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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
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Posts found: 1 to 25 of 31
It's been 7 weeks now and today was really rough! The grief is sneaky! It was all over me! I feel guilty about not doing enough for my husband. How do I raise a son without a father figure in his life? Just all kinds of stuff. I still get thoughts of his last days and it wroughts me with agony!!! I'm sorry for being this way but I appreciate you all letting me vent. I hate what this disease does to folks and the ones left behind..
I'm so sorry to hear this. You are in our thoughts and prayers. My email is email@example.com if you want to write to me. I know what you're going through. There's others too that will help. God bless you and your sons!
Dennis passed away yesterday morning. He went peaceful. My two older children and I prayed over him and saw him take his last breath at home. You all taught me about the what ifs and all I could do for him. I thank you for that. In his obituary I made a point about contributtions made to this website. Thank you all and God Bless!!
I wish you all the best! You're so brave and fiesty. I've had to push to get answers We needed. Keep pushing! !! Much love and support to you Kris!
Dennis is nonresponsive but I still talk to him. His nurse tech Chaplin and social worker are God sends. He seems to be in no pain which I am grateful for
It was intense for him. It's been emotional for the children and I
We have been married 24 years and three children-Lauren 24-Dennis. Kyle. 19 and Trevor 10. God bless you-all!! If it weren't for this site I would of not had the knowledge to be able to see what was going on and get him help when needed. Thank you so much!
Thanks youre so kind...hes home tonite and resting. I got sad today cause I cant converse with him. The pain meds are probably the reason. I feel like Im slowly losing him. I would like to talk to him again. I made him smile though. A nurse I think will be here tomorrow. Hospice has been very good so far. Paitient and compassionate!
Again thank you!
Im so sorry to hear Simon. Just have wonderful quality time with Moira. Just said a prayer for you two. Just keep everything One Day at a Time. There will always be hope. Please take care
Thank you Lainy!! The email was helpful. You're such a good hearted person )
Things aren't good. Catscan revealed that the tumors have grown together and Dennis' liver is shutting down. Hospice will be involved tomorrow. I had this ache in my gut and seen things that prompted me to take him to the hospital. He's fought this and the courage and stamina to fight this is admirable. I will pray for everyone fighting this! Thank you all for being there. I'm on Facebook and email is firstname.lastname@example.org. I'll keep you posted and can help support if you would like me to
God Bless You
Talked to the oncologist. He's still constipated even though he had three Colace pills an enema and a powdered drink laxative. They gonna try Reglan and hoping that helps. They may get a gastronologist to check on his condition. I'm also notice his swallowing is a little difficult when he takes his meds. He coughs like he's trying to choke. He's sleeping more. Doses off unexpectedly. What should I expect next? Can anyone relate? Everyone s differentwith this. I know there's a time where God's gonna take him. This is a monster!! I hate this..I absolutely hate this!!!
Dennis was admitted for vomiting nausea constipation and pain. He has meds but the vomiting was so bad that I had to bring him in. He was vomiting mucus and green bile. Can anyone relate to the color?? Thanks for being there..
My condolences to the family. So sad to hear. Prayers to them!!
I totally get where you're coming from. That kinda news just jolts you. I remember driving home in tears. Tears are good. My husband is quite depressed. I try to have friends and family over to keep his spirits up. You're a great caregiver to mom. I will say a prayer.Hang in there and talk to you're friends too. They'll bee there for you!!
I'm also sorry you're going through this. I will keep you and your family in my prayers!!
I'm so sorry for your loss. My condolences to you and yours. Prayers going out to you.
Thanks Lainy,Kris and Gavin. It does help emotionally. I can't imagine just sitting around just waiting. That's just not acceptable to Dennis. Gotta love his stubborn personality. That's.one of his best traits. Lol!! Gods still has us to lean on each other. Very grateful! ! Hang in there! !! Muaah! !
Well we seen another oncologist yesterday and Dennis has decided to do Xeloda two weeks on and one week off. We both know that it may not work but you gotta try something right?? This is very tough thing to deal with. I'm so thankful for you on this.site. I pray for you all and I ask God to direct us in our journey. I have taken time off work to care for him and to be there for my kids. Lots of friends and family have been around visiting which is awesome! We'll see where this takes us.
Take care and bless all of you!
I'm so sorry for your loss...my truest condolences to you and your family! Will pray for all of you!!!
I would get him to the er. Dehydration is nothing to play with. I sure hope he gets better soon.
Love and prayers to you!
Everyday has been different. One day he's doing okay,alert,eating somewhat okay. Then the next he's weak and can't eat. He has a second opinion appt on Tuesday. If it was today, he wouldn't of made it. I'm sorry about this but I just have to let this out of my head and I.know you all understand. I still pray for him and all of you. Be still my nervesand achy heart! !!
My thoughts and prayers go you and Lauren. I have a Lauren too. She's 24. I had to chime in because getting news that overwhelms you is tough. Please hang in there.
God Bless you and Lauren!!
My email is email@example.com if you need to reach me.
Thank you for you're replies. I will call the onc office about care for him at home. I'll make sure he gets the best of care. He's so upset about this. Can't blame him!! I don't think he has much strength. He's getting weaker. You all are so informative. Don't know what I.would do without you all!!
Hi all...hope eveyone is well. We went to the onc thursday and we were told there was nothing else that could be done. This absolutely knocked us to our knees!!!! We have another cancer center looking at his case. Dennis has gotten weaker but able to get up to use the restroom. Hes not eating much, snacking here and there. His legs and feet are swelling and speech is slurring. This seems to be his illness progressing am I correct? The onc said that from the latest scan and checking him out that it is progressing. What should I expect next.? Im trying to get him to eat,shakes etc. to help him. You all are the ones I trust in this. Thank you and God bless!!
Thanks for your help. His pain seemed really bad and constant. Hes on a pain pump right now. Then theyll determine what's to do with oral meds.I will keep you posted. Again thanks..
Posts found: 1 to 25 of 31