Dear Lisa,

I'm terribly sorry for the loss of your dear mother.  I went though losing my beautiful mother 6 months and 2 days ago, so I know how it feels.  It's heart wrenching and almost unbelievable.  But she's pain-free and in a better place and I have to keep reminding myself the same thing, over and over again.  She is watching over you.

I will keep you & your family in my prayers.

Desiree

Dear Dee

I'm so sorry for the loss of your dear mother.  I wish I had been holding my mother's hand when she took her last breath but I was in a cab on the way to the hospital when she passed.  My heart felt like it was broken into a million pieces and I felt all alone, and still do.  I lost contact with my only family which were my 2 cousins and my 85 year old Aunt only because of money.  They wanted to be on the Will.  They already stole my mother's belongings and currently treat me like I am "nothing" and refuse to provide me with my mother's death certificate as she passed overseas.  I had to go through the U.S. State Department who finally after 5 months were able to obtain the original death certificate o that I may start the legal ball rolling in France which is so difficult and complicated.  I wish I didn't have to sell my mother's studio in Paris but I can't work there as a U.S. citizen.  My cousins have so much money and didn't help me at all even though my mother allowed them to live with us for years while they were growing up, rent free and free food and this is how they're treating me now with total disrespect.  I feel like they were always jealous of me for no reason. When my mother was alive they were just ok with me but as soon as she passed away, they became monsters, no joke!  My mother always asked me not to talk to them as she knew how they were.  Both of them need psychological help with their past behavior dating back to childhood, but they think they're perfectly normal. 

I have my terrible days and my okay days but I miss my mother's voice, her caring and loving for me and her presence in this world.  I cry a lot.  I also like you had wished to take her place and die instead or die with her and be buried at the same time, but that's not how life works.  I feel like it's unfair that my mother passed before my aunt who is one year older and in fair health and refuses to talk to me because she believes her children more than me, who lie all the time.  Well, they took care of her while she was sick, so I will give them that much credit but they're refusing to give me her passport. Karma!

I am a mountain bike rider and ride through the trails talking to my mother and had some good days and other days I ask (which she also asked in front of me when she was alive) "why did I get so sick?"  Now she's pain-free and in harmony and all I look forward to is to join her in Heaven and be with her forever in the afterlife.

Anyway, Dee, it will take time and everyone has their own time and own way of grieving.  I know that even though it's been 6 months and 2days that my dear mother passed away, I'm still hurting as she was the love of my life.  I miss her so much and I know that spiritually she's with me and watching over me just like your mother is right now.  She wants me to go on with my life and it's just taking time to accept it. 

I finally got a job the week before my unemployment benefits ran out and hopefully that will help me stop thinking 24/7 about my mother but I will have a framed photo of her on my desk and also I have a locket which I will put her pictures in and wear it around my neck all the time. 

I know what you're feeling and this disease was and still is a monster.  Take care, yourself please and trust me it's the first year that's the worst, and stay on this board with us for support, and please let us know how you're feeling and feel free to express yourself here.  Please give us updates.

A big long hug,

Desiree

Desiree

It's been 5 months since my mother passed away from this monster of a disease CC.  I am still devastated beyond belief and cry all the time.  I've been to counseling, I'm on medication for anxiety and I'm still having terrible flashbacks.  Flashbacks of the way my mother's face looked, yellow from head to toe and sick in a hospital bed with tubes hanging out of her veins, she was thinking very hard, my mother telling me that nothing in life interests her any more and that she knows she will never get well again, no desire to eat or drink and didn't talk unless spoken to. I'm also having Flashbacks of the last 2 days in the ICU, the last day when she was intubated with breathing difficulties, wrists tied to the bed and tubes pertruding from every opening in her body.  Finally, my mother writing on a piece of paper "Take me home if you love me.".. She still had her mind and was aware of her surroundings.  Then after passing away, seeing her body and burying her in a foreign country where I felt scared and alone.  OMG how am I going to get through this.  I miss my mother so much and wish I would have died and been buried with her at the same time.  She was my world and I don't know how to go on without her.  I can't type any more as I'm crying.....I

I am still having such a hard time without my mother.  Crying every day and wishing she was with me.

Desiree

5

(15 replies, posted in Introductions!)

