Yes Willow. I think you have to redirect frequently. It gets so frustrating, but I feel lucky that after 2 years he is still going strong. As we say. ONE DAY AT A TIME!
2 Tue, 05 Feb 2013 00:00:42
Re: Lost my father to cc on 12/08/12 (7 replies, posted in General Discussion)
My dad worked in the automotive industry for 50 years.He was exposed to a lot of chemicals in the paints and other chemicals.We wonder if that is where he might have gotten it. : ( I am very sorry for the loss of your dad. God's blessings for peace. Kathy
3 Mon, 04 Feb 2013 23:51:12
Topic: Dad's progress (3 replies, posted in General Discussion)
Have not been here in a while.Just touching base on my dad's progress. H
e is back on the gemcitabine every other week.He had a break and the cancer grew some.He had another 3 cycles of treatment.Another PET scan and it showed a decrease in the activity in his larger tumor, but 2 small new spots found nearby.Not sure how to feel about that.Gain some and lose some I guess. He is a survivor for 2 years last month.He is doing well except when the chemo tires him out. He is such a fighter and still plans on trying to beat this. I think his attitude has helped his survival.I worry about his spirit though because with each PET scan he gets more discouraged.This takes such a toll on us all emotionally and we need to try and redirect ourselves so that we can focus on the positive. I know you all understand what I mean.
4 Thu, 15 Nov 2012 19:41:36
Re: update not a good day (14 replies, posted in General Discussion)
My dad is having the same problem right now also Lynn. His platelet counts seem to go too low for chemo to be done every week. we just try and go with the flow praying that what he receives will be enough to do the job. I know a lot of chemo patients that this happens to. Hang in there. Dad is going on 2 years and holding strong! God Bless.
5 Tue, 06 Nov 2012 20:31:25
Topic: My dad (2 replies, posted in General Discussion)
I have not written a while.My dad had been off of chemo for a few months.He just started another cycle of gemcitabine today.After his break from chemo the cancer became more active.: ( He has been feeling well off of the chemo.His spirit was down for a while, but he seems hopeful again.It has been almost 2 years he has had the cancer.I know that he is breaking a lot of milestones, and prayers are the reason. He just believes that one day he will beat this. I need to get myself back into this mind set. He was on Cisplatin and gemcitabine for the first 6 months.It started to shrink fast.It was great.Then the side affects and he took a break.Then they tried an oral chemo and it gave him neuropathy in hands and feet. Now they are trying the gemcitabine alone.Has anyone had any similar experiences and if so was there further shrinkage? I am just looking for some more hope and positivity. : (
6 Tue, 02 Oct 2012 10:17:36
Re: Prayers needed for CAT scan on October 5th (7 replies, posted in General Discussion)
Prayers are being sent my friend!!!
7 Mon, 01 Oct 2012 19:29:12
Re: Two years since diagnosis (10 replies, posted in Good News / What's Working)
GREAT NEWS!!!!!
8 Mon, 01 Oct 2012 19:27:42
Re: Clear Scans! (10 replies, posted in Good News / What's Working)
AWESOME!!!!! I hope this so much for my dad someday.He is going to the Seidman cancer center in Cleveland!!! Good news indeed Neighbor.Cause for celebration!!!!!
9 Mon, 01 Oct 2012 19:21:59
Re: It's truely is a MIRACLE! (9 replies, posted in Good News / What's Working)
What great news Anna!!!! I so love hearing this news.We are from the same area.My dad goes to the Seidman cancer center at University Hospital in Cleveland!!! His oncologist is Dr Nock. He is going on 21 months and doing great!
10 Mon, 01 Oct 2012 19:17:11
Re: Shrinkage!!!! (23 replies, posted in Good News / What's Working)
That is GREAT news!!! Keep fighting and living your life!!!Looking forward to hearing about your next marathon!!!!
11 Mon, 01 Oct 2012 19:14:53
Re: Survival...Please tell us your latest milestone (56 replies, posted in Good News / What's Working)
My dad is going on 21 months since diagnosis and doing GREAT!! He is taking a break from chemo right now. He goes back in November for another PET scan and they will go from there again.The ONLY symptoms he had has been from the chemo!! He has been working on finishing his 46 Ford Coupe!! I feel so BLESSED to have him doing so well and know that the prayers have been working. IN YOUR FACE CANCER!!!!!
12 Wed, 11 Jan 2012 18:09:12
Topic: chemo changes (2 replies, posted in Chemotherapy)
My dad has been getting treatments of cisplatin and gemcitabine since last March.He had really positive response to it and the tumors were shrinking.He started to get some side effects and the oncologist had him take a break over the holidays (since october).Over that break his cancer increased in size again,but only slightly.Dad is so discouraged. 
