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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Due to recent news about new cancer treatments, CCF is gathering information about your experience with genetic testing of your tumor. Whether you have or have not
had any genetic testing it is important to answer the questions to help us make progress in cancer research.
Take the Survey
Posts found: 5
Sorry I have not been on for a while. It has taken my a few weeks to get radiation and chemo started. I have to drive 60 miles one way for treatment monday thru friday. I am just now 9 weeks out from surgery and starting to feel better. I have days that i am really tired. Hope everyone is well. I have a lot of reading to catch up on the site.
Until next time,
Hello and Welcome----
Sorry to hear about your dad. I too was dx'd recently. the dr's will work quickly. We will be here for your family. This site and the people are awesome. They will get us through. Let us know what is planned.
Thank you for all the support. My children are 11, 8, 5, and 9months. my path report had margins, but that was not surprising. saw radiation dr. today and at least 25-35 days of radiation starting next week. my port placement is on monday. knowing that the chemo and rad together is not too bad is very comforting. i appreciate the sharing of knowledge. i feel better knowing i have support. -----Thank You All
Lainy-- thank you for your support and encouragement.
Joolz822--i will start with 5-FU at moderate dose with radiation, then after radiation i will switch to gem??? what are your side effects to radiation that makes it worse than chemo?
I have been reading on this web site for an hour now debating whether to enroll or not. I was diagnosed with CC 8 weeks ago. I have undergone a liver resection for a tumor that was measuring 14cm but was actually bigger once my dr got in there. Surgery was difficult. I received 16 units of blood after my inferior vena cava (vein to heart) ruptured while removing the tumor and I received 10 minutes of cpr before my heart decided to start again. Like so many others, I am getting ready to have my port placed and start chemo along with radiation. I am blessed to have found this site where others like me know what I am going thru. It has been hard for my husband and 4 children. This site is such a relief for me. I am starting to get depressed at times. I have always been such an active person. I know there is hope, but sometimes the days seem so long. The one thing that has surprised me about this site is that this rare disease has affected so many of us. I'm not sure it should be called rare anymore.!?
Thank You all for your posts. They are a true encouragement.
Posts found: 5