Thanks for looking out for us, Lainy!!
Re: My trip to the Naturopath (18 replies, posted in Complementary & Alternative Treatments - CAM)
Yay!!!!!!!! Thanks Marion!
I had a resection with negative margins though one was close.
3 major medical centers all recommended chemo to me.
1 recommended radiation, 1 was against radiation and 1 said although they are not currently recommending adjuvant radiation to their R0 patients, they understand why it was recommended in my case and were not against it.
The reasoning I was given for adjuvant therapy is to go after any microscopic cancer cells that may still exist.
Good luck with your decision.
So sorry to hear you are going through all of this. Thinking of you!
Congrats! Thanks for sharing!
Re: Aspirin May Prevent Cholangiocarcinoma: A Case–Control Study from the (2 replies, posted in New Developments)
I asked my oncologist about aspirin. She said she puts colon cancer patients on it but it's not proven for CC. I don't take it, but I think about it.
Take care and thanks for sharing!
Glad to hear it went well. I think strictures can be pretty common. You had radiation, right? That was one of my biggest concerns with radiation.
Glad to hear you are still cancer free. Take care!
I hope she is well. Thanks for sharing the article!
Great news! Get well soon!
Best of luck with your surgery. Although, i didn't get it at OHSU, I did have a resection and would be happy to answer any questions you may have. It wasn't nearly as bad as I thought it would be.
And I was a nervous wreck going in for surgery. My fears were mostly around questioning if I was doing the right thing because they didn't know my tumor was cancerous until surgery. So, I feared I might go through a big surgery for something that wouldn't bother me in the future. Turns out, surgery was the right decision!
Great news! Enjoy your trip.
Great news!!!! Keep us posted!!
Thanks for sharing!!
Re: Coffee and Cigarettes May Protect Against Liver Disease (4 replies, posted in New Developments)
I've been told I don't have PSC. One thing I have always been baffled by is I am the only non-smoker in my family and the only one who has cancer. Sometimes I wish I would have smoked.
Congratulations on your successful surgery!
I am a little over 2 1/2 years post surgery and it is hard dealing with the thought of recurrence. I also worry over every single pain I get. I'm not sure if that will ever go away.
Life post cancer is definitely a new way of life and takes some getting used to. I don't make any long term plans. I still only make plans for about 3 months ahead. This is so hard and makes me so angry sometimes that I have to live my life like this. But, at least I'm living and I try to be thankful for that.
As far as you hazy diagnosis, can't they do a tumor of origin test?
Re: Cholangiocarcinoma: treatment with sorafenib extended life expectancy (5 replies, posted in Chemotherapy)
Thanks for sharing!
I am sorry to hear of the results of the scan. Lots of prayers for success with your new treatment.
Sometimes constipation can be caused by all the pre-meds of the chemo. I found Zofran really made me constipated. I used to take Miralax everyday while on chemo and radiation. It helped.
Take care and enjoy your trip!
Hey Porter, bust of luck with the second opinion. I had 3. University of Pittsburgh, OHSU, and Mayo Rochester.
I did tell my oncologist at OHSU that I was seeking another opinion and they were fine with it. So, just in case you were curious, it's not something you need to hide.
Keep us posted and glad to hear your tumor shrunk!
Re: Does sugar, high body mass cause cholangiocarcinoma? (8 replies, posted in General Discussion)
When I was first diagnosed I was desperate to find similarities between cases. I figure there has to be something, but I have yet to find anything and am not as obsessed with it as I originally was.
I have always been healthy and had a good diet, no smoking, some minor alcohol use. Sure, I enjoy the occasional sweet, but I can't name many people who don't.
I am as skinny as can be. I've always been a runner or exercised in some form.
I had Mono in my early 20s. I have high cholesterol, which has been labeled as hereditary and I was never on medication for it.
I wasn't on any medications at the time of diagnosis except I recently quit taking birth control.
My Grandpa had Prostate Cancer, but there is not a large cancer presence in my family.
I am the only non-smoker in my family and I am the only one who has cancer. I'm thankful they don't have cancer, but I find it very ironic.