I don't care what anyone says but I firmly believe that there's NO cure for Bile Duct Cancer for now, not even Nerium Oleander Extract.  At the same token, I believe that there has been a cure for cancer for many years but they have failed to advise the public because the pharmaceutical companies would lose a great amount of money.  Chemo costs a fortune as well as other medications related to cancer treatments. 

What a shame to watch and hear of so many people dying of Cancer.  My mother died of Bile Duct Cancer and I will never forget it.

Lainy, sorry I spelled your name wrong in my last message to you.

Dear Lainey,

I'm having such a hard time without my mother.  I have some okay moments and then bad moments, every day.  I miss her so much.

Desiree

Dear Dee,

I haven't written you because I've been crying and not doing so well.  It's been hard without my mother.  All of a sudden my mother got sick and passed away in 8 weeks, and it just happened too quickly.  I am so sad because I'm having a hard time getting through each day without hearing her voice every day when she called me.  I talk to my mother (in heaven) asking her to wait for me as when I die I want to be right next to her forever.  A friend of mine told me to stop thinking that way as my mother would want me to go on with my life and live it to the fullest.  I'm just thinking about the "afterlife" that's all. I'm having a hard time with life without my mother.

Anyway, how are you doing?  And above all, how is your mother feeling??  Please let me know.  If you prefer to email me, please feel free to at orlysud@aol.com. 

I lost 2 so-called friends because they didn't want to hear about my mother.  Well that's their loss not mine.  Amazing how friends show their true colors which to me is a test of friendship.

Anyway, I'm hoping to hear from you soon.

A big hug to you.

Desiree

Dear Dee,

Thank you so much for your support and I'm so sorry that your mother has CC.  It was horrible seeing my mother all yellow from head to toe and the left side of her face deformed because the cancer jumped behind her eye and jaw.  This caused her to have severe headaches but at the end she had no pain but needed two people to help her walk to the bathroom and back, loss of hearing in one ear, double vision in the left eye where the cancer was, not eating or drinking.  It was the most devastating event of my life.  I cry every day and really want my mother back, but at the same time, I don't want her to be in pain and on Life Support, like she was the last 2 days of her life.  She's in heaven now and she promised me that she was keeping a spot right next to her for me when I pass away.  I believe in the "After Life."

She was 83 years old and tomorrow is her birthday sad  She would have been 84.  It's going to be hard for me.

The worst thing in the world is to loose your mother.  CC is a monster cancer and yes it does kill one's soul.  She was my "world" and I loved her more than anything and anyone in the world.  I miss my mother's voice every morning on the phone as we would talk no matter where we were, and I miss her emotional support and her love for me.  It's so hard on me and sometimes I can't believe it.  I'm crying right now just typing this to you.

Oh Jesus, I know that he took her life in 8 weeks because he didn't want her to suffer any more.  My mother did say that it was about the "quality of life."  My mother still had her mind till the very last day. She was the kindest mother and friend in my world. 

Dee all I can wish for is that you spend some quality time with your mother.  I didn't realize that my mother was going to pass away until the day before, but then it was too late.  That's still bothers me.

Feel free to write me any time Dee.  Please let me know how your mother is feeling.

God bless you.

Desiree



How's your mother?

Hi Kirstie,

I am sincerely sorry about the loss of your mom and know exactly how you feel.  I lost my dear mother to this monster of a disease, CC, three months ago and I'm still devastated.  The worst thing that has ever happened to me was to lose my mother whom I loved beyond belief.  I managed to see her five days before she passed in Paris, and then had to bury her.  It was horrific!  I know personally that it will take me a very long time to heal, but I will never heal completely.

I have an enlarged framed photo of my mother on the wall in front of me when she was well, from 2 years ago, and I speak to her every day but I'm sad.  I use to talk to her on the phone every morning as she lived in France and I live in the U.S.  I miss her voice, her emotional support, her love and she was always on my side.  No one ever loves you like your own mother. I feel like an abandoned orphan.

""When someone you love becomes a Memory, that Memory becomes a Treasure."  (Forgot who wrote this).

I feel for you and wish you comfort.  If you ever feel like emailing me for support, please let me know.

