Thank you pamela,lainy,and eli for responding.We went for a second opinion to a medical oncologist and we liked him so much we may switch. This is such a hard decision, but he is much closer to home( right now we drive an hour one way for all treatments and the hospital), and he is much nicer than the oncologist we have now. He had chemo #3 on Wed. and his CA19-9 went down. I think this is good. Does anyone know if this means the tumor is shrinking? We didn't have a chance to ask the doctor because we got the results right before the end of the day because they had to do a second blood draw. I try to be very supportive of whatever he wants. I want him to live, but I want him to enjoy his life also. I watched my Dad suffer for three years with bone cancer. It's so hard to watch him everyday, because I see so much of a repeat of my Dad. I thought I had come to terms with his decision, but there is a part of me that keeps looking for new info,treatments, anything, which he isn't interested in. When he was first diagnosed, they gave him 6 months to maybe a year. At first, I felt like he could die any day because there were so many ups and downs. We were in the hospital alot, he had blood transfusions, infections, and several stent exchanges, and a complication with some internal bleeding. Things have finally levelled off more and it's been at least two months since he's been hospitalized. The pain med regimen has finally been working and no more tears and crying from the intense pain. It's so hard to watch someone suffering in pain and there's not a whole lot you can do. Eli, about your daughter, she is fully aware. I talked with a therapist at the school I work at and wondered the same thing about my son. He is very private and doesn't show much emotion. Unfortunately he was with me at the hospital the day we received the news, which I feel bad about. He remains hopeful that his DAd will be healed . He is more in denial that his Dad will die and doesn't accept it. That's fine. I am very honest with him and told him his Dad could be healed, but more than likely he will probably die. We have shared most info from the doctors, but he doesn't ask a lot of questions. The therapist said that he doesn't want to accept the reality of it, but everyday he sees his Daddy not feeling well. Seeing his Dad crying from the pain has been hard for him. I have arranged for him to go spend times with his friends on weekends to break up some of the time. Kids deal with this in their own way. It may seem unfeeling to us, but it's very scary to them. They think what does this mean for their life and how will their life change. I try to reassure my son all the time I am always here for him.I will pray for you and your family.