1

(4 replies, posted in Introductions!)

Thanks very much, Marion and Lainy.  I'm looking forward to sharing any news that comes my way.

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(4 replies, posted in Introductions!)

I am a 53 year old woman who was diagnosed with non-resectable cholangiocarcinoma in June 2010.  I am being treated at Princess Margaret Hospital in Toronto and I am so grateful for this amazing facility and its staff for getting me to this stage in my journey.  After initial testing and ERCP stent insertion, I was given the green light to begin treatment under the Mayo Protocol.  I have successfully completed the aggressive radiation and chemo therapy and my staging laparotomy has revealed no spread of cancer.  More testing has satisfied the doctors that the treatment has reduced the size of my tumour and I suffered no ill effects from the therapy, so I am now receiving maintenance chemo therapy and am on the waiting list for a liver transplant.  While this is great news and I am looking forward to a positive outcome, my challenge now is to find a living donor for the transplant in order to avoid the risks of waiting too long for the surgery.  I never married and have no children, so my options are quite limited.  I was wondering if anyone had any suggestions as to what resources might be available to me in my search for a donor.  I have contacted my transplant team and some local organ donation organizations, but any input from someone who has been down this road would be much appreciated.  Thanks for listening, I look forward to any feedback and continuing to share in more discussions on this terrific site!