Hi all! I have been to this site so many times and I have learned so much from all the information here. It is wonderful that this site exists, as it is great help to clueless people like myself.
So here's the rundown: My 54-year old mom was diagnosed in April, 2012. Like many here, she had slight abdominal discomfort..... fast forward to two weeks later, we had our diagnosis of stage 4 gallbladder cancer/ cholangiocarcinoma (which came first for sure, who knows). The surgeon found that there were tumors in her gallbladder, blocking her bile duct and mets across the surface of her liver. No surgery, chemo forever, thats it. It felt, and still feels, like the world crashed down among us all. She had a metal stent put in, and thank God we have had no problems with it since. We were somehow able to get her bili levels down enough to be get into a clinical trial at University of Chicago. She had her first treatment of Folfirinox this past weekend. It has taken quite a number on her and it is extremely hard to see my strong mom being thrown down so hard. I hate it.
I refuse to accept that this will be her life from now on.... maybe I am naive, but if I do not believe in her, I cannot expect anyone else to either. I have scoured all your messages here and have sent her records to several doctors mentioned on this site.... no other treatment options have been suggested for her. I have researched like crazy and have her taking numerous supplements, powders, smoothies, juices, anything to get some nutrition in her and help her body stay strong when all it wants to do is throw up everything I put in her. We are praying as a family, seeing priests, herbalogists and I am taking her to an Amish healer I read about. I am so desperate for anything that could help her.
Any suggestions are appreciated. Any recommendations on diet, supplements, care providers in Chicago, etc. are welcome. Knowledge is power and I want to do everything I can for the woman that has done so much for our family.
Thank you for keeping this site active for all the people out there who so desperately need it. Those who are fighting this terrible disease and those of you who unconditionally love and take care of them... you are all in my prayers.