Hi all, I introduced myself in October. My partner T was diagnosed with cc in 11/09, was thankfully operable and then went through about 8 months of treatment. She was having stomach pain this October that the docs were having a hard time diagnosing. She eventually had a pet scan that showed a cluster of cancerous lymph nodes near her pancreas, which were causing the pain, and a number of other cancerous lymph nodes elsewhere in her body.
The doc's best guess is that she has a year with chemo (gemzar/cisplatin). She doesn't want to do the chemo, which is understandable. Her pain has been under control for the past month or so but has been getting worse this past week.
I will support her in whatever decision she makes. Saying no to chemo is one thing that she has the control to do right now and I understand how out of her control everything else is with this disease.
I am just wondering if the chemo might actually make her feel better. I feel like she is going down hill fairly quickly and I just want her to be as comfortable as possible and have the best quality of life she can while she is still with me.
Her oncologist says that the chemo should help with the pain. Is this true? For those of you who have lost loved ones to cc, do you think that the chemo helped or just made him or her feel worse? She absolutely wants quality over quantity.
I am so very sorry for the losses and the suffering that so many of you have experienced because of cholangiocarcinoma. I could really use a little advice from someone who was a caregiver near the end of life.
Thanks and happy holidays,