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La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español. Por favor publique sus preguntas en Español y un intérprete le va responder.
Posts found: 15
Hello All -
http://www.laprensa.hn/Secciones-Princi … ica-Latina
Just in case you can read Spanish, I found this article in a Honduran newspapers that may be of interest to you. My father, who passed last year from CC, was from Honduras and lived in the region described in this article. The article states that Honduras is the country in Latin America with the most cases of gastric cancer. It is rated just below Japan and China. The interesting part is that it appears that most cases are centered in a certain region (the west). One common factor the doctors are analyzing is a bacteria called Helicobacter pylori. Also, 25% of all the gastric cancers are people under the age of 55.
Thank you. Please know everyone's words mean a lot to me. Its hard for people outside this forum to truly understand how horrible this disease can be. The hiccups all night long, the naseua, the plastic stents, the metals stents, the infinte variations of antibiotics, the ER visits, the daily trial and error meals, the chemo sessions, the weekly blood work, etc., etc. etc.
Greynosa - I'm so sorry for your loss. As with my Mom, it must be so hard to lose your spouse after so many years.
Thank you for your kind words and beautiful poem.
PCL1090 - My focus in regards to CC now is how and why this happens to people. Thank you for the advice. I will do that at my check up this year. I would be willing to have an ERCP if they could do some molecular testing from the biopsy. Interestingly, my half sister on my Dad's side has cholangiatis (sp?). She says that she avoids seafood because it makes her sick. I suggested she discuss with her doctor the fact her father had CC and if the cholangiatis makes her a potential candidate for CC.
It has been 2 months since my Daddy passed away. We lost him on December 24th. I hadn't been able to even write about it but I wanted to share the news here since so many of you were so kind in guiding us during his illness.
He left this world in a peaceful way. I was sitting next to him reading, listening to that terrible rattle that happens at the end, when it was just quiet. Silly me, I jumped up and hugged him and said " Daddy, you aren't breathing!"..I was the only one in the room when it happened. Funny thing is, even though my Mom NEVER left his side during the whole thing, she had left maybe 10 minutes earlier to the store with my neice. My sister called my neice to bring Grandma back home.
There are still so many questions and what ifs which I'm sure some of you here who have lost your loved ones to this illness also have. Just yesterday I kepth thinking all day what if we would have taken him to another hospital in another city sooner? What if the doctor who removed his gallblatter 2 years earlier had seen something in his bile duct? Thankfully, my husband is very good at providing me comforting words and then recalling some funny story about my Dad. I miss him so much. We talked every day. He was such a good Dad and person overall. Thank you to everyone.
As our family is gathered around my Dad while he is passing, I found out that my half sister on my Dad side has ulcerative cholongitis. She says that her doctor told her to watch her diet. The one food group that she says gives her stomach problems is fish or seafood. I googled a cause for sensitivity to seafood and I read that is what happens when your liver is damaged and cannot filter properly. I told her she should talk to her doctor about Cc in the family. She is in her mid 50's.
I keep wondering how my Dads cc started. My theories are:
- He was mechanic at refineries for many years. Probably handled valves with chemicals. He had a terrible accident when one of valves wasn't properly closed and he had severe burns all over his body - sulfuric acid. Was in the hospital for many months. Recovered very well. However, his doctor told him he would most likely develop some cancer in 15 years. Sure enough, 14 years later (1996) he was diagnosed with non-hodgkins lymphoma. Cured in 1997.
-Grew up in Honduras during the 30's and 40's. parasites were common in kids back then. Liver flukes?
- He had his gallblatter removed in 2010. Five of his relatives, including mother and daughter (the one with UC) have had gallblatter a removed.
I am now interested in participating in any clinical trial which is testing relatives bile ducts by means of a ERCP.
Thank you Lainy. I can't tell if it is the chest rattle but the breathing is deep with about a 4 second delay until the next breathe. He barely responds to our questions and barely mumbles responses. I've noticed him pick his sheets, and wave his arms in the air. Today I spoke to him in his ear reminding him how much I love him. How he has been one of the most wonderful gifts from God to me and that we will see each other again. He actually put one arm around my neck Lainy!
If you could only see us here in his room. Some of us are sleeping on the floor around his bed. Others in the living room.
Thank you all for your kind and loving words. Especially thankful for how peaceful, in general, his last days have been. I am grateful to be able to be at his side and care for him during this time.
Marions - we pushed for the g-tube and he hasn't suffered from vomiting. My mother and us kids really appreciate your advice. Keep in mind no one wanted to place it for fear of infection however the interventional radiologists finally agreed to it.
