1

(12 replies, posted in In Remembrance)

Clare;

Such a nice post from a nice sister.
Thinking of you.

Linda;

I am sorry.  I will be praying for you.

3

(28 replies, posted in General Discussion)

Lainy;

I will be praying for you.  May your love of life and support to others give you strength during this time.  Thank you for always being there for all of us.

Linda;

I am sorry for what  both of you are dealing with.  So many treatments and surgery.   My heart breaks.  He is blessed to have you.  We know it's not easy.
I pray for you and for all others who have lost loved ones.

5

(21 replies, posted in In Remembrance)

Gavin;

Nice post on facebook - so nice of you.

Milena;

I am so sorry to hear about your Mom.  It bothers me that she was so young.  I know you did everything you could to help her.  My Mom passed 2 years ago, but she was not as young.  I had more years to spend time with her.  When she was diagnosed I knew it was not good, but that did not stop me from trying to find a way to help her.  It was not meant to be.  You are a wonderful daughter.  It was a pleasure to read your posts and see how much you loved your Mom.

7

(27 replies, posted in Members' Cafe)

Happy New Year Lainy

Thanks for thinking of me. 
I have never been far away from here.  I read the posts and my heart is with each and every person on the site.

I enjoyed your poem.  The love you shared will carry you for many years. 

Be healthy in the new year and continue to be as beautiful as you are!

8

(15 replies, posted in General Discussion)

Dear Suz,

I am sorry that your sister has passed.  She doesn't have to suffer now.  I am happy your were there for her.

Exoaria;

I am so sorry that your Mom has passed.  You are so young to have to deal with this.  My Mom passed 1 year ago, but I had her for many years.   Not that it makes it better, I wanted her longer, but it was not meant to be.  The death of my Mom really hit me hard.  I hope your faith, your family and this board will help.  It won't be easy, but we are here.  Continue to post.  We cry together and pray together.

10

(11 replies, posted in In Remembrance)

I am so sorry to hear that your son has passed.  Oh, how I wish there was some way to have helped him.  Why isn't there a test prior to the illness becoming so bad?  I  write my condolences so often on this site that it breaks my heart.  I look forward to the day when we know why we had loose so many.  We have no answers and the only thing to do is go on as difficult as that may be.  I pray for you, your family and your son's girlfriend.

Kirstie;

I am so sorry that your Mom has passed at such a young age.  This is very difficult.  Did they do surgery for the gallstones?  Did they see anything on the scans when she was being treated for gallstones?  One can make no sense out of this.  My heart goes out to you.  I share your grief.  I miss my Mom who also passed from this illness.  I spent so much time with her as she lived within walking distance.  After one year of her death, I still think of her many, many times each and every day.  You will do the same.   We have to help each other.  She will watch over you.

My Mom passed one year ago today.  I miss her terribly.  She was such a friend and companion.  I did not want to let her go.  I searched for anwers on this site for help, I sent scans and her medical history to other hospitals for help, but the cancer won.  It was too much for her.  She didn't want to live only for stents, getting chemo, having tests, not being able to eat, going to doctors.  She was so healty prior to the illness it was to accept for her and me.  I had wonderful times with her before the illness.  I thank God for this.  I continue to read all the posts every few days.  I try to send my condolences, but some days I read, and cannot reply because of sadness.   To FormyDad and Marco and to all who have recently posted my heart goes out to you.  I am sorry.   To all dealing with the illness may you stay strong and continue to fight.  You inspire me.

13

(23 replies, posted in Grief Management)

Lynn,
I am here to support you.  Your loved one was taken away.  You will continue to cry and must do so.  Crazy - no - you are a caring person.  I wish I could  give you a hug in person.  My Mom's passing was so difficult for me and will always be.  The illness came on fast and took her fast.  I was lucky to have her as my Mom.  Continue to post and let us know how you are.  It's okay
to cry.

thank you for the wonderful news - i am so happy for Lauren -hugs to all

15

(1 replies, posted in Thought for the Day)

To all my friends- just a note of support and hope.  It's a  sad time for some, but I try to enjoy the blessings and the true meaning of the holiday.  Bless you all.

16

(18 replies, posted in In Remembrance)

Gavin;

Thank you for loving your Dad so much and for helping so many on this board.

Lainy;
You are so strong going to Teddy's fav restaurant.  I am happy you had him in your life and have such wonderful memories.  Hope you do better with your meds.

18

(9 replies, posted in Grief Management)

Laurie;

I am sorry that your Dan has passed.  Another wonderful, young person taken.
My heart aches for you.

Jeff's Mom & Dad;
Happy Thanksgiving to you and your family.  We are praying for you.  What a strong son you have, going to work with the smile.  God bless him.  I am sorry about the treatment not doing the job and will be waiting to hear what the doctor recommends next.  You try so hard and it's so disappointing to deal with this.  Jeff has strength and courage and wonderful parents.
I am not sure how often scans can be done.  And, I don't know how fast the chemo would work if it was going to.
I am happy to send love and support to you.

The dancing sounds wonderful.  Good for you.  My prayers are with you.

Eli;

Thank you for the reply.  For you to take the time when you have to deal with so much yourself is a gift from God.

Marion;
Thank you for the reply.  At the top of the page there are catagories
Home, Newly Diagnosed, Cholangiocarcinoma, Patient Support, etc. 

Can a new sub title be added perhaps under the Cholangiocarcinoma heading- Path others have taken - or something appropriate.  I know there is a lot of information in the questionnaire.  Do outside organizations gather and review any data?  I am wondering if more people will fill out the questionnaire - if they are not looking in the general discussion area they perhaps will not see it.
I have not filled out the questionnaire yet because for some reason it took so long to get a diagnosis for my Mom that I feel I don't have appropiate answers for some of the questions.  Do you know how studies are done for cholangiocarinoma?  Would a doctor fill out a form when a person passes and forward it somewhere for study?  I was also wondering if someone can tell me if there is any sign in a person's body that would indicate or give some clue that there is a problem before it becomes full blown.  My Mom was always having blood work because of the meds she was on.  This did not matter.  It was still too late.  Thank you again for the reply and thank you to the individual who started the questionnaire.

Dear Trying to help

Thank you for putting the questionnaire out there.  I would like to see a catagory under Patient Support where this type of information doesn't get lost amoung the topics.  I don't know how to go about getting this done, or if the board would agree to it.  Other members have posted stats which also could be included  in one of the main topic areas. 
Or perhaps there is an area already on the site which I have not seen.
Thanks to all who are able to respond to this post.

24

(11 replies, posted in General Discussion)

Lindsy;

I am sorry that your mother in law has passed.  I am happy you were there for her every step of the way.  Thank God for people like you - that care so deeply.

25

(4 replies, posted in Grief Management)

Dear MN;
Please continue to write on this site as I feel your honest and thoughful comments are helpful to others.  I wish you and others lived closer to me so I can personally give out hugs.  For now, I send them on line.  It's 9 months since my Mom passed.   I go on, but I am afraid I will never be the same.  I wish I could have a dream about her and be able to log her visits.  My Mom was very active and this illness came on so fast.  Luckily, I had wonderful times with her before her illness for which I am grateful.  We must continue to support each other.  The women who had their husbands taken; the Mom who continues to care for her daughter, etc, etc. 
I am happy your daughter is doing better and that you sent your message.
Take care.