Deepest sympathies. May he rest in peace.
2 Thu, 21 Mar 2013 16:30:12
Re: Surgery day is almost here! (42 replies, posted in General Discussion)
Pam, thinking of you and Lauren and praying for an excellent outcome.
3 Mon, 18 Mar 2013 12:52:55
Re: Sad news - sensitive (14 replies, posted in General Discussion)
I am so very sorry for your loss. May she rest in peace.
4 Mon, 04 Mar 2013 19:46:20
Re: Surgery for bile duct cancer - American Cancer Society (2 replies, posted in Surgery, Resection & Transplant Treatment Options)
Thank you! This is the best information I have seen on this horrible disease.
5 Thu, 28 Feb 2013 20:26:30
Re: Caregiver's Bill of Rights (9 replies, posted in General Discussion)
Thank you so much, Pam. Today was his second treatment with this 'cocktail'. So far none of the symptoms have shown up. I will be on the lookout, though. I hope Lauren is doing ok. Have been following your posts. Thanks so much for responding.
Take good care.
6 Thu, 28 Feb 2013 18:05:47
Re: Caregiver's Bill of Rights (9 replies, posted in General Discussion)
I just noticed he is also being given irinotecan....
7 Thu, 28 Feb 2013 18:02:57
Re: Caregiver's Bill of Rights (9 replies, posted in General Discussion)
The other drug is oxaliplatin. Thy are also giving him leucovorin which, i thiNK is in the shot he gts on monday to keep his white cell count up? Do you know anything about the side effect?
Thanks so much.
8 Thu, 28 Feb 2013 17:13:39
Re: Caregiver's Bill of Rights (9 replies, posted in General Discussion)
THANK YOU! Just today I was saying to myself, "I wish someone would take care of me." (then felt guilty) My husband has started a new chemo regimen that includes 5fu. Along with a 5-6 hour infusion at the cancer center he has a bag that he takes home that infuses for 46 hours. Can any of you share your experience with this type of regimen?
9 Tue, 29 Jan 2013 17:03:37
Re: Lauren is finally getting what we have hoped and prayed for. (28 replies, posted in Good News / What's Working)
I don't post too much, but wanted to let you know how happy I am for you and Lauren. Look forward to hearing more good news for you. Lauren is lucky to have you. Would you please let Lauren know that she is in my thoughts and prayers every day.
Cristerry
10 Thu, 20 Dec 2012 08:52:16
Topic: Various symptoms (2 replies, posted in General Discussion)
Hi, folks.
Haven't posted lately, but look every day at this sight and the discussions. Needless to say, the information on the posts has been invaluable. Terry has been on a chemo regime of gem/cis since September. Two weeks on/one week off. He missed two separate weeks because of a low blood count. In the past couple of weeks he has had a fever ranging 99.9 to 100.0. We were told not to be concerned unless his temp goes up to 102 or higher. It only lasts a few hours. His temp has been good for the past week. One night he sweat profusely. Also the right side of his back has been giving a lot of pain. I use a massage wand and he says that helps. Also, he hates taking any pain medication, but will take an Advil once in a while. Yesterday he had a pet scan(this is the first one since all of this began). The doctor said there would be no reaction. Last night he was up from 3 am with a stomach ache. He actually took a nausea pill at 3 and 5 am. He's been taking a nausea pill every morning that has worked up til now. Since the chemo has started he has been very tired (normal, I know), but never nauseous. He hasn't had any chemo since 12/6. Whenever I say I want to call the doctor he says no. We do have an appontment with his chemo doctor next thursday for the results of the petscan. I guess I'm looking for some feedback. You guys are all great.
11 Mon, 19 Nov 2012 13:11:15
Re: Swollen ankles (5 replies, posted in General Discussion)
Hi, Lynn. Sounds like my husband is on the same tract. I did elevate his feet. They seem to have gone down a bit. Thanks for weighing in on this. Hope all is well with you
12 Sun, 18 Nov 2012 13:48:22
Re: Swollen ankles (5 replies, posted in General Discussion)
Thank you, Marion. He's laying flat right now so I'll elevate his legs right now. Will keep you posted.
