I've been reading through some of these great messages the last few weeks to try to get some idea of CC and what to expect.
My mother (68) has just been diagnosed with it, and they tell us the tumour is just a the bile duct bifurcation, mostly in the right bile duct. they have done 2 ercps, multiple ct scans and a few MRI scans for good measure. Still they can only say with very guarded confidence that they don't think it has spread.
She is being treated by the team at Johns Hopkins medical centre, specifically under the care of Dr. Michael Choti.
She is due to have an operation on Wednesday to resect her bile duct, gall bladder and two thirds of her liver.
First and foremost I was hoping to get an idea from others on this group what I can expect in terms of post surgery. I have been told she will be in hospital approx a week. Is this right? Will she be in great pain, will she be out of it most of the time? Will she be able to sit up in bed after a few days? What advice can you give me about things to have ready for her to make things more comfortable (for example I am getting a bunch of movies loaded onto an iPad for her to watch, is that realistic?). And longer term, how long, assuming all goes well and they are able to do the surgery, until she is on her feet? Is she likely to need a nurse to look after her at home?
Also, has anybody here had any experience of the johns Hopkins team? I think they are supposed to be very good and I got a very positive impression from them. We did go for a second opinion at penn medical centre in philadelphia, but they seemed much more pessimistic in general, about success rates of the surgery, and also about my mothers case in particular. Even though they were looking at the same test and scan results as the other doctors, they seemed to see something different.
Apologies for such a long winded post. And I also apologise if I am asking for info that already appears in another part of the website or message boards. Happy to be directed elsewhere!