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Lainy, I fell like you are everyone's mom on this board!! We appreciate you so much!
Great Randi!!! Can I ask when your next scan will be?
Great news Pam!!
Keep us posted on her recovery!
I am pretty familiar with PBC, used to see some patients who got transplanted for it.
I had my hepatologist test me for PBC, blood work for AMA, it came back negative. The reason I thought i may have it is because I also have high cholesterol.
My hepatologist told me PBC is not usually associated with CC but PSC is. I know lots of our member's have PSC (primary sclerosing cholangitis) and that is a well known risk factor for CC.
Randi, lots of prayers for good results!
My BP has been low since my resection. Not sure why, but I am routinely in the 90's systolic.
Great news! Keep us posted and lots of prayers for you and your family!
Have a great time!!!
Wow, May 15th is going to be a BIG day around here!
Lots of prayers for you both.
Pam, FYI, I have a picture of my tumor. It's a picture of the 40% of my liver removed with the tumor in it. It is quite neat.
Great news!! Thanks for sharing!
does he have blood sugar issues?
I just read your latest blog entry. I love all the dog pictures! They are cuties.
Glad to hear Lauren is improving and look forward to hearing her surgery is set.
So glad to hear she lost so much weight.
What does his scan show? My Ca 19-9 went higher after I started on chemo and even worse during radiation.
That's exactly the news I was hoping for! So glad to hear she is doing well.
I was on Gem/Cis and handled it pretty well other than it destroyed my blood counts. I only had 6 cycles, so I'm sure the effect is cumulative. I had radiation with Xeloda and had terrible acid reflux/vomiting, but I think it was from the radiation. I've never been on Gemzar combined with Xeloda, but from what I understand those are both milder than Cisplatin. But everyone is different. I know hand/foot syndrome can be common with Xeloda, especially the higher doses.
I'm glad to hear you've done so well on chemo.
Take care and keep us posted!
Eli, how does your wife feel? What's day to day life like for her? I remember our treatment was pretty similar.
I feel pretty good. I am up to 125lbs! I was 118 before I get sick and went down to 104lbs at my worst during radiation.
I take omeprazole for acid reflux. I was off it for a while, but seemed to need to clear my throat frequently, so I went back on it. I take Creon with meals. Not sure if it helps or not, but it doesn't bother me, so I stay on it. The reason I started it was for floating stools. but no other symptoms.
I work from home full time. I am pretty active again. I run frequently, just around 3 miles, but I'm thankful to be able to do that.
Overall, I'm very pleased with my post treatment life. You would think it would be much worse considering everything my body has been through.
I hope your wife is feeling good! I think of you both often.
So, that was the quickest I ever got a test result back!
I am happy to report my ct scan showed no evidence of disease!
I am so thankful and grateful! God is good! And I must say my oncologist is pretty awesome for releasing my results so quickly.
I will sleep good tonight.
Thanks for listening!
I get my 2 yr post resection ct scan and blood work today. Prayers are appreciated!
I had a lovely weekend at the coast. My husband and I went there to get our mind off of the scan but as we were driving home I could feel the tension starting. I didn't sleep well last night and will be fortunate to sleep at all tonight. You know how it goes.
I should get the results by Wednesday.
Take care everyone,
No, it's not on you tube. Per the movies website here are the options:
See the film:
Watch on HBO
Buy the DVD
Rent or buy on iTunes
Rent on Netflix
Thanks for responding. It is an interesting topic and a topic I wish I didn't have to think about at 33, that's for sure!
Has anyone seen the documentary? I'm thinking of watching it since it involves a CC patient, but I know it will be terribly sad and difficult.
I was wondering if anyone as ever seen this documentary? It features a patient with cholangiocarcinoma who chooses Death with Dignity, which is legal in Oregon. For those of you who may not of heard of it, here is the definition: Death with Dignity Act which allows terminally-ill Oregonians to end their lives through the voluntary self-administration of lethal medications, expressly prescribed by a physician for that purpose
What are everyone's thoughts on the subject? I know it is controversial and highly debated but I would still like to hear people's opinions.
Posts found: 1 to 25 of 424