to this point no one at all had treated him for his cirrhosis). He went into the hospital where they told us that during the procedure his kidney and liver must have been hit accidentally. Now his liver was an issue and they started doing tests upon tests. He was not able to urinate regularly as something was blocked and most of the fluid in his body wasn't getting through his bladder so it was backing up. The next thing we know, he is in dire need of a liver transplant. We live in Michigan so there are a couple places that this could be done at but he would have to be put on a list and wait(possibly up to two years). As the fluid built up in his body, they had to start draining him every two weeks, removing about 8 liters of fluid at a time. We chose Henry Ford hospital as we had heard amazing things about this hospital. They told us there at one point that this could be cancer so they didn't want to do a biopsy because it could follow the needle out if it was cancerous. As he was getting drained every week at a closer hospital. The Henry Ford surgeon decided to do a biopsy knowing the risks. We took him to his appointment at Henry Ford and had it done. The surgeon told us that because he needed drained at the time he came in, they were able to get three good pieces and if he would have been drained , they wouldn't have been able to get any tissue. They didn't drain him there so we had to go back to the hospital that he normally has this done as he was having a hard time breathing , they did so and he ended up being admitted to this hospital. While in the hospital more tests were performed ,and in four days we received the call that we all were dreading. He did indeed have Cholangiocarcinoma and was told by the team of surgeons from HF hospital
that they couldn't do anything for him at all. So now the liver transplant was out the window and he has one of the worse cancers imaginable and my two brothers and I have been doing research ever since. His regular primary doctor talked to HF and she told us that we could use anything we wanted to try and help him. So we heard about Haelen and my dad agreed to drink this nasty smelling and looking fermented soy product. Yesterday was the first time since the news was passed along to us that he has seen a specialist outside of HF hospital. He had a phase 3 ct scan and then went to see an oncologist who is closer to our home as HF is in Detroit and we are closer to Flint. No results regarding size of the tumor growing or shrinking although this doctor told us he is going to use two different light chemos on him , two weeks on and one off to see if it would help. At HF it wasn't even an option as they said it would do no good. God works in mysterious ways. Ive watched my father in just 6 short weeks go from being able to tear my arm off with one hand to barely being able to shake it, and loose more than 75 lbs. in the same amount of time. I have never seen anyone go through this and neither have my brothers or mother. So we are all in shock. The only thing we know for sure is that he is a stage 4 or phase 4 and we finally found an oncologist that would at least try and help him. God Bless this man, when HF hospital and the U of M wouldn't help us and told us to get him in hospice care( basically spend as much time as we could with him cause he don't have long), This doctor out of flint MI steps up to the plate and is going to try and help him. I have read a lot of the stories on this site , and am amazed how many people have survived this killer disease when we were told there was no helping him. We are all trying to stay positive and this site has helped us out so much, thank you.
We need all the prayers and help we can get.