Here's a pic of my parents and I in 2011 shortly after diagnosis. And Lisa Craine and Lauren Kunklier and I in 2012(?)

http://s8.postimg.org/3q0e3qpch/image.jpg

http://s8.postimg.org/3oqgabnip/image.jpg

Nice pics. Great to put faces to your family!

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(11 replies, posted in Members' Cafe)

http://s22.postimg.org/snuwt4q9p/image.jpg
Ok, here's my try. Me and Stazi.

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(3 replies, posted in Members' Cafe)

Great pic! And great new feature! Love this! Maybe I'll post a pic of Stazi! lol

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(8 replies, posted in Members' Cafe)

I moved to NJ at 8 and had a horrible time at the movie theater. I wanted a grape pop and she tried to give me a Popsicle. I finally got her to figure out I wanted a fizzy drink. She said "oh, you want a grape soda!" Soda??? HORRORS! Club soda?? Yuck! Then I got the "grape coke"... Never have figured that out!
We had plug ins instead of outlets. Sacks instead of bags.

You forgot "ufdah"!!

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(8 replies, posted in Members' Cafe)

First, you have to know the Midwest accent of all of us Norwegians, swedes, etc... Practice your "ya, you betcha!"


Sven and Ole

Asked his occupation, Ole said, "Panty Stitcher.. I sew da elastic onto da ladies cotton panties."

The unemployment clerk looked up Panty Stitcher. Finding it classified as unskilled  labor, she gave Ole $300 a week in unemployment compensation.

Sven, when asked his occupation replied, "Diesel Fitter." The clerk looked up Diesel Fitter...and it was classified as a skilled job. So, the clerk gave Sven $600 a week in unemployment compensation.

When Ole found this out, he was furious! He stormed back into the office to find out why his friend and co-worker was collecting double his benefits.

The clerk explained, "Panty Stitchers are unskilled labor and Diesel Fitters are skilled labor."

"Vat skill?" yelled Ole. "I sew da elastic on da panties. Sven puts dem over his head and says, "Yah, ------------- DIESEL FITTER".

(If you don't understand a word of this, then you're not a Norwegian, Swede or Dane or from Nordern Visconsin - or Minnesota, or Nort Dakota!…….too bad!)

Thanks Marion. It was interesting reading. I just wish it could move faster!

Here's the skinny on this trial. I thought it had gone to phase 2, but was told yesterday that there are a number of "arms" to the phase 1 trial. It has been phase 1 since something like 2008????
The one arm, which I'm on, is solely the LY drug. The arm with LY and Cisplatin is closed. They have another arm with gem/cis and I think another arm opening up. I don't understand why it's taking so long to get to phase 2?

Personally, I'm on cycle 24 and going along as expected. Still full of water weight but it beats the alternative!

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(7 replies, posted in Members' Cafe)

It was 4 years ago tomorrow that I started on this roller coaster. I went to my GP who said I was having a typical gallbladder attack. Nothing to worry about.....
It took a month of tests, scans, biopsies, etc. to get a diagnosis, and when I received it, I was told I basically had less than 2 years to live.
Boy was that guy wrong!!! Glad I didn't let HIM cut me!

We always did that too! I think it was on a Seinfeld show, too.

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(23 replies, posted in General Discussion)

Sandie, have a wonderful trip. Fill it with amazing memories and come back ready to fight again! I wish you all the best!!

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(12 replies, posted in Good News / What's Working)

Great, great news!!! I love reading success stories like this!

Safe travels!! Good luck with Dr. Javle!

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(8 replies, posted in General Discussion)

The nurse did put in the clot breaking med. And we still had a bit of a problem. But Tuesday was better. Not the best, but much better!
As far as the ct scan... No measurable difference. So, the word is stable!! lol

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(8 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

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(0 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

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(0 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

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(6 replies, posted in Members' Cafe)

Happy birthday Rick!!

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(16 replies, posted in Members' Cafe)

Great news! Wonderful to read about those lovely pet scan results!

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(18 replies, posted in Members' Cafe)

I'm on medicare and have addtl insurance that I pay for. When I shopped for what coverage I should get I discussed the clinical trial, the excessive ct scans, the pump that needs to be monitored, etc. None of the coverage includes the pump, which is about $1300 every 8 weeks. Thankfully I'm not seeing it on any bills (not that I open them! lol)
Coverage from medicare and my part (whatever) is very small for all the Cancer costs, but again, I think Fox Chase accepts their payments.

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(5 replies, posted in Members' Cafe)

I knew you'd chime in with this story!! lol

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(11 replies, posted in Members' Cafe)

Gavin, that cat is much fluffier than my Stazi!

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(11 replies, posted in Members' Cafe)

I don't know that cat. Maybe I'll have to look it up!

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(7 replies, posted in Members' Cafe)

Thanks Randi! You, too!
Lainy, Arthur has made an appearance in my life, too. My knees are really feeling it! We are having a pretty mild time right now. It's been in the 50s too. Beautiful!! I just wish it could stay like this all winter!

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(7 replies, posted in Members' Cafe)

Aw, Lainy, I'm sorry things aren't great! You deserve great!!
I know you are happy with your life, but (in my case anyway) it can always be improved when you get to share it with someone special.