Hello to all,
I am sorry and glad to have found an outlet for this very insidious cancer that has struck our family as it has so many others. My husband started just itching like crazy December 12, 2011 and what a trip it has been to this point. I did not leave a moment to waste as he had a left radical nephrectomy in 2004 from a renal cell carcinoma that was found quite by fluke. Yearly CT scans and chest xrays have always been clear. He was due for flow up of that again in January. Two days after the itching started I noticed he was getting jaundice. We were on it immediately. Numerous tests, CTs, MRIs, MRCP, Lab work with a total bili of 18.6 right before surgery, an ERCP 3 times with the placement and replacement of a L duct stent, PTC, and finally a hard right lobe resection leaving only one third of his liver done January 25. We lost no time!! He has been through alot in a very short period of time, and I have to say we had a great surgeon who took the risk to go in after it. The diagnosis was finally intrahepatic cc, stage IV. During surgery, frozen section margins were clear, however on final pathology there was a postitve margin as originally there was only a 1mm margin from tumor to clear liver cells. They also found a positive lymph node imbedded in the liver. It was a mass forming type that was extensive. It had totally blocked the bile duct on the right side of his liver and almost occulded the left. This is the second primary in just 7 years. He is currently on chemoradiation, xeloda and radiation for 5 1/2 weeks. He starting week 4. He will have a few weeks off then 4 months of gemzar IV 3 weeks on and one off.
He has been very strong. We have 5 children, 25, 22, 17, 14, and 12. I have read many posts that have been left here and we are not alone. There is much courage and strength from all that have been effected. The medical oncolgist says the likelyhood of this returning is quite high. I thank God for everyday I have with my husband, and will never show him how scared I really am. I am a nurse and understand the severity of all this and also the hope that I hang on to.
Thanks for the introduction, and the opportunity to share our story, along with the rest. Any thoughts are appreciated.....