Desiree

Dear Shaonlee,

I feel for you and I'm so sorry for such a great loss.  Yesterday was the 3 month anniversary of my mother passing away.  I cry so much and my life has been so hard as it was the biggest loss of my life.  It's hard to live without my mother.  She was disgnosed with CC and passed away 8 weeks later on Novrmbrt 29, 2012.  She got a little better, was realeased from the hospital and we both thought she was going to recover, only for her to go back into the hospital a week later.  She couldn't stay out of the hospital.  My cousins were looking after her until I flew overseas to be with her, and it was the worst sight of my life watching her suffer.  However, I was greatful that I was able to spend a short-lived time before she passed away.  Then I buired her and thought I was going to die. 

I know her Spirit is with me and that I carry her in my heart at all times.  I also pray that when I die, that I'll join her and be right next to her forever in the afterlife.  She's waiting for me.

Anway, loosing a mother for me is the worst thing that has ever happened in my entire life.  I wish I was never born to feel this pain and I understand your pain.

Hugs to you~~~
Desiree

12

(6 replies, posted in In Remembrance)

Dear Danni,

I lost my dear mother 20 days before yours, (November 29, 2012) and have been devastated.  She was all I had in my life and we were so close to eachother.  She was my mother, friend, my rock & hero.  I miss hearing her voice on the phone every morning & miss her love.  I feel lost and alone and hurting so badly.  It's normal to feel so much pain, and it will take a long time to ease the pain.  They say time heals and I firmly believe it, even though at first I wanted to die and didn't believe anything anyone said.

I'm 59 years old, and my mother was 83.  Bile Duct cancer is an agrressive monster.  My mother thought she was going to get better when she improved a little, but then she went downhill.  It was horrific.  I saw her 5 days before she passed and she didn't even look like herself, and was yellow from head to toe...it broke my heart into a million pieces.

I pray that you find peace, hope and comfort.  Share about it as it's very important, cry when you want to release your pain and keep coming back to this discussion board and share your thoughts. 

I'm with you.  Feel free to contact me.

A big hug,

Desiree

13

(11 replies, posted in In Remembrance)

Thank you everyone for all your support.  As someone said, the more you loved that person, the deeper the grieving.  I'm still raw and my heart aches deeply.  I have run out of words to express my grief. I loved my mother more than anyone in this world.

My family which consist of my my aunt & 2 cousins, have been awful with me since my mother passed away, as they're upset that their names are not on my mother's Will.  So they're hiring an attorney to sue me saying I owe them lots of money for my mother's medical bills.  They told me and my mother several times while she was still alive, not to worry about my mother's medical bills and that they would take care of it.  I knew they were rich.  They cared for her and also stole her valuables which I cannot prove.  My mother was at their mercy because they were taking care of her and paying her medical bills.  In the back of their minds, they were thinking about a payback. 

My cousins knew I was unemployed and didn't even offer an air ticket to France to see my own mother.  My mother ended up giving them money to wire to me, in order to puchase my air ticket.  Thank God that I was able to see my mother a few days before she passed and also to bury her.

So I'm not only greiving heavly but also dealing with an "evil greedy family. By the way, this issue is happening in France as that's where my mother's apartment is located.  So I'll probably have to go to France sometime this year, with what money, I don't know.

Still grieving.

14

(23 replies, posted in Grief Management)

When a cancer hits at the speed of lightening as it so happened with my mother, it’s very difficult to come to terms with the devastation of an almost sudden death.  CC took my mother's life in 8 weeks from time of diagosis.

I also keep replaying the last few days of my mother's life over and over in my mind.  It's only been 7 weeks since she passed away.  I feel my mother's spirit with me and sometimes talk to me through my mind.  I miss hearing her voice every morning. 

I'm upset to hear people say that I should go to a grief support group or counseling, as it makes me angry!  Everyone grieves their own way and I prefer not to go to conseling, so I wish people would stop suggesting it, even though I'm aware that they're only trying to help.  On the other hand, I also feel like people don't want to hear about my grief and prefer that one shares it with their therapist or that one should just get over it soon.  Well that's not going to happen. 

Is it normal to repeatedly have split second moments that make us realize that our loved one is no longer with us?  That's what hurts the most for me.

I am comforted when I feel my mother with me and when I look at her picture, which her kind eyes are looking straight at me.

