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|La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
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Posts found: 5
i'll check if I can get you all the info. My mom is the one who usually goes to the chemos with him. I'm living in PR but i will try to get as much details as I can. Are you a Healthcare profesional, patient, or caregiver? You semm to know a lot!!!
Hello everyone!! Thak you for all your comments. I like sincere people!!!! I'm back with the chemo information you requested. I think there are some drugs missing in my list but just for you to know:
As part of the treatment, my dad has to take a japanese pill made of Coriolus Versicolor fungus also known as Turkey Tail.
Of course, the ammount of each medicine used is unknown by us. Every time Dad goes to the chemo, after the blood tests, the Doctor adjust the "cocktail" as needed. One thing I've notice is that they don't give me the stage of the CC neither a prognosis. Is that ok? It is very difficult when you don't know where you're going or what to expect.
I will get the details of the chemotherapy during this week. I left the papers at my dad's house in another city. As soon as I get it I'll post it.
Thank You very much! Marion: the primary is inside the bilial ducts and there are no more metastases than two lesions in th liver. He's been scanned twice (PET scans) and no evidence of other metastases. Thanks God!
Hi! I am Rodo, from San Juan, Puerto Rico. My dad has been diagnosed with CC last August. He has methastasis to the liver and is currently under treatment. The doctor said that the tumor in his liver is too big to be removed and our only choice was to start chemotherapy to slow down the spreading of the cancer... Looking for options, I contacted Dr. Marion Schwartz in Mount Sinai Hospital, NY hoping for liver transplant as a solution for our situation. Last november we went to the appointment and after looking our records (Ct, biopsy, etc), he told us that transplant was not an option. He offered to refer us to who he considered "the best ochologist in Manhattan" whose "chemical cocktails" help a lot of hard cases. That's how we end up at New York Downtown Hospital in Bruckner Oncolgy Clinic. I find him a place to live, and move him and my mom to Manhattan where they have been during the last 7 months. Things have been hard for everyone!! Specially during winter... but the worse is my father's attitude. He has no hope!!! At the beginning the tumor kept growing from 10 cms (when diagnosed) to 12cms (January). On February I brought him to PR for a few days between chemos to recharge energy. When he went back, he was rescanned and the tumor shrunk to 6.5 cms!!!!! We all were so happy!!!! But he wants a fast solution!!! I am being too optimist about this fight? Should I stop encouraging him to fight against CC?
Posts found: 5