1

(21 replies, posted in Introductions!)

Hi Judith,

I'm an ex-Queenslander and read this forum because my husband has had intrahepatic CC. He is currently clear after 2 resections, 2.5 years after it was first found.

I understand your husband's decision, but just wondered if you or your husband's doctors have spoken to the liver unit at PA in Brisbane? They would be the biggest in the state.

Best wishes,

Genevieve

2

(8 replies, posted in General Discussion)

Thanks Percy,

God bless you too.

Genevieve

3

(8 replies, posted in General Discussion)

Hi January,

Do you happen to have a title for the article or link to the abstract please?

I'm also interested in a possible connection.

Thank you,

Genevieve

Hi Marion,

Just posted it there now.

Genevieve

For any Aussies -

With an assessment and referral from a GP, Medicare's Better Access program provides a rebate for up to 10 individual sessions in a year with a psychologist or clinical psychologist. I believe that's correct at present - it changed this year (fewer sessions now covered) so could do again.

Hello Rain,

I can't help with the chemo break, although it sounds like a holiday to visit family would be lovely for your Dad, if he decides he wants to do it and you get the oncologist's okay. Re his mood though, the recurrence and ongoing chemo must be so hard for him. Did you know that Medicare Better Access here covers up to 10 sessions with a psychologist/clinical psychologist, with a GP referral? The right person might be some help.

Best wishes,

Genevieve

Hi Rain,

We saw Dr Charbel Sandroussi - surgeon, and Dr Peter Grimison - oncologist (for opinion on adjuvant therapy after the surgery).

RPA has the national transplant unit and the doctors there also operate privately at the Mater.

Best wishes,

Genevieve

Hello Rain,

This may not help since treatment is planned for your father, but have you tried people at RPA/Mater in Sydney for another opinion? My husband was seen there last year for 2nd resection for ICC (local surgeon was away), and oncology second opinion. They see quite a few CC patients.

Regards,

Genevieve

Sorry Marion, I've just posted it now.

Best wishes,

Genevieve

10

(186 replies, posted in Hospitals)

In Australia, my husband has been operated on by two excellent surgeons.

Canberra:

Dr Charles Mosse
Hepatopancreatobiliary, Upper GI and Advanced Laparoscopic Surgeon
Calvary Clinic Specialist Medical Centre / Suite 20
40 Mary Potter Circuit
Bruce ACT 2617
Tel: (02) 6253 4122


Sydney:

Dr Charbel Sandroussi
Upper Gastrointestinal, Hepatobiliary and Transplant Surgeon
100 Carillon Ave, Suite 306 RPAH Medical Centre
Newtown NSW 2042
Tel:  (02) 9565 1375
Operates at RPA and the Mater Hospitals.

Genevieve

Hi Kylie,

Contact details are:

Dr Charbel Sandroussi
Upper GI, Hepatobiliary and Transplant Surgeon
100 Carillon Ave, Suite 306 RPAH Medical Centre
Newtown NSW 2042

Phone: (02) 95651375

His secretary's name is May.

Good luck!

Genevieve

Hello Kylie, that's great to hear that your mother has done well with chemo so far.

Just thought I'd say that if you are interested, I can give you the name of the surgeon in Sydney who operated on my husband earlier this year for recurrent intrahepatic CC. This surgeon sees quite a number of CC patients each year, sees lots of people from out of Sydney and is also very approachable. He works at RPA, which has a big liver unit (including the national liver transplant centre) as well as privately at the Mater, which is where we went. Your mother may not want to travel but just thought I'd mention it.

Best wishes,

Genevieve

Hi Eli,

Thank you so much for all the information. It's been put to us as a trade off between possible benefit and toxicity, because of the lack of evidence regarding effectiveness, particularly for intrahepatic CC (and my husband's appears to be a less common type). We've spoken to two oncologists and that's why they are not suggesting gem/cis or any other combination.

Marion, thank you very much for finding out.

Thanks again to you both,

Gen

Thank you Marion, for asking about BILCAP. And thank you also for the links re adjuvant therapy; that was interesting reading.

Best wishes,
Genevieve

Hello, I meant to post an introduction but am having difficulty (my problem). I have a question please -

Does anyone know if there is any updated information about outcomes from the BILCAP trial? Or is there any other information suggesting whether Gemcitabine or Capecitabine is more likely to be effective as adjuvant therapy?

My husband is due to start chemotherapy in a couple of weeks' time after his second resection (last month) for intrahepatic CC. He has clean margins again and is doing well - back at work part-time and riding his bike. His tumour was said to be ductular on the path report the first time and while there have been several recent papers regarding possible differences between intrahepatic CC arising from ductules vs ducts, I don't think there is much about what that might mean for therapy. Like many who get this disease, he had no obvious risk factors. He didn't have chemo after the first resection (October '11). The second tumour was probably there after the first operation but too small to be seen on the post-op scan.

We thought he would be offered Gemcitabine this time but the oncologist has given us the choice of Gemcitabine or Capecitabine. We've said Gemcitabine but thought I'd ask if anyone knows more.

Thanks to the moderators and everyone involved with this board.

Regards,

Genevieve

16

(16 replies, posted in Introductions!)

Thanks for your kind words, Lainy. I'm going to post an introduction now.

Genevieve

17

(16 replies, posted in Introductions!)

Hello currakid,

I'm new too and am also in Australia. Very nervous about posting. My husband is in hospital at present, having had his second resection for intrahepatic cholangiocarcinoma a few days ago. We've come to Sydney for this operation because his first surgeon is away at present.

I have no medical knowledge and you may be happy with your specialist, but just wanted to say that perhaps you might look for a specialist who is involved with one of the big liver units here as they would be presumably be most likely to have experience with recommendations for therapy. There are liver units at RPA in Sydney and Princess Alexandra in Brisbane; I would think there are others as well but haven't looked into it. I've seen research publications on CC by people from a number of other Australian hospitals though, for example the Austin in Melbourne has a clinical trial going; people from St George in Sydney published on surgical outcomes a couple of years ago; Sir Charles Gairdner in Perth recently published on chemoradiotherapy outcomes. 

Best wishes,

Genevieve