Take care of yourself and I hope you feel better soon.
Thanks Lainy! I have an appointment Thursday with my local oncologist to discuss the new plan. I will probably start in a couple of weeks.
I just got home from Houston for my quarterly PET scan at MDA and my results weren't great. The Xeloda/Gemzar is not working and there has been some progression. I will be starting FOLFIRI and be adding Tarceva a little later. I am a little freaked out about this chemo combination and would like to hear from others about your experience with these drugs.
Can't wait until Monday to read your good news!
Loved the poem! I'm sorry the gem/cis didn't work for you. I've never been on oxaliplatin but I have been on Gemzar/ Xeloda since April and have not had any bad side effects from Xeloda. I was worried about that as well and have been vigilant about keeping lotion on my hands and feet. I keep lotion and socks on my feet most of the time. I also rinse my mouth with baking soda and water 2 to 3 times a day and drink lots of water. I go back and forth between constipation and loose stools depending on how many anti- nausea pills I take for the Gemzar and an occasional pain pill, so no bad diarrhea.
Good luck! I hope the new combination works for you.
I am so sorry about the baby.
Maybe it is because so many of their patients are from out of town, but MD Anderson has a great procedure for scans. I have my scan one day and the next day I meet with the doctor and get to see the scan and go over the results. I can't imagine having to wait!
Welcome to our site. You will receive great support from this group and I hope you are able to meet others in your area.
You mentioned you had a stent. The alkaline phosphatase spike could be related to your stent. How is your bilirubin? An increase in these numbers sometimes indicate it is time to exchange (plastic) or clean out (metal) stents.
Good luck with chemo and let is know how you are doing.
Re: Does anyone dare answer this question. Honestly? Sensitive Question. (27 replies, posted in General Discussion)
I was diagnosed 2 years ago with stage 4 ICC with mets to the lungs and ovaries. i will never be able to have surgery because of the location of the tumor. I was on gem/cis, radiation and xeloda and am currently on gemzar and xeloda. Chemo has kept the cancer in my liver and lungs stable. The lungs have never been an issue and have remained unchanged for these 2 years. The ovaries were not responding to chemo so I had a complete hysterectomy in February and everything has remained stable since then.
No two ways about it, chemo sucks, and the fatigue can be bad, but I still work part time and live a normal life. Like Kris, I'm not sick, I just have cancer! My doctor says to think of it as a chronic disease and not terminal cancer. Of course that is easier said than done but I try to have that attitude.
So be positive and I hope your husband does great on chemo.
I am so glad your sister got good news and hoping it continues!
I am so thrilled to hear how well you are doing. That's amazing! Good luck with the rest of your recovery.
I went to MDA this week and had a PET scan. This is the first one I have had since changing from gem/cis to gem/xeloda and the cancer is still stable. My CA19-9 jumped up to 88 which freaked me out, but all my other numbers look good and since the scan is showing stable the doctor said not to worry about it. Of course that is easier said than done but I am very happy with stable.
That's wonderful news Lisa. So happy for you!
That's great Kris. Congrats!
My heart is also breaking for you and your family. My thoughts and prayers are with you at this difficult time.
My oncologist at MDA did mention clinical trials at my first appointment, but it was presented as something we might try if standard treatment did not work. I would consider a clinical trial.
So glad you were able to get the stent!
I'm sorry I can't really help but you said you changed steroids. Could it be a reaction to the steroids?
I am so glad Lauren is doing better. You are constantly in my thoughts and prayers.
I hope the new doctor solves the problem and you are feeling better soon!
So happy for you and Lauren. I hope you can get some rest now.
Good luck Randi!