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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Due to recent news about new cancer treatments, CCF is gathering information about your experience with genetic testing of your tumor. Whether you have or have not
had any genetic testing it is important to answer the questions to help us make progress in cancer research.
Take the Survey
Posts found: 6
Forgot to respond to the question as to where her tumor is located - it is in the caduet ? I'm sure I have it wrong. They did mention cyber knife, but size is currently too large for that. So, we are trying to shrink it first, and we have conflicting advice: some dr.s say embollization and some dr's say i.v. chemotherapy. Even in the chemotherapy dept. we have conflicting info - some dr's say to try gemzar and oxaliplatin; other dr's say just the gemzar. I am so scared we will make the wrong decision! Which is why we are going in to Sloan in January. Any advice would be much appreciated..... Thank you all !
Thank you for your warm welcome ! My mom is scheduled to meet w/ a medical oncologist at Sloan Kettering in NYC in early January. Does anyone have any info. about the folks there ?
Ashley, Congrats on your mom's results. That's wonderful and encouraging news! Can you tell me what worked for your mom ? I too am afraid of losing my best friend...Thanks!
Wonderful news Kathy! Can I ask what worked for you ? My mom is newly diagnosed, and we are trying hard to find our way.... Thank you for any advice you could lend.
Hi Cinnimin - What worked for your Dad ?
My 79 yr. old mom is recently diagnosed w/ CC and we have seen several doctors with various recommendations: embollization, intravenous chemo. Am wondering if anyone has any advice re: either treatment option. Her tumor is 7 cms. Am grateful to have found this website, and would welcome any help. Thank you and god bless.
Posts found: 6