hi, as most of you I don't even know where to start. My healthy, young (70 but one of those you'd think was 60) vibrant mom was diagnosed with cc after a short sickness, jaundice, weight loss in January/February.
We had a story similar to Jessica, who just posted, with my moms surgeon. We thought we were going in to hear about the surgery details knowing very little about cc at the time. He dropped the bomb right away saying surgery is a small possibility, but not sure he could e en do it, and without it she has maybe 2 years. Omg, sick and devastated!! He was so abrupt and seemed so hesitant to encourage surgery, yet said " your healthy and vibrant you might want to try since it's your only real hope."
Side note, I've dealt with surgeons and doctors my 12 year old daughters entire life, she has HLHS and has had 3 open heart surgeries, so I'm nit naive to bedside manner, etc. I get it who cares about their bedside manner if they are excellent surgeons but come on!!!
Ok...so after that day we went on to get 3 other opinions here in the San Francisco bay area, they basically all said the same thing BUT with much more desire, or hope maybe that they could do the surgery successfully. They all agreed our original surgeon ( who is the only one on mom's insurance) is excellent though. So looks like all our hope is on this fait full date of April 10th, as no one can know if the survey is possible until they are actually in there.
So my mom is going into this surgery with more hope, positivity and strength you can imagine, she refuses to give up on the wonderful life she has and her 6 grandkids who adore her!! it's just SO scary that everything depends on this. The surgeon said if we see him within an hour after surgery starts it's not
A good sign.
All I and hundreds of our friends and family are doing is praying to God every chance we get they can perform the surgery ( knowing it won't be easy after) but worth everything.
We are all taking a family trip to Catalina Island the 5-8th, which was planned for her 70 th birthday in December. After that she heads to surgery. I'm so scared, I dream about it every night. I'm very thankful for this site and all of you sharing your story's. Your amazing and I appreciate you reading this.