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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 9
Thanks! My mum's ancestors came over from Scotland in the late 1700's. It's a connected world for sure!
Thanks Marion! You folks are terrific.
Thanks Marion. I don't really think it was the source of my cancer as cancer runs deep and wide in my family. I just made the mental connection between CC and liver disorder and was curious.
It will be intersting to see if anyone else made a similar connection.
This might be a really dumb question, but I was thinking about my bought of CC last year and remembered that I took Lamisil a year or so before the cancer. I took it for about 3 months. I've done some internet searching and found nothing.
It occurred to me only because Lamisil can cause liver damage if not monitored/administered properly. I was wondering if anyone here had taken it before CC. You never know if you don't think outside the box!
Thanks for the kind words. It has been an interesting journey and God surely was watching over us throughout the entire trip. I heard so many negative things when I was first diagnosed last year, it was pretty depressing. But, some positive folks, faith and good health care showed me it could be better.
I apologize for not being more active here over the last year, but we're pretty private people and we have a wonderful support system with family, friends, workplace and church. I learned so much about CC here, it was very helpful when I started out on my journey. This is a wonderful place. Keep up the good work!
Wow, congrats! Six years sure sounds like a wonderful number to me. Best wishes for continued good health.
Blood work and CT scan all clear and normal. CA19-9 is a 7. Best of all, I feel great and very healthy these days.
I had surgery 13 months ago, chemo for 12 weeks (Xeloda & Gemzar) and radiation, with Xeloda, for 6 weeks. Side effects, mostly acid reflux from the radiation, were gone a couple weeks after treatments ended.
I can't say enough about the great surgery/surgeon at Johns Hopkins and my local oncologists who did the follow up treatments. I was blessed by two really great teams of providers.
There is hope with this cancer. It is so wonderful to read everyone else's stories. Very encouraging! Blessings and good health to all!
My surgeon was Dr. John Cameron at Johns Hopkins Hospital in Baltimore, Maryland. Excellent results with my Whipple. I was out of the hospital in 6 days and on my way home to NY after 4 more days of rest in a hotel. No drains, tubes or other stuff to deal with.
I'm undergoing chemo and radiation here at home in Rochester, NY through the Lipson Cancer Center at Rochester General Hospital.
Medical oncologist - John Phelan, MD
Radiation Oncologist - Meri Atanas, MD
Great care by very caring people.
I'm into it early with radiation 5 days a week for 5.5 weeks. Also taking 1500 mg of Xeloda twice a day. After the first 2 weeks, I'm doing fine except for fatigue. Should be interesting to see how things progress each coming week. My prayers are with you folks experiencing some of the side effects. I'm sure things will change for me as the treatments accumulate.
Posts found: 9
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