Thank you so much for the news! It sounds so promising! I have talked to my onc about this drug and she knows I am veryveryvery interested!

Me, too, Duke!! I was devastated when my surgery was cancelled. But have learned I CAN and WILL live with this bast#rd!

3

(21 replies, posted in Members' Cafe)

Hey, momma!! I'm excited for you! Sending positive thoughts and prayers.

Oh, crap! I should have said you're gonna hear a sh#%load of stupid puns!!

Great news Momma!! Here's another: I guess it's all just been a pain in the A$$ for you!!

Glad SOMETHING is gonna be done for you.
When I broke my tailbone I got all the "what a pain in the a$$", "don't you feel like an a$$?", etc... I'm sure you're gonna hear plenty!!
Good luck and keep positive!!

Love you!

6

(8 replies, posted in Members' Cafe)

Haha Lainy! I'm a Cancer patient: I have no money!!! lol

7

(12 replies, posted in Members' Cafe)

Congratulations Grammy!!

8

(8 replies, posted in Members' Cafe)

Update: she is still unresponsive.... He's posting how devastated he is. and says if the doctors say she is brain dead he will rethink his decision.

I think I'm going to put a notarized piece of paper in my wallet saying no one has the right to overturn my DNR decision.

9

(8 replies, posted in Members' Cafe)

I have to vent on here because I can't post this where I want to! I know this guy who's a friend on FB. His mom has been sick for many months. She keeps falling and has become very frail. She has gone from the hospital to rehab centers for the past few months. Her latest issue was pneumonia.
Here's my vent...
SHE HAS A DNR. He received a phone call early this morning that she was unresponsive. He broke the DNR and told them to incubate her and do whatever is necessary to try to get her back. Now? She's intubated and unresponsive. I realize it's his mother and I don't mean to sound cold, but SHE HAS A DNR IN PLACE for a reason! So do I!! Is it that easy to break the wishes of the patient??
I think he is being very selfish. Again, I realize it's his mother, but don't her wishes count?

And as I'm writing this I'm getting ready to go to another visitation before a funeral. I still can't do funerals, but I'm going to pay my respects to my friend as much as I can. She was diagnosed with pancreatic cancer in December. I HATE CANCER!

Here's a pic of my parents and I in 2011 shortly after diagnosis. And Lisa Craine and Lauren Kunklier and I in 2012(?)

http://s8.postimg.org/3q0e3qpch/image.jpg

http://s8.postimg.org/3oqgabnip/image.jpg

Nice pics. Great to put faces to your family!

12

(11 replies, posted in Members' Cafe)

http://s22.postimg.org/snuwt4q9p/image.jpg
Ok, here's my try. Me and Stazi.

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(3 replies, posted in Members' Cafe)

Great pic! And great new feature! Love this! Maybe I'll post a pic of Stazi! lol

14

(8 replies, posted in Members' Cafe)

I moved to NJ at 8 and had a horrible time at the movie theater. I wanted a grape pop and she tried to give me a Popsicle. I finally got her to figure out I wanted a fizzy drink. She said "oh, you want a grape soda!" Soda??? HORRORS! Club soda?? Yuck! Then I got the "grape coke"... Never have figured that out!
We had plug ins instead of outlets. Sacks instead of bags.

You forgot "ufdah"!!

15

(8 replies, posted in Members' Cafe)

First, you have to know the Midwest accent of all of us Norwegians, swedes, etc... Practice your "ya, you betcha!"


Sven and Ole

Asked his occupation, Ole said, "Panty Stitcher.. I sew da elastic onto da ladies cotton panties."

The unemployment clerk looked up Panty Stitcher. Finding it classified as unskilled  labor, she gave Ole $300 a week in unemployment compensation.

Sven, when asked his occupation replied, "Diesel Fitter." The clerk looked up Diesel Fitter...and it was classified as a skilled job. So, the clerk gave Sven $600 a week in unemployment compensation.

When Ole found this out, he was furious! He stormed back into the office to find out why his friend and co-worker was collecting double his benefits.

The clerk explained, "Panty Stitchers are unskilled labor and Diesel Fitters are skilled labor."

"Vat skill?" yelled Ole. "I sew da elastic on da panties. Sven puts dem over his head and says, "Yah, ------------- DIESEL FITTER".

(If you don't understand a word of this, then you're not a Norwegian, Swede or Dane or from Nordern Visconsin - or Minnesota, or Nort Dakota!…….too bad!)

Thanks Marion. It was interesting reading. I just wish it could move faster!

Here's the skinny on this trial. I thought it had gone to phase 2, but was told yesterday that there are a number of "arms" to the phase 1 trial. It has been phase 1 since something like 2008????
The one arm, which I'm on, is solely the LY drug. The arm with LY and Cisplatin is closed. They have another arm with gem/cis and I think another arm opening up. I don't understand why it's taking so long to get to phase 2?

Personally, I'm on cycle 24 and going along as expected. Still full of water weight but it beats the alternative!

18

(7 replies, posted in Members' Cafe)

It was 4 years ago tomorrow that I started on this roller coaster. I went to my GP who said I was having a typical gallbladder attack. Nothing to worry about.....
It took a month of tests, scans, biopsies, etc. to get a diagnosis, and when I received it, I was told I basically had less than 2 years to live.
Boy was that guy wrong!!! Glad I didn't let HIM cut me!

We always did that too! I think it was on a Seinfeld show, too.

20

(23 replies, posted in General Discussion)

Sandie, have a wonderful trip. Fill it with amazing memories and come back ready to fight again! I wish you all the best!!

21

(12 replies, posted in Good News / What's Working)

Great, great news!!! I love reading success stories like this!

Safe travels!! Good luck with Dr. Javle!

23

(8 replies, posted in General Discussion)

The nurse did put in the clot breaking med. And we still had a bit of a problem. But Tuesday was better. Not the best, but much better!
As far as the ct scan... No measurable difference. So, the word is stable!! lol

24

(8 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.

25

(0 replies, posted in General Discussion)

I had a ct scan today. Oh, the joy!
I've been gaining weight: am now heavier than I've ever been. But I ignore that.
I went today and wasn't worried. Figured everything would be status quo. Then I saw my blood work. Now I have a niggling worry... Blood counts are low for the first time in over a year. So is calcium, potassium, sodium, etc. But the RBC and WBC is what concerns me. They aren't too bad, but why now?
Hopefully it's just a bad day.

Oh, and she couldn't get a blood draw from my port. I had 5 or 6 saline and 1 heparin added trying to get some draw, but we finally had to resort to the special sauce (whatever that is) and she STILL had trouble! I walked, I jumped around, I did deep breaths: nothing helped!
Anyone else have this problem? I've been doing this for 4 years and this is a first for me.