My Dad is nearing the end. He declined in the last 24 hrs. He has been mainly asleep, barely talking and he is making a noise while asleep as if he has pain but when we ask him if has pain, he doesn't answer. We don't want to give him to many medications at one time but wonder if we should give him either methadone or morphine. He also started the hiccups this afternoon even while asleep.
The hospice nurse told us based on his very low pressure he may only have a few hours to days.
Lainy - He is 75. Prior to all of this he was super healthy and strong. He has been so brave through all of this.
Thank you Gavin.
We are at a low point today. My sweet Dad was going to have a feeding tube placed in his lower intestine since his stomach isn't working anymore, but the surgeons this morning said that the risks outweigh the benefits. Our last resort is a PICC line for TPN - nutrition. Had anyone been in this situation? We were really hoping to have the feeding tube so he could get stonger and perhaps continue chemo.
The news really hit him. He keeps crying while in his hospital bed. Its all so sad. The pallative care group is coming by today.
My dad finally made it to Stanford. Him and my Mom flew out here on Thanksgiving and he checked into the hospital the following morning due to vomiting and hiccups. Based on tests done here and records from new orleans, they have concluded that the gemcitibine/cisplatin combo worked at the beginning but not anymore. The next plan is to try xeloda and another drug I forget at the moment. However, in the meantime they need to place a stent in his intestine to allow the food to pass if possible otherwise they will place a feeding tube. The tumor is pressing on the intestine and blocking the passage of nutrition. He was suppose to have the procedure done today but his heart rate has been irregular so the GI doctor decided to postpone until Monday.
Has anyone had chemotherapy with a feeding tube in place?
They wanted to take all the junk sitting in his stomach out because it isn't going through the intestine.
Finally yesterday afternoon they were able to get the tube down his nose and throat. They ended up using a numbing spray in his throat and a gel in his nose. Once the tube was in he quickly filled up a container full of undigested gunk. He is feeling 100% better but without any nutrition going in, he was given blood today.
They didn't try enemas since his blood count was too low to risk a cut (sorry, TMI).
Didn't know about promethegan! I will keep in mind next time.
Thank you everyone! I'm back in California and praying I see my Dad soon.
We have notified the airline that we will need a wheelchair. No oxygen needed at this time.
I also think it would be very helpful if the bowels are cleaned even if there isn't a blockage. I've been a little aggravated that issue isn't being focused on. They have attempted to insert the tube 3 times without success. They Are going to try again this afternoon using a numbing spray in the throat. Last night I convinced the nurse to ask the doctor to order an injection for the nausea vs. the pills since he was vomiting which they did. I also questioned giving him laxatives orally since he was throwing up continously but was told there was no other option.
Blood cultures were taken of the port, urine and blood. Waiting on the results.
Last time he was hospitalized last month, the GI doctor did an ERCP, changed his plastic stent to a metal stent and took a biopsy of the tumor located in and around the liver and bile duct. He said he believed the infection was in the necrotic portion of the tumor not the bile duct itself. The biopsy did not reveal anything conclusive.
Thank you Lainy. We were going to have him and my Mom fly (first class) this Thursday. Still hoping we can. He had chemo on Monday and was fine all week until Friday evening. Good idea on calling Stanford. I've been asking the nurses and doctors about the fact that he hasn't had a bowel movement all week but it seems they don't think that is an issue since they don't see an obstruction. Even though last time this happened the vomiting and hiccups went away once be had a bowel movement.
I've been here with my parents since Sept but am flying back to San Fran with my little girls tomorrow so needless to say I'm very nervous and worried about leaving them. There are other family members here but my sister and I are the main managers of his care.
Very grateful for this forum. My 76 year old father was diagnosed in September 2012 with this horrible disease. Prior to this whole ordeal he was a healthy person. Just this summer he traveled through several countries in Europe with the family.
His cancer is stage 4 and has spread to a few nodes and the lining of the stomach. We has a metal stent and has undergone 2 cycles (6 treatments) of gemcitibine and cisplatin.
Today we are in the hospital since he started vomiting and Developed a fever on Friday. The doctors are trying to find the reason for the fever and are trying to put a tube down his throat to pump the clear mucus he keeps vomiting. However they haven't been able to get it all the way down without him pulling it out. He feels he is chocking. The doctors are saying that is his only option at this point and that we should start looking for home health care since the duodenum is being constricted. We are currently located in New Orleans but have everything set for him to receive treatment at Standford which is near where my sister and I live.
Anyone have any alternatives on how they could empty his stomach ? He isn't vomiting now. Also he hasn't had a bowel movement in over 5 days.
Posts found: 15
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