Thanks for the replies. I am sorry to see so many going through this, too. LeeAnn I am so sorry yours came back. But as you said, we will fight this for our little ones. You will be in my thoughts and prayers. Can I ask, how was the surgery and recovery? Did they make an L-shaped incision? The surgeon kept stressing it would be a large incision and the recovery would be taxing. But honestly, I am looking forward to it!!
When I first started my fight, a co-worker shared her story with me. 25 years ago she had breast cancer that spread to her liver and her prognosis was poor. She had young kids at the time and decided there was no way she was going anywhere. She believes strongly in the mind-body connections and feels she helped cure herself with positive thinking, visualization, meditation, and prayer. I have been working hard at each of those and I think it does help. I visualize my tumor shrinking every night, and visualize my white blood cells being made like popcorn! They have actually called me their "rock star of blood counts" because mine have never gone down. Who knows if it is from the visualization or not, but it couldn't hurt and makes me feel better...at least makes me feel like I can control something! She also bought me some books and CDs by Bernie Siegel...former surgeon who is now a strong believer in the power of the mind to cure. I listen to the CDs while having chemo. I also switched to a high Omega-3 diet that another cancer patient had told me about. When I ran it by the nutritionist at Mass General she was in favor of most of it. I have given up dairy, red meat except for grass-fed beef (high in omega-3, low in omega-6), no sugar (well, okay, sometimes sugar...I can't help it!) and lots of greens and fish. Again, who knows if it has helped but something did.
Marions, I think that is the same study I am in, but I wasn't aware Rochester was a part of it. In order to qualify, my tumor had to have KRAS Wild-type protein, which about 60% do. It can't have any mutations. There were a lot of other criteria...couldn't have spread to any nodes or anywhere else, couldn't have more than 2 tumors, etc. I just am so thankful I am a wild-type! Lol
Well, sorry my first two posts have been so long...it is just great to communicate with people who know what I am going through. My husband is great and tries to get it, but how can he?
I will be more brief in the future, I promise!