Hi, I'm Lanny Andrews the husband of Cindy Andrews. Cindy passed in our home Feb 5th after a courageous 23 month brawl with intrahepatic CC. We married the month after high school graduation, (1974) and would have been married 39 years this June. I miss her more than words can describe. Reading thru some of her old posts, her spirit is obvious, rarley talking about her struggles but encouraging others.
I noticed her last post was in Sept. 2012 shortly before she elected to start a clinical trial, which was absolutely the sickest I ever saw her. The trial had no effect and hospice was recommended shortly before Christmas. She waited until the holidays were over to start in home hospice wanting Christmas at our home to be as normal as possible. The two year battle with CC was "our battle". I took her to every appointment and toward the end was giving her shots daily for clots in her lungs and draing the fluid from her abdomen every other day. I thank God that we were in the financial position that I never had to be away from her during "our fight". As close as we were the first 37 years of our marriage, the two years we fought CC together brought our relationship to an entirely new closeness.
I will always keep her in my heart and see her in the face of our 6 year old grandson Noah, he was Mammys boy. She also leaves grandsons 15 month old Colton and 8 month old Nolan and we are committed to keeping Mammy in their lives.
Lana (daughter), Zane (son) and myself sent her home with maybe the coolest funeral ever with two beautiful picture DVDs and over 400 minutes of her favorite music which included Led Zeppelin, Gregg Allman, Warron Zevon, Allman Brothers, Simon and Garfunkel, Eric Clapton, The Beatles and on and on...she loved her music and she loved it loud, we were children of the late 60s early 70s after all. I am guessing at least 500 people paid her a final visit.
Her service opened with Kris Kristofferson signing "Loving Her Was Easier Than Anything I'll Ever Do Again" and closed with Judy Collins beautiful version of "Amazing Grace".
I have donations to the CC Foundation, collected at her funeral, and will be getting them in the mail soon.

Thanks to all who conversed with Cindy, offering prayer and encouragement.

Lanny Andrews

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(13 replies, posted in General Discussion)

Please keep us posted!  And as always, I am praying for good news!
Have a safe trip!

Cindy

Glad you are having so much fun Kris!

Cindy

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(26 replies, posted in General Discussion)

Arrrrrgh!  I have been on Oxaliplatin & Xeloda since February of this year.  Honestly, I have not had any of these horrible side effects that all of you are speaking about.  A little tingling in the fingers, mouth and lips for 2 out of the 3 weeks is usually it.  I must be the exception to the rule?  Hang in there Pamela, I believe Lauren will do great!

Cindy

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(4 replies, posted in Members' Cafe)

I would love to play!

Cindy

Praying for good scans!

Cindy

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(4 replies, posted in General Discussion)

Yes, I was on Irinotecan for approx. 3 months, December thru February.  I had SEVERE diarrhea which resulted in my potassium level dropping very low.  I also spent 3 weeks on the couch because I was too weak to get up.  I did not have any pain or vomiting.  My oncologist did lower my dose of the Irinotecan by 1/2 and gave my an Rx for lomotil which controlled the diarrhea.  Topcatj, I will add Dennis to my prayer list.

Cindy

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(7 replies, posted in General Discussion)

Well, today was a piece of cake.  There were 2 tumors, not 3, like I thought I heard, and my back is all marked up.  The worse part was that my hands and arms went to sleep while I was lieing on my stomach. 
Thanks for all of your kind thoughts and prayers.  We'll see what day #2 brings!

Cindy

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(7 replies, posted in General Discussion)

Monday starts a new chapter in my fight against CC.  I have 3 tumors on my spine that are eating through the bone.  Tomorrow I start radiation for 10 days.  I have had some pain, but not as bad as the Dr. thought I should have been experiencing, which she said is a good sign.  I'll be sure and keep you posted on how it goes!

Cindy

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(6 replies, posted in General Discussion)

Yup, got those taters planted today, and some flowers too.  Tomorrow, I think I'll plant more flowers and more green onions.  I know some of you folks out there are getting too much rain.  Would you please be so kind as to send it my way to Indiana?  We need it badly!

