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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 5
Peggy just read about your John, I'm am praying for you to find peace and a sense of comfort. Honor his memory by being strong and living your life knowing that he is at peace.
This is Vicky, thanks for all the info. Sorry for taking so long to get back but things with mom and dad are keeping me busy. On top of that my husband has been dx with skin cancer.
Marions to answer your question, mom's last scan was June 2012 it show no new growth and was declared stable by the Dr.'s. I ended up in er with mom but they really couldn't tell us anything except that her blood work was OK for a cancer patient. I requested an amonia level which was normal. Dr. Shu at Duke thinks she has develop a brain toxicity to cisplatin. He has put her on a maintaince dose of gemsibine(forgive the spelling). This scares us due to the fact that gem only may let the cancer grow. Does anyone know of anyone on gem along with no new cancer development? I look forward to your comments. I will try to get back to you sooner this time.
Hello, my mom is having problems with her feet and hands swelling, she also is dizzy. This is her tenth month, her scans are stable. She is having severe chemo brain. Does anyone know of anything I can look for that might be causing all these extra systems or are they normal. I want to help her, I just don't know how.
Thanks to all of you for making me feel welcome. Mom is doing OK, she stays very weak. W know she is doing OK because of all the prayers, please keep praying. My sister and I are still in shock, we are holding out for a miracle. Eli mom takes neulasta after each treatment. It is both her white blood counts and her platelets that fall between her treatments. Pamela I will get mom some Gatorade and have her try that to bring her counts up. Again thank you all I will be praying for everyone. It's great talking to others who know what you feel like. I feel like our family was playing life on our own little baseball field, then one morning we woke up still playing our baseball game but some how the baseball field got changed to a football field. We're still trying to play baseball on the football field. We're confused wondering how this could happen and we're still trying to figure out what to do about the whole thing.
Hello, I'm Vicky Jones and my mother has CC. She was Dx Sept. 2011. My sister and I have been researching this horrible disease. The more we read the more discouraged we get. We need help with info and of course as with all CC patients our mom needs a miracle. Mom's Dr. Is Dr. Hsu at Duke University. She is currently taking Gym/Cysp, thanks to the Lord above her last scans showed the cancer as stable. Her blood counts have been low and she has had to miss some treatments. Any sugestions on what we can do to help build her blood levels will be greatly appreciated. We will be praying for all, please pray for mom.
Posts found: 5
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