1

(4 replies, posted in New Developments)

I think they would have preferred if I got radiation right after surgery and then got chemo.  But I had already started my chemo before it was recommended I get radiation.  So I did 3 cycles of chemo, radiation, and then the remaining 3 cycles of chemo.
I had no lymph node involvement.  My last MRI was in May and it did not show signs of disease.

take care!

Susie

2

(4 replies, posted in New Developments)

Hi.  I had I resection 3.5 years ago.  I received adjuvant chemo and radiation.
Radiation was recommended for me because I had a very close surgical margin.
However, they wanted to do the radiation soon after surgery.  I was actually started on chemo and I received 3 cycles, then got radiation along with an oral chemo, and then finished the other 3 cycles of my iv chemo.
So, I think they like to perform radiation soon after the surgery.  I'm not sure with her being a year out if they would recommend it but that is always something you can discuss with her Dr's.
I did get 3 opinions on the radiation and that's exactly what I got, 3 very  different opinions.  Some recommend it and some don't.

take care and good luck!

Susie

Congratulations, Lainy!!!  So glad to hear it.

Take care,

Susie

4

(5 replies, posted in General Discussion)

Hi Porter.  I have only ever had one PET. It was right after my surgery. My situation was kind of backwards.  I had surgery first for a tumor that the Dr's did not think was cancerous. Then after surgery when they found it was cancer, I was worked up for a primary. 
How big are the spots?  I would ask if they are big enough to light up on PET. I'm sure if they were concerned about them they would order a biopsy.  But you could ask about that as well.

Take care,

Susie

Great news and thanks for sharing!!

Susie

6

(17 replies, posted in Good News / What's Working)

Congratulations!!!

7

(87 replies, posted in Introductions!)

Congratulations!!

Great news!!

9

(16 replies, posted in Good News / What's Working)

Yay!!!  Great news!

Thanks Lainy!!

11

(5 replies, posted in Announcements)

Well said Marion!!

Porter,

Congrats on your last treatment!

I have had very similar experiences to you.  My liver hurt a lot during chemo.  I was always afraid it was a recurrence.  It never was and the pain went away after treatment was over.  Every now and again I still get a random pain in my abdomen.  Nothing has ever showed up on CT but it is still enough to cause me to worry.
I've debated since diagnosis going on an anti depressant but I never have. My reason is that I just don't think a little pill is going to make me forget I had cancer and all that it's taken from me.  Just my thoughts.  I know plenty of people use them and find them beneficial.
I did go to the OHSU young adult cancer support group and sometimes I still consider going there. It is just a pain for me to get there on time with traffic.
When I went, I had mixed feelings about it. It is a support group for cancer "survivor's"  but I'm not really sure what that means.  A lot of the members were stage IV undergoing very aggressive treatment for various cancers.  I don't think there was much hope for them being cured.  For me, it was difficult going there being cancer free and being around so many others who were not and probably never will be.  It's like you feel bad complaining.  That's how I felt anyway.


  We should meet up for coffee sometime!  We're pretty close to each other.

Take care,

Susie

Yay!!!!  Great news!

Glad you are home and cancer free!!  Sorry to hear you had to go through so much.

take care,

Susie

Porter I asked our onc the same thing about the aspirin.  She said it's only been proven for colon cancer.
I had also discussed maybe getting pregnant so for that reason she said no to the aspirin.

I have a small ulcer in my duodenum from radiation.  I have no symptoms and only know it is there because I was scoped.  So for that reason, I am thinking no aspirin for me. 

Take care,

Susie

http://health.yahoo.net/news/s/hsn/one- … -treatment

17

(11 replies, posted in Good News / What's Working)

BTW, is the research study on here asking for participants real or is it spam?

18

(11 replies, posted in Good News / What's Working)

I saw the oncologist. Not much to report, visits are pretty short when you are doing well.  I get blood work at 6 month and ct chest/abd/pelvis in one year.
I asked about my prognosis at this point and she agreed it gets better as time goes on.  I believe she said 75% recur in the first 2 years.  I think Mayo told me 90-95% recur in the first 2 -2 1/2 years.
She said I can have kids if I chose to do so, so we'll see.  It's a big decision.  I did meet with high risk OB about  6 months ago and he said I am not that high risk.  He called me medium risk.  Said my main concerns would be preeclampsia and growth restriction.  Also talked about the possibility for issues if I need a csection due to my abdominal surgeries.

I am so thankful for my 3 years of life. I am now 34 years old.  Any questions, please feel free to ask.

Thanks,

Susie

Had my MRI and no evidence of disease!! 3 yrs post hepatectomy for Intrahepatic cc.  Had chemo and radiation post resection.
See the oncologist tomorrow.
I'll let you know what the plan is, but I think I will be scan free for a year.

Take care,

Susie

Porter,

My LFTs and tumor marker went up during treatment.

21

(4 replies, posted in General Discussion)

I have been thinking the same thing for a long time.  His wife and I are on the same scan schedule, so I figure when I am due for mine she must be due for hers.

Eli, if you read this, I really hope you and your wife are well.  We miss you.

Take care,

Susie

22

(6 replies, posted in General Discussion)

Hi Everyone.

I will have my 3 year post resection scan in 2 weeks.  I am actually having a MRI instead of a scan this time.  I have had so much radiation I asked to be switched to MRIs.  I had my ca 19-9 drawn last week and it is 16, down from 20 three months ago.,  I am not sure how reliable that test is in my case, but I'll take a low number over a high one any day.  I leave for Hawaii in 2 days.  I get my MRI the day after I get back.  Please keep me in your prayers.  I am very thankful for my 3 years!

Take care,

Susie

Thanks for sharing!!  So it looks like this study says adjuvant chemo and radiation did not help.   I know that is a hot topic around here.

Take Care,

Susie

Will do.  Is this another Oregonian?

take care,

Susie

25

(13 replies, posted in General Discussion)

Lots of support headed your way!  Keep us posted on how she does.

Take care,

Susie