Cindy

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(6 replies, posted in General Discussion)

Thanks everyone!  I felt real good about the visit yesterday.  I told my husband that I was prepared for what ever news the oncologist had to give me.  If it was bad, I was not going to get mad or sad.  I am not going to let this get me down.  And Pam, today I am planting potatoes in the garden!

Cindy

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(6 replies, posted in General Discussion)

The oncologist gave me good news & bad news today.  The good news is that the tumors on the liver stayed the same in size.  So, I will continue on with the Xeloda/Oxaliplatin.  The bad news is that he has been watching 2 tumors on my spine.  They grew this time, so he wants to zap them with radiation.  I will have an MRI of my spine next Friday, and he will then will consult with 2 other doctors on the treatment plan.  He has started me on "Xgeva" (shot) which is used to treat osteoporosis and bone pain caused by cancer, along with OTC calcium supplements.  I am still praying for that shrinkage!

Cindy

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(9 replies, posted in Good News / What's Working)

I love your good news Tiffany!  I also like that Dr. Javle said that he has seen people with CC live many, many years!  That gives me hope!

Cindy

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(18 replies, posted in General Discussion)

Praying for good news Kris.  I will be checking the "Good News" section for your good news!

Cindy

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(8 replies, posted in General Discussion)

Good morning!
I wanted to let you all know that I have a CT scan scheduled for tomorrow (Friday) morning.  I will immediately follow-up with my oncologist.  All prayers, kind thoughts and well wishes will be accepted.  I hope to be able to post in the "Good News" section tomorrow afternoon.
Thanks so much!

Cindy

Wish I had the answer Kris, but I don't.  I have been married to the same guy for almost 38 years.   Good luck!

Cindy

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(15 replies, posted in General Discussion)

I asked my oncologist months ago, why do people always say "Well, you look good"?  He said because they don't know what else to say, and that he hears this same question all of the time from his patients.  I learned to just smile and answer back, "thank you".   Amen to your venting Kris.  I look at my eyes in the mirror every day too.  And every morning when I open my eyes, I thank God for giving me another day on earth!
Hang in there!

Cindy

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(21 replies, posted in General Discussion)

Kris, I love ice cream too, and this sounds wonderful.  But, must pass on it at this time as it would make my mouth "too tingly".  LOL!

Cindy

Sue and her friends did a great job of organizing this event.  Looking forward to next year.  I plan on being there!

Cindy

Tiffany:
I started taking Irinotecan/Xeloda in December.  The worse side effects I had was diarrhea, so dosage of both were adjusted accordingly, and some peeling of fingertips which I believe was caused by the Xeloda.  @ Sallapa I just started on Oxaliplatin/Xeloda last Friday.  The Oxaliplatin causes the tingling in hands, fingers and feet, also the sensitivity to cold.  How is it working for your sister?
Tiffany, everytime my oncologist switches my chemo treatment, I get printouts from www.chemocare.com and www.uptodate.com
Those websites might be helpful and you can look at them as you feel like it.  Extra prayers being sent to you Tiffany!

Cindy

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(14 replies, posted in Good News / What's Working)

Kate, Malcomb, and Randi - what great news for all of you!  Congratulations and keep on posting good news!

Cindy

Congratulations Dianne!  This is great news!

Cindy

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(15 replies, posted in Members' Cafe)

Congratulations Margaret!  Being a Grandma (or whatever we might be called) is the best ever!

Cindy

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(15 replies, posted in Insurance)

Sallypa, I am starting on Oxaliplatin/Xeloda this Friday.  Now I am worried about the severe side effects you mention your sister experiences.  I will start on Medicare in March, 2013.  So, I guess I will worry about that in a year!

Cindy

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(21 replies, posted in General Discussion)

I received word today from my Oncologist's office that my insurance provider has approved the Oxaliplatin for me.  So, I will be receiving my first treatment this Friday! 

Cindy