1 Reply by TimEllis

(11 replies, posted in Introductions!)

Thank You All!  The love and support I feel already has brought tears to my eyes.

Gavin and Marion, thank you for the links to the DR's and Hospitals... that is exactly what I was looking for!

Margaret, we live in Sault Ste. Marie, Michigan, on the Western End of the Upper Peninsula, so Green Bay is not that far away..... thank you for sharing, and I am so happy for you and your husband!

Cathy, story's like yours and Margaret's and so many others I have read, warm my heart, gives me hope.  Thank you for sharing and the information.

I spend all day and night at work, going through the motions while only being able to think about this damn disease!  By the time I get home I am mentally warn out and only thinking the worst.  Then I come back to this site, and the hope returns.

My Mom is a fighter, and her Faith is nothing short of amazing!  She will fight this head on, and the family will be with her every step of the way, and this site, all of you will be there with us providing the support we need.

Thank You to all of you, and God Bless.  Each and everyone of you are in my nightly prayers now!

Tim

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2 Reply by TimEllis

(11 replies, posted in Introductions!)

Hello Lainy..... My Mothers CC is located in the right quadrant of her Liver.  They cannot tell exactly after the CT, Pet, MRI, and any other scan you can think of, if it has started to move into another part of the liver, or just exactly how big it is.  So for that reason our ONC could not give a definite stage, except to say it was most likely stage 2, possible starting to move into a stage 3 but could not know for sure.  The good news we received is that it doesn't look like it has started to spread through the body or leave the liver yet.

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3 Topic by TimEllis

(11 replies, posted in Introductions!)

For being such a rare form of cancer I can't believe I was able to find a site such as this dedicated to CC.  We just found out today that my Mother has been diagnosed with CC.  Needless to say, many hours have already been spent searching the internet trying to find answers and looking for good news.  Unfortunately it seems with this cancer there is not allot of that out there.  At least until I found this site!

I can't even begin to explain how our families world has been turned upside down in a matter of days.  But then again, I know I am now among people who know and understand. 

We live in a small Northern Michigan town where our Hospital is not equipped to deal with this type of cancer, at least nothing more than administering chemo or radiation.  We already have our first visit to University of Michigan Hospital set for next Friday.  We are very blessed to have a wonderful hospital like this in our own state.  But I have already been looking at other hospitals just in case U of M tells us they can't or won't operate.  We will not take NO for an answer.  I have read so many amazing stories on here already of people who did not take NO for an answer and kept searching.  So I was hoping if any of you could share which hospitals and DR's you had success with so I can compile my list of places and DR's to check out if needed.  Also, if any could share alternative medicines you have had success with too!

12 hours ago I had never heard of Cholangiocarcinoma, now it's all I can think about.  For a group of people I have never met or talked to before, you have all just become my new support family and I thank you from the bottom of my heart for being here and look to learn and grow from your experiences.  Then maybe someday I can turn around and share what I have learned from this unwanted journey life has put our family on.

Thank you in advance for any and all help you will provide!

Sincerely,

Tim

Go to forum: Introductions!