He has always been so positive.He will be starting on oxaliplatin and capecitabine for his next treatment.Anyone have any experience with these and what were the results in terms of success? Just reaching for anything right now and trying to keep him positive and informed.He feels great other than when he is on chemo.Thank you.Kathy
13 Thu, 29 Sep 2011 18:50:41
Topic: Great news/pet scan (3 replies, posted in Good News / What's Working)
Just wanted to share the good news.My dad had his second PET scan since starting chemo 6 months ago.Since chemo started his mass has shrunk from 8.9cm to 5.3.very happy with that.They will present it to the surgical board again.He may still not be a candidate for surgery but the oncologist wants to try.The oncologist is amazed at the good response to chemo!!
14 Sun, 10 Jul 2011 23:46:32
Re: Clean Scan (11 replies, posted in Good News / What's Working)
That is fantastic!! thanks for sharing the good news!
15 Sat, 02 Jul 2011 22:23:15
Re: Ben's "amazing" scans... (30 replies, posted in Good News / What's Working)
That is such Great news!! Enjoy your vacation!!!
16 Fri, 01 Jul 2011 15:53:16
Topic: suggestions needed for foods (1 replies, posted in Nutrition)
My dad's platelet count and HGB have been low from the chemo.Does anyone have any good suggestions for foods that might help increase platelet production and anemia?
17 Tue, 28 Jun 2011 20:48:44
Topic: Dad's great news!!! (3 replies, posted in Good News / What's Working)
I just had to share our wonderful news.My dad had his first PET scan since he started chemo 3 months ago.His tumor had marked improvement!!! The tumor went from 8.9 cm to 7.5 cm.He will continue the next 3 months of chemo hopefully shrinking it more.He cannot get the surgery as of now because of location, but his oncologist says we will not give up that possibility.I am so happy.He has been a real trooper and needed this encouragement.Thankful for a good doctor and the answers to the prayers that were sent up.
18 Fri, 10 Jun 2011 14:47:32
Re: Unexpectedly wonderful news! (12 replies, posted in Good News / What's Working)
That is such Wonderful news!!! My dad goes for his PET scan since chemo started soon.I am praying for just as good news. I hope your husband continues to respond and get the surgery he needs!! God Bless.
19 Mon, 02 May 2011 19:08:55
Topic: dizziness and shortness of breath (3 replies, posted in Adverse Reactions & Side Effects)
My dad has just finished his 4th treatment (2nd cycle) of Cisplatin and gencitabine.He has been doing fairly well except for being tired,He has had a few episodes where he feels very short of breath,becomes dizzy and feels like he is going to pass out.He has only had about 5 episodes like this,but I am wondering if it is chemo related.Has anyone else experienced these type of symptoms on this regimen? Kathy
20 Fri, 29 Apr 2011 16:49:02
Re: 4 Years and Counting! (21 replies, posted in Good News / What's Working)
Great news Sue.I am very happy for you!! Celebrate life every day.I hope my dad one day will be where you are! Kathy
21 Fri, 29 Apr 2011 16:47:05
Re: Stable (7 replies, posted in Good News / What's Working)
That is GREAT news that there is no growth!Enjoy every day you have been given when possible! God Bless!
22 Fri, 29 Apr 2011 16:43:55
Re: Ben's "amazing" scans... (30 replies, posted in Good News / What's Working)
That is GREAT news Tom! My dad is just on his second cycle of gemcitabine and Cisplatin.I am praying his results will be as good! Enjoy your time together and enjoy life one day at a time! Kathy
23 Wed, 20 Apr 2011 20:22:52
Re: 4 Years and Counting! (21 replies, posted in Good News / What's Working)
What wonderful news!! It is so great to hear of people beating the odds of this horrible disease.My dad is still fighting.I pray he will be where you are someday!
24 Fri, 25 Mar 2011 05:44:43
Re: My beloved Barry passed away. (35 replies, posted in General Discussion)
Melanie I am so sorry to hear of the passing of your husband,Words cannot convey your sorrow. I will pray for you and your children,God Bless. Kathy
25 Thu, 17 Mar 2011 20:22:50
Re: My dad newly diagnosed questioning treatment choices (15 replies, posted in Good News / What's Working)
Polly has your husbands tumors/cancer shrunk at all or held the growth at bay? Dad is starting the Cisplatin and gemcitabine chemo on Tuesday.I am praying for good results.The surgeon still feels surgery is too risky.His tumor is not where we all had thought.It is more central in the liver and is touching in all 3 lobes.He still has no symptoms and no blockage in the main bile ducts.Hope we can keep that from happening.This is so hard to believe he is even sick.I am grieving his illness before he is even sick.He is so hopeful and declares he will beat this.I hope he is right.When the average statistics say most people live 6 to 12 months after diagnosis it scares the hell out of me. I need to learn not to listen to statistics I guess if I want to remain hopeful.
