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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 3
Thank you everyone for your support and words of encouragement...as well as the information.
Nancy, do you mind sharing with me the naturopathic supplements that your husband is taking? I have family members who are very interested in this area and others who are leary of it and would like to be able to share what others are doing that they find helpful (or not).
Thanks again to everyone.
Feeling better after reaching out.
Thank you for the kind welcome the other day. We are currently looking at the options for a second opinion for my mom with stage 4, inoperable CC. I keep reading that Johns Hopkins is kind of the place but on the list that was forwarded to me from Gavin, The University of Chicago is also listed. Being that Chicago is much closer to Grand Rapids, Michigan than Baltimore, Maryland, I'm wondering if anyone has some experience in Chicago. It would be easier on mom and the family if we didn't have to travel quite as far but if the quality of care is that much better then we will make the trip to Baltimore. Any thoughts or experiences you can share?
My mother was diagnosed with stage IV CC back in May. She's 63 and is otherwise in very good health. She underwent several rounds of chemotherapy in hopes that they could reduce/stabilize the tumor and perform a resection. The Dr. told us it was a very aggressive treatment given the severity of the cancer but that because she responded so well to her chemotherapy (they were able to neutralize the tumor's growth) he would give it a shot. We put all of our hope on that surgery and then last week, during the surgery, it was discovered that it was too advanced. The surgeon gave her about a year and used words like, "It will take a miracle." Needless to say, we are all devastated. I'm looking for both words of encouragement, and things to say to her to keep her fighting and seek a second opinion. I'm thinking Mayo Clinic or U of M since we are in Michigan. Mom is very much a realist, as am I. We don't want to build up hope (yet again) where there may be very little and I don't want to be an empty cheerleader for her. I want to be able to give her real stories of people who, with similar situations, were able to seek additional information and treatment and use it to prolong their lives. Thank you for any help that you can provide.
Posts found: 3
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