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I am so sorry that your Mom has passed. You are so young to have to deal with this. My Mom passed 1 year ago, but I had her for many years. Not that it makes it better, I wanted her longer, but it was not meant to be. The death of my Mom really hit me hard. I hope your faith, your family and this board will help. It won't be easy, but we are here. Continue to post. We cry together and pray together.
I am so sorry to hear that your son has passed. Oh, how I wish there was some way to have helped him. Why isn't there a test prior to the illness becoming so bad? I write my condolences so often on this site that it breaks my heart. I look forward to the day when we know why we had loose so many. We have no answers and the only thing to do is go on as difficult as that may be. I pray for you, your family and your son's girlfriend.
I am so sorry that your Mom has passed at such a young age. This is very difficult. Did they do surgery for the gallstones? Did they see anything on the scans when she was being treated for gallstones? One can make no sense out of this. My heart goes out to you. I share your grief. I miss my Mom who also passed from this illness. I spent so much time with her as she lived within walking distance. After one year of her death, I still think of her many, many times each and every day. You will do the same. We have to help each other. She will watch over you.
My Mom passed one year ago today. I miss her terribly. She was such a friend and companion. I did not want to let her go. I searched for anwers on this site for help, I sent scans and her medical history to other hospitals for help, but the cancer won. It was too much for her. She didn't want to live only for stents, getting chemo, having tests, not being able to eat, going to doctors. She was so healty prior to the illness it was to accept for her and me. I had wonderful times with her before the illness. I thank God for this. I continue to read all the posts every few days. I try to send my condolences, but some days I read, and cannot reply because of sadness. To FormyDad and Marco and to all who have recently posted my heart goes out to you. I am sorry. To all dealing with the illness may you stay strong and continue to fight. You inspire me.
I am here to support you. Your loved one was taken away. You will continue to cry and must do so. Crazy - no - you are a caring person. I wish I could give you a hug in person. My Mom's passing was so difficult for me and will always be. The illness came on fast and took her fast. I was lucky to have her as my Mom. Continue to post and let us know how you are. It's okay
thank you for the wonderful news - i am so happy for Lauren -hugs to all
To all my friends- just a note of support and hope. It's a sad time for some, but I try to enjoy the blessings and the true meaning of the holiday. Bless you all.
Thank you for loving your Dad so much and for helping so many on this board.
You are so strong going to Teddy's fav restaurant. I am happy you had him in your life and have such wonderful memories. Hope you do better with your meds.
I am sorry that your Dan has passed. Another wonderful, young person taken.
My heart aches for you.
Jeff's Mom & Dad;
Happy Thanksgiving to you and your family. We are praying for you. What a strong son you have, going to work with the smile. God bless him. I am sorry about the treatment not doing the job and will be waiting to hear what the doctor recommends next. You try so hard and it's so disappointing to deal with this. Jeff has strength and courage and wonderful parents.
I am not sure how often scans can be done. And, I don't know how fast the chemo would work if it was going to.
I am happy to send love and support to you.
The dancing sounds wonderful. Good for you. My prayers are with you.
Thank you for the reply. For you to take the time when you have to deal with so much yourself is a gift from God.
Thank you for the reply. At the top of the page there are catagories
Home, Newly Diagnosed, Cholangiocarcinoma, Patient Support, etc.
Can a new sub title be added perhaps under the Cholangiocarcinoma heading- Path others have taken - or something appropriate. I know there is a lot of information in the questionnaire. Do outside organizations gather and review any data? I am wondering if more people will fill out the questionnaire - if they are not looking in the general discussion area they perhaps will not see it.
I have not filled out the questionnaire yet because for some reason it took so long to get a diagnosis for my Mom that I feel I don't have appropiate answers for some of the questions. Do you know how studies are done for cholangiocarinoma? Would a doctor fill out a form when a person passes and forward it somewhere for study? I was also wondering if someone can tell me if there is any sign in a person's body that would indicate or give some clue that there is a problem before it becomes full blown. My Mom was always having blood work because of the meds she was on. This did not matter. It was still too late. Thank you again for the reply and thank you to the individual who started the questionnaire.
Dear Trying to help
Thank you for putting the questionnaire out there. I would like to see a catagory under Patient Support where this type of information doesn't get lost amoung the topics. I don't know how to go about getting this done, or if the board would agree to it. Other members have posted stats which also could be included in one of the main topic areas.
Or perhaps there is an area already on the site which I have not seen.
Thanks to all who are able to respond to this post.
I am sorry that your mother in law has passed. I am happy you were there for her every step of the way. Thank God for people like you - that care so deeply.
Please continue to write on this site as I feel your honest and thoughful comments are helpful to others. I wish you and others lived closer to me so I can personally give out hugs. For now, I send them on line. It's 9 months since my Mom passed. I go on, but I am afraid I will never be the same. I wish I could have a dream about her and be able to log her visits. My Mom was very active and this illness came on so fast. Luckily, I had wonderful times with her before her illness for which I am grateful. We must continue to support each other. The women who had their husbands taken; the Mom who continues to care for her daughter, etc, etc.
I am happy your daughter is doing better and that you sent your message.
I am happy Lauren is doing better after such a scary experience. Please keep the good news coming.
Thank you for all you do and I hope God continues to bless you.
I am so sorry that your Mom has passed. My Mom passed back in February; I miss her. I read your posts, your poem, the obituary. You were strong to be able to read your poem at the service. Your Mom had so much to deal with during her illness. She was in denial. I think she handled the situation in her own way. I am happy you were there for her.
I am very sorry that your Mom has passed. She was very young. I know you loved her and did your best to help her. My Mom passed in February. We feel your pain. My heart goes out to you.
I am so sorry for you. Another young person taken by this horrible illness.
There are many of who are angry and confused. My Mom passed back in Feb. I miss her and think of her everywhere I go. I am upset that the illness was all of a sudden there (inside of her). Where did it come from? Six months prior she was healthy. You are a wonderful daughter and must try to take one day at a time. It's not easy, but we all suffer and try to help each other.
I am so sorry about your Mom. My Mom passed in Feb. this year and I will never get over it. The doctor's use to tell my Mom she was healthy. She was until 6 months before she passed. I had wonderful times with her. She loved to dance. Your Mom was so young. I am sorry you didn't get to go on the trip with her, but the fact that you were thinking of taking her tells us what a wonderful person you are.
My Mom was around your Dad's age when she passed from this horrible illness.
She started with mimimal stomach pain, high liver numbers, jaundice. After way too many tests, lots of stents, talk of a possible operation, talk of no spread of cancer, she lasted 6 months. After a stent was placed the jaundice cleared up and chemo was scheduled. She went downhill fast after just one chemo treatment. I hated when she would speak at the end and I could not understand what she was saying. Your Dad sounds like a strong person. I am happy to support you and your Mom with lots of love. I don't know where the illness comes from and had many unanswered questions. I am happy your family was involved with the church for so long. This is part of what made you all such loving, caring people.
I am sorry about your Mom. I am happy she can now rest and not deal with rude people. My Mom passed in February. I miss her.
Posts found: 1 to 25 of 79