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I've been praying hard for Lauren to get thru this. I posted on her fb page that last night as I prayed, I pictured Lauren while I prayed for her and a white glow surrounded her. I believe that God told me she will be okay. She has been put in his white light!!

Mary, keep fighting! Don't listen to them! Remember, they told me last April to put my affairs in order and I'm still here.
I'm praying you get some good news: you deserve a break.
If you pray, read this. I was told to quit asking. I was told to thank God that something will go well. So when I pray I say "God, thank you for giving the doctors the knowledge and skill to get the drains or stents successfully placed so Mary gets some relief and thank you for allowing her to get the chemo to save her life!"

Marion: I am in Phase Ib of the trial. Fifty or so people have taken the drug. Toxicity levels were pretty much established. Side effects have been noted. Of course, that's a small population. But the tingling is better since I limited my liquid intake. Still more swollen in am, but at least they aren't talking to me at night.

Praying and thanking God for the successful surgery!! I have everything crossed for extra backup! I am so excited for Lauren! I wish I could be there with you.
Love, prayers and hugs!!

Michele,
Fingers crossed for the PET scan!
I don't know what kind of insurance you have, but it's hard getting approval with Aetna. PETs are not approved for cc patients! I don't make the rules: I'm trying to break them! I had to fight like crazy to get a PET approved. Among other things, like care... New onc....
Maybe that is one reason your onc has not asked for one? He may know it won't be approved anyway. And it's tough to get those insurance guys to change their minds.

Have you looked at Fox Chase in Philadelphia? I realize its a bit of a drive but I like it there. Just changed to them from Sloan Kettering. So far, everyone I have met is compassionate and seems to enjoy helping others.
I used to make day trips to NY to Sloan Kettering. They are a great hospital and have a satellite office in Basking Ridge. The only thing I will say is I do not recommend Dr. Nancy Kemeny, unless you don't care if you are treated by someone who doesn't seem to care. I stuck with her for 2 years because she is brilliant, but finally gave up and am so happy I made the change.

Mary,
You have been thru a lot lately!
I pray you feel well enough to enjoy Mother's Day. Get one last treatment in and then let the docs do what is best for you.  I hope the radiation begins to work fairly quickly so you can get start to feel better.
Hugs and strength to you!

Mary,
I am sorry to hear things are not going well. I had so hoped you would find some relief and start to feel better. Ugh! I hate this cancer!
I'm praying that your docs have the knowledge and skill to help you feel better soon.

Jason,
Gem/Ox will eventually cause neuropathy. Make sure you have warm socks, gloves, possibly a scarf handy. Your onc should tell you this, but... Don't drink cold beverages until your throat can handle it. For me it was about 4 days. Good thing I don't mind room temp liquids! And you will possibly have nausea. My second round I felt nauseous. I used the meds to control it but fought it for a couple of days. By the 4th treatment, I just let it go. 4 hours after treatment, I felt so much better after! And didn't have to fight it for days!
It is much easier on the other organs than cisplatin. Sloan Kettering uses it before cisplatin now.
I also have Dr. Fong at Sloan, and he is wonderful! I wish I had been able to see how well the resection went, but I was inoperable for the first year. Then he thought he could try it... But before my surgery, it spread so surgery was out.
There are a number of clinical trials that you might be able to participate in, too.

Jason,
Sorry you have to be here. It sucks, plain and simple.
I went for a second opinion and stayed with them for 2 years. After 2 years, I started to feel my onc didn't really care about me... Just statistics, etc. so I went for a 3rd opinion 2 years into this fight. I am now being treated by a new onc, closer to home, and feeling this is where I am supposed to be.
Don't ever hesitate to get another opinion if you don't like what you hear, or feel your onc is not listening to you...it's your life, after all.
Many prayers for you...

I'm sorry Mary.
I hope you can get through the SBRT, too.
Praying you feel better soon!

I love this song. Okay, I will learn it in case we go to karaoke when I'm visiting.....

Karaoke!! Gee, I don't know anyone who does karaoke!!
I hope you had as much fun as I do singing!
And I have a car, and am trying to decide if I want to ride that far or just be "safe" and take the cage. I WANT to ride that far! But if the temps or rain are not favorable I will definitely drive. I have had my fill of riding in the rain. Not fun!

I called my friend in Ohio. Pam, it's Lorraine: she got married and moved a few miles to the Ohio side of the line... I can stay there a day or two then go meet Lainy!! It sounds like fun! Don't forget your book of Teddy visits... I want to read it! We can compare stories, although you have many more than I do. I may have to do 29-31 May. I'm not sure if I have to be back Mon. and Lorraine would kill me if I don't spend at least all day Sat. with her!

And I'm glad your med tweaking seems to be going well!