Two Cholangiocarcinoma survivors..Lisa Usher Layton and Lisa Craine

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Velosano Bike Race to benefit cancer research at The Cleveland Clinic Foundation with my heros, Dr. John Fung, Dr. Bassam Estfan, Scott Hamilton and my sweetie David Craine

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Celebrating Life and Family at The Scott Hamilton Cares Iniitiative Gala

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4

(2 replies, posted in New Developments)

Thank you for sharing Marion
Hugs
Lisa

Thank for sharing Gavin
Hugs
Lisa

6

(10 replies, posted in Members' Cafe)

Duke, beautiful post
Lisa

Julie, this is wonderful news. Praing for continued blessings.
Lisa

8

(7 replies, posted in Introductions!)

Welcome to this wonderful organization and group of supporters. I am so sorry for the loss of your Mother.
Peace and hugs
Lisa

9

(0 replies, posted in New Developments)

I have a dear friend with CHOLANGIOCARCINOMA who is currently being treated with chemotherapy in hopes of shrinking the tumor. She had Foundation One evaluate her tumor sample and she has the BRAF mutation. There is a women in Pennsylvania that is taking the drugs for melanoma and having good results. The BRAF mutation is also found in melanoma patients.  My friend would love to connect with this 47 year old woman who lives in Pennsylvania. I am hoping through this post maybe we will find this woman.
Thank you for your help
Lisa

10

(11 replies, posted in Good News / What's Working)

I have been having a lot of tenderness in the liver area so I have been worried like crazy. My oncologist moved up my scans and bloodwork. This was the first time I was going six months between scans. I am feeling blessed to report my scans were clear and  my blood work and tumor markers were normal range.
Hugs
Lisa

11

(19 replies, posted in Good News / What's Working)

Congrats...this is wonderful
Hugs
Lisa

12

(12 replies, posted in Introductions!)

I am so sorry you are going through this, as a Mom this has to be so hard. I think the above comments are great. Please know our family will be praying for Taylor, you and your family.
Hugs
Lisa

13

(12 replies, posted in Introductions!)

Amy,
Sorry to read about Matt's latest development. I had my second resection almost one year to the date from my first one.  We are here to support you. Sending prayers
Lisa

Dear Callie
Welcome to this group of wonderful supporters.  I am so happy to hear your Mom was a surgical candidate and  in good hands.  Prayers for continued healing.
Hugs
Lisa

15

(18 replies, posted in Members' Cafe)

I can't keep track of all the bills!!! It is like trying to figure out a mystery sometimes.
Hugs
Lisa

16

(7 replies, posted in Members' Cafe)

Hi Lainey
Happy New Year...love the glamorous picture!!!!
Lisa

Welcome Elaine,
I was diagnosed in 2010 stage IV icc. I always suggest a second or third opinion from a multidisciplinary team at a medical facility that has treated cc before. I have read so many articles about radiation not being effective for cc but I had SBRT three times and the treatment killed four tumors.
Lisa

I had a resection in 2010 and again in 2011. I still experience some pain and tightness. My doctor said it is probably scar tissue and nerve damage from surgery.
Lisa

19

(36 replies, posted in General Discussion)

Porter, praying this is nothing!
Hugs
Lisa

20

(12 replies, posted in In Remembrance)

Praying for you and that your pain will turn to beautiful memories.
Lisa

21

(12 replies, posted in Members' Cafe)

Kris..congrats on your new cutie pie!
Love
Lisa

22

(9 replies, posted in Members' Cafe)

Happy New Year...don't forget to eat your pork and sauerkraut!
Lisa

23

(11 replies, posted in Introductions!)

Welcome to this wonderful group of supportive and informative friends. Your family has been through so much with your Dad and your Mom sounds like an angel. Cholangiocarcinoma is so different in all of us. I was diagnosed in 2010 stage IV icc and I am doing well so never give up Hope.
Hugs
Lisa

24

(10 replies, posted in General Discussion)

Judy,
I am so sorry for your pain. I am glad to read that hospice in coming soon, they are so wonderful. Praying for peace and comfort.
Hugs
Lisa

25

(9 replies, posted in Members' Cafe)

Happy New Year to my CC Family. May 2015 be blessed with health, love, laughter and joy.  I am so thankful for all of your love, support and great information. This is a place of comfort and friendship.
Hugs and peace
Lisa