My mother was diagnosed 12.10 with cc stage four intrahepatic with mulitple liver tumors, pancreatic lesions, gallbladder tumors and lymph involvement. Two drains have been placed, one through the gallbladder to drain bile and another through the liver into the biliary duct to attempt to drain bile. She is to see the local oncologist this week who is recommending Gemzar and Zeloda to see if the tumors can be reduced to open up some other ducts. He has only seen two patients with cc in the past year.

We;ve been referred to IU Medical Center and St. Francis in Indianapolis for the ERCP, MRCP and PTHC.

Can anyone recommend an experienced cc oncologist in Indianapolis or Cincinnati?

We are running out of time and options.

Thank you!

My mother was diagnosed 12.10 with cc stage four intrahepatic with mulitple liver tumors, pancreatic lesions, gallbladder tumors and lymph involvement. Two drains have been placed, one through the gallbladder to drain bile and another through the liver into the biliary duct to attempt to drain bile. She is to see the local oncologist this week who is recommending Gemzar and Zeloda to see if the tumors can be reduced to open up some other ducts. He has only seen two patients with cc in the past year.

We;ve been referred to IU Medical Center and St. Francis in Indianapolis for the ERCP, MRCP and PTHC.

Can anyone recommend an experienced cc oncologist in Indianapolis or Cincinnati?

We are running out of time and options.

Thank you!

Thank you all for your support through
this forum. To answer a few of the questions posed, two docorrs told
us this was not treatable. The other two recommended addressing the
major issues with the liver and bile drainage first through stenting
and then treating with gemzar and zeloda. Because of the number
of large tumors in the liver the hope
is that shrinking them may open
up some other ducts.

The oncologist treating this has only had two patients in eight
months with this diagnosis. The closest major
cities are Indianapolis and Cincinnati.

Complicating some of the procedures has been a clotting factor which also has to be monitored.

I just want to do what is best for
my mother, insure she is comfortable and has the best quality
of life possible.

Any input is much appreciated.   
Stephanie

Two weeks ago my mother, 61 was diagnosed with stage IV intra CC with mulitple liver tumors in 60% of the organ, pancreatic lesions, gallbladder, stomach, and lymph involvement. Until then she was a healthy, active non-smoker, non-drinker with no health issues. We had never even heard of this type of cancer.

Since her diagnosis and tube was inserted to drain the gallbladder externally, and later another through the liver PTHC. We been given 4 opinions, none with a good prognosis. I've become her primary caretaker and am totally overwhelmed and shocked.

I am thankful for any information I can gather from others affected by this and to sharing information so that we can help each other.