1

(8 replies, posted in Members' Cafe)

I moved to NJ at 8 and had a horrible time at the movie theater. I wanted a grape pop and she tried to give me a Popsicle. I finally got her to figure out I wanted a fizzy drink. She said "oh, you want a grape soda!" Soda??? HORRORS! Club soda?? Yuck! Then I got the "grape coke"... Never have figured that out!
We had plug ins instead of outlets. Sacks instead of bags.

You forgot "ufdah"!!

2

(8 replies, posted in Members' Cafe)

First, you have to know the Midwest accent of all of us Norwegians, swedes, etc... Practice your "ya, you betcha!"


Sven and Ole

Asked his occupation, Ole said, "Panty Stitcher.. I sew da elastic onto da ladies cotton panties."

The unemployment clerk looked up Panty Stitcher. Finding it classified as unskilled  labor, she gave Ole $300 a week in unemployment compensation.

Sven, when asked his occupation replied, "Diesel Fitter." The clerk looked up Diesel Fitter...and it was classified as a skilled job. So, the clerk gave Sven $600 a week in unemployment compensation.

When Ole found this out, he was furious! He stormed back into the office to find out why his friend and co-worker was collecting double his benefits.

The clerk explained, "Panty Stitchers are unskilled labor and Diesel Fitters are skilled labor."

"Vat skill?" yelled Ole. "I sew da elastic on da panties. Sven puts dem over his head and says, "Yah, ------------- DIESEL FITTER".

(If you don't understand a word of this, then you're not a Norwegian, Swede or Dane or from Nordern Visconsin - or Minnesota, or Nort Dakota!…….too bad!)

Thanks Marion. It was interesting reading. I just wish it could move faster!

Here's the skinny on this trial. I thought it had gone to phase 2, but was told yesterday that there are a number of "arms" to the phase 1 trial. It has been phase 1 since something like 2008????
The one arm, which I'm on, is solely the LY drug. The arm with LY and Cisplatin is closed. They have another arm with gem/cis and I think another arm opening up. I don't understand why it's taking so long to get to phase 2?

Personally, I'm on cycle 24 and going along as expected. Still full of water weight but it beats the alternative!

5

(7 replies, posted in Members' Cafe)

It was 4 years ago tomorrow that I started on this roller coaster. I went to my GP who said I was having a typical gallbladder attack. Nothing to worry about.....
It took a month of tests, scans, biopsies, etc. to get a diagnosis, and when I received it, I was told I basically had less than 2 years to live.
Boy was that guy wrong!!! Glad I didn't let HIM cut me!

We always did that too! I think it was on a Seinfeld show, too.

7

(23 replies, posted in General Discussion)

Sandie, have a wonderful trip. Fill it with amazing memories and come back ready to fight again! I wish you all the best!!

8

(12 replies, posted in Good News / What's Working)

Great, great news!!! I love reading success stories like this!

Safe travels!! Good luck with Dr. Javle!

10

(8 replies, posted in General Discussion)

The nurse did put in the clot breaking med. And we still had a bit of a problem. But Tuesday was better. Not the best, but much better!
As far as the ct scan... No measurable difference. So, the word is stable!! lol

11

(8 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

12

(0 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

13

(0 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

14

(6 replies, posted in Members' Cafe)

Happy birthday Rick!!

15

(14 replies, posted in Members' Cafe)

Great news! Wonderful to read about those lovely pet scan results!

16

(18 replies, posted in Members' Cafe)

I'm on medicare and have addtl insurance that I pay for. When I shopped for what coverage I should get I discussed the clinical trial, the excessive ct scans, the pump that needs to be monitored, etc. None of the coverage includes the pump, which is about $1300 every 8 weeks. Thankfully I'm not seeing it on any bills (not that I open them! lol)
Coverage from medicare and my part (whatever) is very small for all the Cancer costs, but again, I think Fox Chase accepts their payments.

17

(5 replies, posted in Members' Cafe)

I knew you'd chime in with this story!! lol

18

(8 replies, posted in Members' Cafe)

Gavin, that cat is much fluffier than my Stazi!

19

(8 replies, posted in Members' Cafe)

I don't know that cat. Maybe I'll have to look it up!

20

(7 replies, posted in Members' Cafe)

Thanks Randi! You, too!
Lainy, Arthur has made an appearance in my life, too. My knees are really feeling it! We are having a pretty mild time right now. It's been in the 50s too. Beautiful!! I just wish it could stay like this all winter!

21

(7 replies, posted in Members' Cafe)

Aw, Lainy, I'm sorry things aren't great! You deserve great!!
I know you are happy with your life, but (in my case anyway) it can always be improved when you get to share it with someone special.

22

(8 replies, posted in Members' Cafe)

I've been thinking about it for quite some time now, and finally decided to bite the bullet! I rescued the cutest little 3 year old cat from the ASPCA.
She's white with one blue and one green eye. And grey mustache looking markings on her head. And two faint grey rings on her rail. She is adorable, but very skittish. I'm thinking she was abused at some point. She spent the afternoon hiding in the bathroom vanity with her litter box. I finally coaxed her out with some wet food. Then she came out for dry food and after pigging out she switched from one bite of dry food to pets from me to another bite of dry food to pets from me.
After about 5 hours she finally warmed up enough to spend 1/2 hour nudging me as I lay on the floor and pet her.
But every time I get close she crouches and looks for her escape to the bathroom! As I write this I am "ignoring" her and she's hanging out in the hallway right outside the bathroom door!
We played a little, but she spooks so easily and runs back into the bathroom.
I haven't decided on a name. I kinda like Stazzi (because of the mustache) but have tried sweetie, angel, and baby. sweetie seems to get the best response. But every time I say angel she blinks.... I've got time, but would like to decide soon!
I would love to leave her loose tonight, but she has yet to use her litter box (8+ hours) and I'm afraid of where she might go instead.

Cycle 22 started on Tuesday... That's 19 months on this drug! And I have edema and a pimply reaction. All in all, not bad.
Stable is still the word of the month. And normal ranges for CA19-9 and bili. Still a bit off on the albumins and esonophils but I'm not too concerned.
Just wanted to post an update! Sorry I don't stop in often but with organizing the apt. and working (how do people work FULL TIME???) I just don't seem to have spare time anymore! I've even cut down on poker and karaoke!

24

(13 replies, posted in Members' Cafe)

Lainy, I am so happy for you! You have too much life and love to give to someone special... I have experienced it firsthand!
I think it's great you floored him so much he got scared... It means he took a step back and really thought about it. Makes this new beginning even more special!
Btw, I asked Santa for a boyfriend this year... I hope he delivers. I'm getting sick of the weirdos out there.... Getting a cat is looking so much nicer! 

25

(20 replies, posted in Members' Cafe)

Lainy, sorry things didn't work out! At least you had a few good times. Think of it as practice! smile
And use my word: NEXT!!!