mark, i feel your fright... i found my own tumor in nov of 2002. i have intrahepatic cholangio too. during my first liver surgery, my entire left lobe was removed. i had a recurrence within a few months.
i had my 2nd liver surgery in feb 2004. had another recurrence and a 3rd liver surgery in aug 2006.
post my 2nd surgery i had more than 4 years of various chemos. i had a short 'break' from chemo at one point. my last chemo treatment was in may of 2008... WOW that's shook me a bit just now to realize how long it has been....
i had a VATS procedure in feb (?) 2010 - the lesion was benign.
when i found my tumor, i cried for days. post my diagnosis and learning how serious this disease is, i cried harder.
with my first recurrence, i felt it was even more difficult to cope as the research pointed toward a really bad outcome.
however, i had to focus on the task at hand and then my fight with getting my insurance to pay for treatment kept me very busy.
for me, it took some time to adjust to what i was dealing with and just like everyone else, life's other challenges did not give me a break.
this site did not exist when i was diagnosed and it is truly a blessing for everyone who has anything to do with this monster. i hope that this support family will help guide you, ease your pain, and help you through a fight of a life time.
i don't come here often as i am dealing with other family issues, but i will check back on a regular basis for the next week or two in case you have any questions that i might be able to help you with since i am one of the longer survivors.
sending you love and hope,