@PCL1029, his oncologist is planning for a PET scan in about a month, after a round or two of treatment with Gem/Oxaliplatin. We certainly are hoping for an improvement. The doctors have not said whether extrahepatic or not. The terms I have heard are adenocarcinoma and cholangiocarcinoma. They originally thought it was pancreatic cancer.
Are the CA19-19 less reliable indicator is extrahepatic?
@Lainy, my father is 69 and has stage 4 cholangiocarcinoma (metastasized to liver, lungs). Part of my concern is that oncologist is quite delicate in her approach to explaining the disease. At the last appointment I attended with my father, she expressed concern that CA19-9 has risen to 27,000 but did not go in to detail that I saw in operative report from a recent attempted ERCP because there was significant tumor involvement in the duodenal bulb encasing bilary stent