1

(8 replies, posted in Introductions!)

Thanks Lainy.  Received a call from ONC late yesterday afternoon.  He said the biopsy confirmed the mass I had burnt was CC as we had expected.  No plans for further treatments as far as chemo or radiation.  We will continue 3 month scans to stay on top of any future returns and handle them with microwave ablation if it returns as a single mass like this last one and if it returns in multiple spots then we would look at other options at that time.  Or if it never returns we won't have to do anything(never hurts to hope). 

Thanks again for the replies and positive thoughts from everyone.

2

(8 replies, posted in Introductions!)

Had microwave ablation on 9/18.  Went well from what I can tell.  Radiologist who performed the procedure felt good about how things went.  Recovery for this process has been pretty easy, just some crampinng around the burn area along with some tenderness and some fatigue from the pain meds.  Currently awaiting results of the biopsy and consultation with ONC to determine next steps.

3

(8 replies, posted in Introductions!)

Thank you both for the replies.  Great to have the positive thoughts and words of wisdom.

4

(8 replies, posted in Introductions!)

Hi all, Rod here.  First off, thoughts and prayers to all who have been affected or impacted by CC.  I am a 46 year old, 19 month survivor of CC.  I had CC of the intrahepatic bile duct.  Was very fortunate to have surgery which took about 65% of my liver, my gallbladder, a couple of affected lymph nodes and the addition of a stent.  I did 3 months of Gemzar chemo and other than an absess and a couple infections after the surgery I have done very well.  I liked to be active before my diagnosis and I have been able to return to all my normal activities.  I was even able to race a sprint car again a couple weeks ago for the first time since my diagnosis.

I have a fantastic surgeon, Dr. Chaudhry and a very positive and supportive ONC in Dr. Heddinger.  Both through Iowa Methodist in Des Moines, IA.     

Last week after a quarterly CT scan I found out I have another small mass in the liver.  About 1cm in the left lobe not near any bile ducts and the plan is to use radiofrequency (RF) thermal ablation to remove this tumor on the 18th of this month.

I haven't seen much on here about the radiofrequency (RF) thermal ablation process and was wondering if others have experience with this procedure?