1

(16 replies, posted in Introductions!)

Send your scans/reports to Dr. Chapmen at Barnes-Jewish Hospital in St. Louis. Also you can search for him on this website and see what other people have to say about him. He seems to be a great Doctor for Liver transplants.

Sorry to hear about your husband and I wish him and your family the best.

Thanks Gavin

3

(6 replies, posted in General Discussion)

Thanks Lainy & Marions

4

(6 replies, posted in General Discussion)

Thanks for your reply Marions. The recovery is coming along, no major issues at this point. The surgeon and my oncologists will get together to determione which chemo(s) will used going forward.

5

(6 replies, posted in General Discussion)

History - Had a whipple 03/12 - dsital CC. Did 5 months Gem/Cis. 05/12 - 09/12. 8 months of clear scans (10/12 - 06/13) Had multiplke type of scans during these 8 months (PET/CT and MRI) Cannot do contrast due to renal inefficiency) Has a PET?CT scan 0n 06/21/13 which showed one small spot in upper right lobe. Went in to have a liver resection on 07/24/13 and my surgeon stated that i had 6 spots. He culd not do resections but did RFA's on all six.

I don't understand how this type of scan can miss 5 out 6 spots. My surgeon states he sees it all the time. If the tumor does not metabolise with the sugar then it won't be picked up.

Has anybody else had this problem?

Thanks,

Jim

6

(8 replies, posted in Members' Cafe)

Lainy,

Best of luck to you and get better. I'm sure every one on this board misses you. I've had Crohn's since 1972 so I know what you're going thru. Eat right and stress control help keep the flare ups and pain away.

Jim

7

(7 replies, posted in Chemotherapy)

Thanks everybody for their comments.

Jim

8

(7 replies, posted in Chemotherapy)

I have really bad neuropathy in my hands and feet from Gemzar/Cisplatin. I finished 6 cycles back on 09/15/12. My Dr. has prescribed Neurontin 100mg to help with the neuropathy. Has anybody taken this and how did it effect you? Any comments would be appreciated.

Thanks,

Jim

Rachael,

I had a Whipple on 03/26/12 at Sylvester Cancer Ctr/Jackson Hospital in Miami. My surgery took 8.5 hours and I was in the hospital 10 days after surgery. Ask your doctor for a Airlife breathing tube so you can get your lungs in the best shape for surgery. Also walk as soon and often after surgery. Lainy is correct that everybody heals at a different rate.  I have very fortunate and I have had no problems from the whipple. 


Best of luck to you.

Jim

10

(21 replies, posted in General Discussion)

Pak001 - You may want to look into Nanoknife surgery. It was developed for small tunors that were deemed unoperable. It's Electroproton Ablation. My cancer came back at the surgery site and it's to close to the portis/hepatic vein for conventional surgery so I am meeting with a radiologist next month to discuss the Nanoknife.

11

(21 replies, posted in General Discussion)

I have finished 5 cycles of Gemzar and Cisplatin. 2 weeks on and 1 week off. Getting ready to start #6. Loss my hair - no big deal,  have been sick and have not lost weight. The biggest side effects I have are with my blood. Low WBC, RBC and platelets. I have add several shots of Neulasta and 3 Pack Red Blood Cells transfusions. Other than the above, my Doc says I'm doing OK.

Good Luck going forward

Thanks Lainy and Eli for your replies.

I had whipple surgery back on 03/26/12 for Bile Duct Cancer. I just had a PET Scan and a spot lit up by the porta hepatis vein. My surgeon states that he can not do conventional surgery but I am a candidate for Nanoknife surgery. Has anybody had the Nanoknife for this? How was the surgery and recovery? I live in south florida and this procedure would be done at Sylvester Cancer Center at UM.

Thanks