13 Sun, 18 Nov 2012 13:22:58
Topic: Swollen ankles (5 replies, posted in General Discussion)
Hello.
My husband is in his third round of chemo treatment to shrink his tumor. Treatment is two weeks on one week off. He missed one session because his wbc's were too low. They are using gem/cis with anti nausea drip and benedril. On Thursday he had chemo. Felt great the next day. Yesterday he was totally wiped out. Today his ankles are very swollen. Has anyone out there had any experience with swelling? Thanks is advance for ay information.
Cristerry
14 Fri, 02 Nov 2012 16:01:46
Re: mandy (19 replies, posted in Introductions!)
Hi, Mandy.
You sound like a very brave, strong person. Sounds like you are in the care of a very competent Dr., too. I really wish you well in your recovery. Do you have good help at home?
Welcome and all the best.
Cristerry
15 Mon, 22 Oct 2012 11:56:54
Re: Sleep, sleep, sleep (7 replies, posted in General Discussion)
Thank you. I think he has broken thru the sleep phase. This morning his friend gave him a haircut. His hair has been falling out, but not in clumps. We then went for a ride thru our beautiful little town of Wickford and then to the beach for a look at the ocean which he loves having been a captain in the navy and owning a sailboat for years. He has chemo this week and next, so will watch how things go. He still takes compazene for nausea
Again, Thank you
16 Sun, 21 Oct 2012 15:06:37
Re: Sleep, sleep, sleep (7 replies, posted in General Discussion)
Hi, Gavin.
Thank you so much. Just breezed through parts of this and already know more than I did.
Thanks or your good thoughts, too.
Cristerry
17 Sun, 21 Oct 2012 14:39:12
Re: Sleep, sleep, sleep (7 replies, posted in General Discussion)
Hi, Pam.
He is on gemcitabine and cisplatin. Thank you for sharing info about your daughter, Lauren. I truly hope you get your miracle.
Cristerry
18 Sun, 21 Oct 2012 11:24:06
Re: Cholangiocarcinoma Awareness (11 replies, posted in General Discussion)
Thank you sooo much for sharing this video. I was thinking today that instead of getting presents for the holiday season we will be asking our kids and other familynmembers to donate to cc fund.
19 Sun, 21 Oct 2012 10:52:01
Topic: Sleep, sleep, sleep (7 replies, posted in General Discussion)
My husband has had two rounds of chemo. He is on 2 weeks on and one week off. This was his off week. He is sleeping almost around the clock with only short breaks in between. His appetite is almost nil, consisting mostly of a lot of fresh squeezed oj and boost. Is this much sleeping common?
20 Sat, 13 Oct 2012 12:33:01
Topic: Drains and stents (1 replies, posted in General Discussion)
Can anyone explain (in plain english) what the drains do? My husband has had up to 4 drains in him at one time. The procedure to remove the final three did not work the first or second time. The third try they were able to remove two of the three. The third one is still in and is scheduled to be removed, if possible, in a couple of weeks. The drain is flushed twice a day. This drain has very little coming through. Is this a good thing or a bad thing? He had his second round or chemo this past Thursday.
21 Sun, 07 Oct 2012 13:24:28
Re: Fever (9 replies, posted in General Discussion)
Got it. Thanks very much, Gavin.
23 Sun, 07 Oct 2012 13:03:50
Re: New member (16 replies, posted in Introductions!)
The word Jim was supposed to be him. Curse the spell check on my iPad.
24 Sun, 07 Oct 2012 12:32:25
Re: New member (16 replies, posted in Introductions!)
Have been trying to get Jim to drink more fluids. Gave him a Popsicle today. Almost immediately after he got the shakes (tremors) and was freezing for at least a half hour? Has that ever happened to any of you?
25 Sun, 07 Oct 2012 05:45:26
Re: New member (16 replies, posted in Introductions!)
Thank you all so very much. He is on ciaplatin and gemcitabine. His first day after chemo he seemed the best he has been for a long time. Yesterday and today, though, he is sleeping a lot and his energy level is waaaay low. Is this typical? Will this pass in the next few days? His next treatment is this Thursday.
