Susie: For me one of the hardest parts of being diagnosed was knowing. Most people fear the big C because of what they've heard. I work in a hospital where my unit often gets chemo patients (despite the fact we are down the hall from the oncology ward.) I did time working with cancer patients. I hadn't "heard," I saw first hand how horrible it was. I freaked out long before the doctor could finish telling me I needed an oncologist.
I don't know about you, but I found it was easier to cope if I put nurse me first. I would talk about it clinically as if it wasn't happening to me. But it's worked the best for me as far as coping.
I would love to know if there are reasons why young women are getting this type of cancer more. I wonder if it's at all linked to rising gallbladder issues in that same age group.
To all: I was wondering if anyone else didn't have liver related symptoms. I honestly never jaundiced and my liver tests are absolutely fine. My oncologist believes it was a small bile duct that the cancer started in and despite the moster being the size of an orange, I have never had any issues with my liver. It is, however, around my left adrenal gland, in some of my lymph nodes and my lungs. My doctors believe it is inoperable ONLY because it is already in my lymph system; otherwise, they seemed to think we could possibly resect most of it out (because that doesn't sound like a daunting task at all).
Anyway, I was just wondering if anyone else found that their livers weren't really as big an issue. No stents or drains.