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(7 replies, posted in General Discussion)

My sister also has mets to lungs. I believe it is not uncommon. Luckily they are slow growing and not the main concern to the doctors. That said, my sister has tried various chemos to treat overall cancer. Never had any tx targeting g the lung mets directly.

I second that... Enjoy the freedom from treatment. Enjoy the beautiful spring, friends, family and some fabulous meals as your body and mind recover from the chemo and radiation.
Willow

Happy and blessed Passover, Lainey.

Super Selfless Woman!

Thank you, Gavin. Great that you made it to that conference!

Legend
Online
From: California
Registered: Mon, 20 Aug 2012
Posts: 668
High intensity focused ultrasound is "HIFU"
My sister will have this relatively novel treatment for a bone met (rib). It's used when radiation is not an ideal option. Anyone heard of or had this tx?

Here's a little more info:
HIFU has been successfully applied in treatment of cancer to destroy solid tumors of the bone, brain, breast, liver, pancreas, rectum, kidney, testes, prostate.[9][10][11][12] At this stage, cancer treatments are still in the investigatory phases as there is a need to find more about their effectiveness.[citation needed]

HIFU has been found to offer palliative care. CE approval has been given for palliative treatment of bone metastasis.[13] Experimentally, a palliative effect was found in cases of advanced pancreatic cancer.[14]

Willow

My sister will have this relatively novel treatment for a bone met (rib). It's used when radiation is no longer an option. It's could be considered a form of ablation. Used both curative lay and palliatively.  Here's a little more info:
HIFU has been successfully applied in treatment of cancer to destroy solid tumors of the bone, brain, breast, liver, pancreas, rectum, kidney, testes, prostate.[9][10][11][12] At this stage, cancer treatments are still in the investigatory phases as there is a need to find more about their effectiveness.[citation needed]

HIFU has been found to offer palliative care. CE approval has been given for palliative treatment of bone metastasis.[13] Experimentally, a palliative effect was found in cases of advanced pancreatic cancer.[14]

HIFU may be used to create high temperatures not necessarily to treat the cancer alone, but in conjunction with targeted delivery of cancer drugs. For example, HIFU and other devices may be used to activate temperature-sensitive liposomes, filled with cancer drug "cargo" to release the drug in high concentrations only at the tumor site(s) only where triggered to do so by the hyperthermia device (See Hyperthermia therapy). This novel approach is resulting in drug concentrations 10 times or more than traditional chemo with a fraction of the side effects since the drug is not released system-wide.[citation needed]

In addition, several thousand patients with different types of tumors have been treated in China with HIFU using ultrasound image-guided devices built by several different companies.

8

(14 replies, posted in Chemotherapy)

Porter, hope you get to the bottom of this and it's only the milder range of side effects. Still, not fun. Bundle up and let us know what the doc says.

Saw on caringbridge that surgery went well but Lisa is in a lot of pain. Please continue to keep her in your thoughts and prayers for relief and healing.

Unbelievable! How frustrating for that tiny community.

11

(11 replies, posted in Members' Cafe)

How wonderful!

12

(13 replies, posted in General Discussion)

Thinking of you, Lisa!

13

(4 replies, posted in Thought for the Day)

Good one, Lainey!

14

(20 replies, posted in General Discussion)

Percy,
I am so glad to hear from you. Any news from you, even if it is rough, is appreciated. So many here care about you and want to be "with" you at this time of your life. Sorry you've been feeling less purpose... Your purpose simply by being yourself is influential and helpful to others. We have all felt despair and helplessness at different times. Let others' strength and love uplift and comfort you.
God Bless, Willow

Congrats Lisa, on being neary finished with this treatment! I understand the joy and freedom of biking. Love those charity bike rides.. We have some lovely ones here in the CA Napa Valley wine country if you're ever out this way! Anyhow, what you've been through treatment-wise is like a marathon in itself so be gentle as you ease back into your athletic endeavors. Living in the moment helps ease the unknown of "what's next" as far as treatments go. That's how my sister gets through things.
Take care,
Willow

Rosebud,
My sincere condolences on the loss of your mother to this awful disease. May she rest in peace.
I hope this foundation can help you find answers and comfort.
Willow

17

(30 replies, posted in General Discussion)

Mary,
You really are amazing. Glad to hear of the small successes in your energy level. You truly are blessed to have your daughter and son in law supporting you.  My sister just started irinotecan (by itself) at a reduced dose (due to history if low platelets from other previous chemos) a few weeks ago and is doing ok.. Fatigue but not severe. She naps a lot. Just wanted you to know you're not alone in this situation.
Willow

Surfer,
That us wonderful news! Please keep us posted on his surgery and recovery. Really, resection is the ideal situation!

19

(30 replies, posted in General Discussion)

Mary,
I agree that this is a tough decision that only you can make. Had not heard of Ritalin being used for fatigue but that is intriguing. Glad they got the bile duct blockage taken care of. I hope a couple more days of rest brings you some perspective. Best to you!
Willow

Yes, unfortunately many desperate people fall for fraudulent "cures".

21

(15 replies, posted in Introductions!)

Dear Chrisna,
So sorry about your best friends diagnosis. This is a scary diagnosis and you have come to a great place for support both for your friend and yourself.
Try posting your friends story as a new topic in 'introductions' and give a little info about your friend. Also, use the search function to look up discussions about anything. Lastly, look at the free E-book that answers 100 questions about biliary cancer:
This booklet is invaluable to all touched by the disease of Cholangiocarcinoma. We hope to have this booklet to be on display in all oncology offices treating cholangiocarcinoma patients worldwide. 
Expect translations in Spanish, Portuguese, Japanese, Chinese, and Korean within the near future.
The e-version is free of charge to you.
Please know that the cost of the hardcover book ($25) helps defray the  printing and shipping expenses.     

http://www.cholangiocarcinoma.org/book.htm

Jan,
Please repost your introduction under new topic, introductions. More people will be able to see it and give advice. Sorry to hear of your husbands situation. Like Marion said, the molecular testing gives information that can sometimes guide treatment though it's relatively new and many drugs are still in the experimental testing stages. Best to you.. Lots of support here.
Willow

Mary and Percy,
You are both in my heart and on my mind... Sending love and comfort.
Willow

Nancy,
I agree with the advice given above. The important thing is that you're both getting the support you need right now. This is a precious time, even as it is painful. Take care,
Willow

Porter,
That is fabulous news! So happy for you and your family! You have so much to celebrate! Wishing you few side effects with the new chemo.
Willow