15

(11 replies, posted in In Remembrance)

Thank you Pam and everyone else who responded.

I wanted to go to a Grief Support class but it's from 7:30-9:30 PM, once a week for 10 weeks.  I didn't like the hours, so I gave it a lot of thought.  Then this morning, I spoke to my mother (like I have been doing since she passed away) out loud, and asked her if I should go to this class or would should be willing to help me through my grief.  Believe it or not, a thought came across as "I will carry you through your grief." No joke!  I feel like my mother is with me and speaking to me through my thoughts, can that be true?  Also, when I start crying, I can almost hear my mother through my thoughts, telling me not to cry, which I then stop crying.  Am I going out of my mind or what???  Please let me know if I'm going crazy.

Anyway, I called the Pastor in charge of this class, to advise him in advance, that I would not be attending his class tonight, but I felt like he was giving me the guilt trip.  He responded "I was depending on you; you really need it; I have such a small class; I'll give you a ride to and from the class ( I don't drive)."  Very very nice of him, but one of the things I dislike is when I'm being forced to do something that I don't want.  I responded that I would call him back later today but now I have decided that I don't want to call back just to decline again.  My decision was already made the first time I called this morning.  Just want to know what your thoughts are.

I'm 59 years old, have been sober for 20 years, go to my meetings and get support there as well. 

I love to stay home as I can talk to my mother & look at her framed photograph on the wall.  I also feel that she's with me in spirit and that her soul is inside my heart.  Can that be?

When friends say "if you need anything let me know" I noticed that they never call or email me or offer to get together for coffee etc..  So, now I know who my true friends are.  Amazing what you lean when you're going through a huge loss in your life.  My family (2 cousins and aunt) have turned against me as they want part of my inheritance that they're not intitled to, so they're out of my life too although I still wanted to be in touch with my aunt who's going to be 85 next month.  I have cut all contact with them.  It's a great pity that my aunt always not matter what, sides with her children, therefore I haven't heard from her in 32 days & probably never will, unless she realized one day that we both need eachother.

I am so grateful to hear from all of you which is helping me slowly ride through this storm.  It's one little step at a time & one hour at a time.  I'm trying and that's all I can do.

Thank you for listening to me and thank you for letting me share on this web site.

16

(11 replies, posted in In Remembrance)

Tomorrow will be 7 weeks that my mother passed away.  I'm still raw and not interested in going to a grief class because it's at nights, I don't drive and I don't feel like being given an assignment to do for 10 weeks. 

I feel close to my mother when I'm on the computer because I have 3 enlarged framed photos of Mama hanging on the wall in front of me.  I talk to her and cry almost every monring.  I miss hearing her voice every morning on the phone, talking about politics and of course seeing her every 2 years as she lived alone in France. 

I wish I had known that she was dying when I say her 5 days before, as I would have asked her many questions.   

I feel abandoned and alone.  I'm not asking for pity, I'm just saying it as it is.  Don't want to hear about grief support groups either. I know that I'm slowly healing but I'm having issues sleeping at nights as I keep reviewing the last days with her and the terrible condition she was in and how awful she looked.  Her looks and appearance was always important to her even at the age of 83 1.2. The only thing I'm greateful for is that I was able to see Mama (after 2 years) before she passed, her noturing me (which I will never have again) & burying her.  My family has been a nightmare to me as they're not on the Will and trying to make my life miserable...I'm the only child!

I want to remember how my Mama looked before she got sick (which took her life way in 8 weeks), our conversations and out times together.  I receorded a few phone calls when she was sick, but I'm not ready to listen to them yet. 
Will I ever remember the good times Mama and I had together?

17

(8 replies, posted in Thought for the Day)

Thank you so much for sharing.  I'm copying and pasting everything that touches me into Word, and yours was one of them as it gives me hope.  I lost my mother 6 weeks ago and have never ever felt so devastated in my 59 years of life.
Thank you once again - Desiree

My mother always made sure I was okay even though she lived in France.  I miss hearing her beautiful voice every morning on the phone & always felt better after speaking with her. I was the only child.

My mother was intelligent, interesting and had a heart of gold.  She usually always gave something to a beggar on the street. 

My mother was my best friend, the best mother in the world & my hero.  Her soul will be with me forever.

