Hi everyone. On the positive side, 4.4 years cancer free and most recent CT scans still confirm this. However, on the negative side, I have another internal/external biliary drain installed and will have a PICC line put in tomorrow to go on IV antibiotics while we figure out what to do from here.
I have had 3 different occurrences of a stricture/astimosis over the past 15 months, one Feb. last year thru May, tube pulled and lasted until end of September. September through December same as first time and it lasted until last Friday the 3rd of April when I got the drain installed. In each of the first 2 occurrences, we did a balloon angioplasty type procedure to stretch the bile duct while installing a larger tube size each time and after 3 sessions, reduced the tube size over a 4-6 week period. We did capping trials and everything was working so the drain was pulled. Lasted about 4 months the first time, a little over 3 months this time.
Anyone have similar experiences with this? I have no right lobe of the liver, the new bile duct connection is in the center of my chest and the remaining left lobe grew to my left side. I'm hoping to hear from Dr. Jarnagin from MSKCC tomorrow but we'll probably be talking to numerous people to get options and ideas as to what can be done at this point. My local interventional radiologist is basically saying there isn't any more he can do until we have a plan of attack from other professionals as he has tried all he knows he can try, and I don't disagree with him. Stents? Long term tube with balloon? Please let me know your thoughts and experiences, I look forward to sharing them with you all!