SENSITIVE: I have not posted much but have been lurking for months and appreciate so much everyone's support. My father was finally diagnosed with CC in Feb 2012 after having been diagnosed with liver cancer of unknown primary in August 2011.

Since last week my father has taken a turn---was just sleeping all the time and not eating and jerking a lot so was taken to the ED by my step-mother. He was admitted to an ICU for antibiotics (initially thought sepsis) and IV fluids but he has not improved and I think he is making his final journey. Over the last 5 days he has been severely agitated (constantly trying to climb out of the bed), hallucinating and also doing the hand movements that others have described here. We decided to admit him to an inpatient hospice facility 3 days ago and since that time he has been getting morphine for pain (although he never has complained of pain) and seroquel for the agitation. He is pretty much sleeping all the time and will intermittently wake up and be agitated all over again. I am so heartbroken to see him so debilitated and am praying that his journey will end soon so that he does not continue to suffer with the agitation, it just seems so disturbing to him.

Just needed to vent and wanted to see if other people went through the same thing with their loved ones. I was a little upset, one of the hospice nurse's said to us that this was not the end because his vitals were too stable and he wasn't thin enough but then another said that this is terminal agitation and his journey is coming to an end. I am so confused and only want the best for him and really want to take him home but am scared he is not going to get out of this in patient facility.

Thanks again for the support, I know I am rambling. :-)


(7 replies, posted in Introductions!)

Thank you all so much for the support.

Dad took a turn this last week and we had to place him in inpatient hospice. This is the hardest thing I have ever had to go through--he is so agitated, constantly wanting to get out of bed, hallucinating and I just wish he could be at peace.


(7 replies, posted in Introductions!)

My father was diagnosed with liver cancer of unknown primary in September 2011 and had 6 rounds of oxaliplatin/gemcitabine with no response. At that point a second biopsy was done and sent for Cancer ID testing which came back as 96% probability of cholangiocarcinoma. We have been told that my father's liver masses are inoperable and that his only option is palliative chemotherapy with Xeloda but I just can't believe in my heart that there is nothing else that can be done. My Father is so discouraged that he has no energy to seek a second opinion but I am contacting some surgeons that are known for CCA and will hope for the best.

Thanks for all the encouraging stories, it really does help to know that I am not alone in this struggle.

Thank you Lainy!! I have been spending a lot of time lurking on the boards and have heard such positive stories--makes me a feel a lot better. I will get in touch with Cathy, thanks again.

My father has been diagnosed with Stage 4 metastatic cholangiocarcinoma with mets to the liver and I would like to contact Dr. Chapman by email to get an opinion on potential for surgical options but cannot find an email anywhere on the internet, does anyone have an email for Dr. Chapman?

Thank you in advance, this discussion board has given me renewed hope about my father's prognosis.