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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 17
Hi everyone. About two years ago, my grandma was diagnosed with Cholangiocarcinoma. It's been a rough two years and recently, it's been tough. It looks like it may be time to say goodbye. Her and I are very close. We've lived next to my grandparents for my whole life and I can't imagine life without her. She's been in the hospital for a week now because of various infections the treatment has caused, and also that her cancer spread. I'm finding it a little hard to find some hope, and I can't hold it together to save my life. Can anyone help?
That is so wonderful, Pam!! Congratulations!!!!
It's been a while since I've posted here. I have updates!
So a couple months ago, we found out it shrunk! However, she can't have any more radiation; she's reached her max. She's been bombarded with chemo since, but it hasn't shrunk since then.
She had a blood transfusion a couple days ago along with chemo. She has one more chemo appointment, then she's off for a couple months.
Her attitude is great, and she's a real trooper!
Thank you all for support!
I'VE GOT NEWSSSS!!!!! My gran just got another round of chemo [no more radiation] and the tumor finally shrunk!! HAPPYYYY
Your story is incredible!!! Celebrate your anniversary of cancer-freeness [?]
However, I did tell my grandma I would donate parts of my liver to her, but the doctors said that the tumor is too big and it's by some major artery, I think. I'm not quite sure, I heard my dad talking about why she was inoperable. My gran told me that the doctors said liver transplant[s] wouldn't help, too.... should I try to get a 2nd opinion?
I'm not sure if I could convince her to get a second opinion, but I do know that they're doing more scans before they start with the treatment. I guess they're double checking? Or just planning the treatment schedule according to the CC
Thank you all so much, I don't know where I can get better support!
However, a transplant won't be going on because my grandma is inoperable. Have you happened to hear any other "cures" that don't involve surgery? We're doing chemo and radiation, but anything else?
Okay, I have good/bad news
My gran is inoperable. I think it's because the cancer is too close to an artery? Anyways, it's too big, but it hasn't spread to the pancreas or deeper into the liver. They're going to start chemo and radiation. The chemo they're using will not cause hair loss, but I have one question; doesn't radiation GIVE you cancer?
Thank you all so much for the kind wishes
She's meeting with the surgeon either tomorrow or the 27th, I can't remember which, but I am still praying that it's operable
Ahh, that's good to know.
Soooo I have updates!
It was an ERCP they did, and they put in one stent. They said that the cancer isn't in an advanced state, so they're going to take it out with surgery and do chemo to make sure it's all out. My gran's meeting with the surgeon in about 10 days
Jim, she is going to Carbone for treatment. She just had a stent placed today while they were doing an endoscopic [?] procedure. (they look around with a camera, not sure if that's endoscopic...) They'll get back to us on when they're starting treatment and what treatment she'll be going through
I believe my grandfather will be her advocate. He goes to all of her appointments with her and of course lives with her as well. What would he be writing in the notebook? Updates, thoughts, or would it be a personal-way-to-vent out type of thing?
Thank you very very VERY much!
I've done some reading, and I heard that there's no proof that if choloangiocarcinoma patients get transplants it helps?? Is this true???????
Thank you all for replying and giving me support. I don't think that we're going to start chemo, and we're not sure if surgery is an opiton right now, the doctors haven't gotten back to us. I do know that there is a major[ish] cancer center somewhere in Madison where she's going for treatment and diagnosis. I'll be sure to keep posting and stay positive ♥
Jim and Gavin:
Thank you both very much for the information on where she should be treated.
What city/cancer center would you recommend? We live near Madison, WI and I believe she was diagnosed at the UW hospital in Madison. We have not started any treatments or put in any stents yet, but the doctors were talking about going through chemo treatment. Tomorrow, they're going to go in with a camera to get a better look at the cancer. As far as we know, it's external.
Thank you both for the support; I really appreciate it.
I just got the news today that my grandma has CCA. I need assurance that she's going to be alright. The cancer itself is a little bigger than a golf ball, and she turned yellow from it-if that helps. I don't just want "i hope"s I REALLY really want to know FOR SURE that she's going to be alright. She's had cancer before and got through it just fine. She's 66 years old
My grandma is 66 years old, and I'll have to get back to you on where the tumor is, but if it helps, I do know that she has cholangiocarcinoma, but the doctors are double checking.
I just got the news today that my grandma has CCA. I need assurance that she's going to be alright. The cancer itself is a little bigger than a golf ball, and she turned yellow from it-if that helps. I don't just want "i hope" I REALLY really want to know FOR SURE that she's going to be alright. She's had cancer before and got through it just fine.
Posts found: 17
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