Was able to get the biopsy moved up and it did confirm cancer in the shoulder bone.  I have a cryotherapy procedure scheduled for 7/23 to take care of this.  Then, back to the quarterly scans to try to catch things as early as possible if and when they show up.  This is my 3rd recurrence and I feel extremely fortunate that I have been able to come through these and still maintain a relatively normal life once completing an ablation procedure or chemo.  My thoughts and prayers are with everyone who hasn't been as lucky.

Thanks for the reply Marion.  I did some searching before posting and just wasn't able to find anything conclusive.  Most posts I read related to bones seemed to state or hint that CC was also elsewhere.

They scheduled the biopsy for 7/21 but I will talk with the oncologist when he returns Monday to have that moved up.  I don't want to wait that long.

Hi all,
I had a 3rd recurrence of CC in January of this year.  A couple small masses in the liver, couple small spots in left lung and a mass on a lymph node.  I went on chemo, gemzar and oxy for four months.  After 2 months, on chemo a PET scan showed no signs of cancer anywhere.  Great news and fairly shocking as I know this is not normally the result.  I continued with the chemo for the planned 4 months.  Last week I had another PET scan and received the results yesterday.  The good news is there is still no signs of cancer in my liver, lungs or lymph nodes.  The potential bad news is there is an area in the bones of my shoulder that lit up and looks like cancer.  I am working to get a biopsy scheduled for confirmaiton. 

My oncologist said he would be surprised to see it show up in the shoulder bone when it was cleaned up everywhere else.  Has anyone else seen a recurrence show up only in the bones? 

I may be jumping to conclusions and maybe it isn't cancer but it looks very much like it is.

Thanks

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Thanks Lainy.  Received a call from ONC late yesterday afternoon.  He said the biopsy confirmed the mass I had burnt was CC as we had expected.  No plans for further treatments as far as chemo or radiation.  We will continue 3 month scans to stay on top of any future returns and handle them with microwave ablation if it returns as a single mass like this last one and if it returns in multiple spots then we would look at other options at that time.  Or if it never returns we won't have to do anything(never hurts to hope). 

Thanks again for the replies and positive thoughts from everyone.

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Had microwave ablation on 9/18.  Went well from what I can tell.  Radiologist who performed the procedure felt good about how things went.  Recovery for this process has been pretty easy, just some crampinng around the burn area along with some tenderness and some fatigue from the pain meds.  Currently awaiting results of the biopsy and consultation with ONC to determine next steps.

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Thank you both for the replies.  Great to have the positive thoughts and words of wisdom.

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Hi all, Rod here.  First off, thoughts and prayers to all who have been affected or impacted by CC.  I am a 46 year old, 19 month survivor of CC.  I had CC of the intrahepatic bile duct.  Was very fortunate to have surgery which took about 65% of my liver, my gallbladder, a couple of affected lymph nodes and the addition of a stent.  I did 3 months of Gemzar chemo and other than an absess and a couple infections after the surgery I have done very well.  I liked to be active before my diagnosis and I have been able to return to all my normal activities.  I was even able to race a sprint car again a couple weeks ago for the first time since my diagnosis.

I have a fantastic surgeon, Dr. Chaudhry and a very positive and supportive ONC in Dr. Heddinger.  Both through Iowa Methodist in Des Moines, IA.     

Last week after a quarterly CT scan I found out I have another small mass in the liver.  About 1cm in the left lobe not near any bile ducts and the plan is to use radiofrequency (RF) thermal ablation to remove this tumor on the 18th of this month.

I haven't seen much on here about the radiofrequency (RF) thermal ablation process and was wondering if others have experience with this procedure?