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Lainy, I wish it was possible to switch his doctor to the other ONC but she's a fill in and she's from India. Very smart lady. Boy do I wish she was her to stay cuz we would diffently switch. She's returns to India in June.:(
That was a very cute story you had. Made me laugh.
Thanks, much needed.
Michele

Jason, sorry u had to find us this way. Everyone here is wonderful. My husband was diagnosed with stage 4 cc in August of 2009.  He was a candidate for surgery. He had a recurrence of his cc in June of 2012. He's still fighting. He too was on the same cocktail of chemo as you. It worked really well. He's now on xeloda and gemzar. He leads a normal life, works and his normal activities. Some days he's get tired but he's a fighter.
We have 2 kids also, a little older than yours but our kids I believe is what keeps him fighting.
Be stronger than the cc. Prayers being sent your way for you and your family.
You found a great place to come for support.

Hugs,
Michele

Update on tumor markers. My husbands CA 19-9 went up again. It is now 353. They also checked another tumor marker called CEA and that's at 10.9. The previous checking on that was normal a few months ago. The doctor now has scheduled a ct scan for Thursday and we will get the results on that on tHe 10th.
Praying everything is fine. It sucks that they make you wait so long for the results on scans . I wish they would just call and give the results over the phone.
Other wise he looks good and said he isn't feeling bad. Which I think is good.
Will update once scan results come in.

We have had a second opinion and it seems they are all pretty well much on the same page as of what direction to take. If the tumor marker is up again on monday then the doctor said she would order a ct scan to see if there is something active. From what I understand if its just caused from the chemo it should bounce up and down. He's isn't doing that. So from there I guess if he needs a ct and it shows anything then it will get switched again, maybe to flofox. Has anyone had much success with this type?
Thank you everyone for being here for support. I have thought about going to the doctor for help with nerves but afraid of getting addicted to pils. So I try to deal with it in my own way. Sometimes it's a lot of crying but I manage.

Ultra sound showed no fluid it belly but they said they seen dilation in one of the biliary ducts. Now Friday he goes in for a ct scan just to check things out. All liver levels and bili levels are still normal. Only bad thing is he gets the ct scan and they make you wait a whole week before he gets results. Can't stand that. So scan on 15 results the 22nd.

Doctors office just called, no results yet from ultra sound but the Ca19-9 results were in and it went up again. It was 72 then 98 now 145. I don't know what to make of it. Suppose to see the doc Friday. Praying its not bad news.

My husband had a liver resection in 2009 and in 2012 he had scar tissue build up where the surgery had been performed which they called conclusions so his doctors did what they called a ballooning which was performed a few times. It was to stretch it ducts back open and once they were comfortable with how the stretching was going they stuck in stents. But while all this was going on they had a tube in the liver for external drainage because he was turning yellow. It seems to have worked so far. But he also had a reoccurrence of his cancer then too. He's been doing chemo since then. Don't know if any of this helped.
I've known another person who has had similar problem too.

Thinking of you. Prayers sent your way

Pam...My husband had Dr. Wellings for his liver surgery back in 2009. He was really good with us. We also seen him a few times this year but once he told us about the lesion on the liver and the swollen lymph nodes this past June he told us there was nothing more he couod do and for my husband to have chemo and said that it could be done closer to home. The U of M is 4 1/2 hours away other wise my husband would have had Dr. Z just like your daughter. He went through chemo in 2009 after his surgery and that was just in case there were cancer cells left behind. The he took Gemzar with the Xeloda pills and he did really well. This time around is kicking his butt and he's only had 2 treatments so far.

The sugar did seem to help some. He was happy for the advice on that.

Today was the worst day so far. He had to take his antinausa pills were the time before when he had chemo he never had to take them.

Days like this his postivity is low. He starts telling me about the what ifs and what I am suppose to do. It's so hard to set there and listen to him tell me things like this but also I know I need to listen. I try to stay postitive for him but it gets hard.

Thank YOu everyone

Marion...thanks for the advice. He just woke up again with them. I will suggest this to him.
Thanks
shel