The last month has been quite a roller coaster. Two trips to Sloan Kettering and one local hospital stay in between because of high fevers due to infection. A drainage tube was inserted and apparently all of the bile ducts were not flowing properly because the drainage tube was slightly off. The plan of action was to get the bile flowing and they would insert a balloon into the bile duct to correct the area that was narrowed.
All doctors in Richmond and New York were certain that the cancer had not returned and the partial blockage was due to scar tissue because NOTHING showed on two CT scans and two biopsies showed nothing. Not to mention we were told this cancer does not return after seven years. Well I guess the third biopsy was the kicker because it showed a very few cancerous cells at the narrowing of the bile duct where the original resection occurred. There is no mass or tumor but the cells appear to be "angry". The cancer cells are localized. The drainage tube was removed and a permanent stent was inserted in place of the balloon. The fifty million dollar question now is how do we treat this. All doctors agree this is a "medical mystery and "medical marvel". We have been told when this cancer returns it always shows up somewhere else as a mass or tumor and usually within three years.
Our oncologist in New York was quite positive and said with it being localized and such a very small amount of microscopic cancer cells, chemo and radiation could possibly eradicate this. Our Virginia doctor was not as optimistic saying we have absolutely nothing to compare this with so we do not know how it will respond to treatment. Not even sure it is a recurrence or a new cancer. Both oncologist have made several conference calls to other major cancer hospitals and it continues to be a mystery. Ron is not a candidate for a second resection because he had a complete one seven years ago.
Ron is scheduled to start chemo on September 24 and his medicine will be:
Gemcitabine 1000 mg/m2 IV days 1 and 8
Cisplatin 25mg/m2 IV days 1 and 8
Duration: 21 days x 4 cycles
We will be returning to New York following his treatment to discuss radiation.
Certainly not the path we were expecting to travel seven years out but would appreciate any thoughts on the above. Please keep Ron in your positive thoughts and prayers. The people on this website are always in my prayers.