I love you and miss you so much Mama.

Everyone has their own way of grieving.  I don't like to hear that I have to go to a grief counselor like most of my friends are suggesting.  I feel like it's either too heavy for them to hear or they're tired of hearng it.  In a grief book that I'm reading, it says to talk about it as much as you want to.

Joyce,

I'm so sorry but I an totally relate to your feelings because I feel the same way.  When you said "Maybe withdrawing from the world is not healthy, but it's all I want to do. Nothing will make it better - unless she comes back to me."  that's exactly how I feel. This cancer killed my mother (Nov. 29th, 2012) in 8 weeks and it was just horrific for me. She was all I had and now she's gone.  It's been 6 weeks and 1 day now, and I'm still hurting.  I believe that everyone takes their own time to heal and we can't rush it, like many others would like us to. 

This past Christmas was awful for me and I didn't & couldn't celebrate.  All I could and still do, is think of my wonderful loving mother.  Facing it and feeling it is my way of riding through the storm.

I enlarged three beautiful pictures of my mother when she was well, framed them and hung them up on the wall right in front of me, above my laptop screen.  In that way I can type and look at her when I want to.  I also look at one picture at a time and speak to her, cry and then speak to her again.  For me, it gets better each day but then I have my really bad days.  The important thing to remember is that healing is a process and can take a long time depending on the person.  For me it's a long process.

My mother is the wind beneath my wings" and apparently mother's always stay with their children in spirit and soul.  Their soul never leaves you.

You're in my thoughts and prayers.  Please feel free to leave me a message any time when you need someone.

Joyce,

I'm so sorry but I an totally relate to your feelings because I feel the same way.  When you said "Maybe withdrawing from the world is not healthy, but it's all I want to do. Nothing will make it better - unless she comes back to me."  that's exactly how I feel. This cancer killed my mother (Nov. 29th, 2012) in 8 weeks and it was just horrific for me. She was all I had and now she's gone.  It's been 6 weeks and 1 day now, and I'm still hurting.  I believe that everyone takes their own time to heal and we can't rush it, like many others would like us to. 

I'm debating if I want to attend a Grief class which is once a week for ten weeks, or if I want to do it my way.  My friends who have been through the class said it's great. 

My way of grieving is I enlarged three beautiful pictures of my mother when she was well, framed them and hung them up on the wall right in front of me above my laptop screen.  In that way I can type and look at her when I want to.  I also look at one picture at a time and speak to her, cry and then speak to her again.  For me, it gets better each day but then I have my really bad days.  The important thing to remember is that healing is a process and can take a long time depending on the person.  For me it's a long process.

My mother is the :wind beneath my wings" and mother's always stay with their children in spirit and soul.  Their soul never leaves you.

You're in my thoughts and prayers.  Please feel free to leave me a message any time when you need someone.

To Rick (administrator) 

Sorry but for some reason I didn't see it the discussion board in the drop down menu. Perhaps it was in a different order before, like towards the bottom.  Anyway, it's there and that's what counts smile

I wanted to say that this is a wonderful site and I appreciate that I can come here and not only write my thoughts for people who can relate, but also to read others comments.

Thank you again

I am devasted by the loss of my mother on November 29, 2012.  Instead of Christmas cards, I received Sympathy cards.  I personally didn't celebrate Christmas in 2012. 

My mother lived overseas and therefore I could only see her every 2 years.  Well in 2012 I was suppose to see my mother in October after my cousins and aunt visited her.  On my birthday, Sept 30th, my mother age 83 1/2 all of a sudden had double vision and was rushed to the hospital.  She was eventualy diagnosed with advanced and aggressive Bile Duct Cancer.  She however, improved and was no longer yellow and was released from the hospital only to return a week later with excrutating pain on the right side of her abdomen and her back.  The right side of her face was deformed because the cancer had jumped behind her right eyeball which shut it and caused a lot of pain. The right side of her mouth was immobile and it wasn't because of a stroke or anything like that.   I was fortunate to see her 4 days before she passed. 

I spent the first 2 nights with her in the hospital and she was so quiet and only spoke when spoken too.  When I asked her if she was interested in hearing some music, her repsonse was that she wasn't interested in anuthing, which was so unsual but it was because she was so sick.  She was surprised that I didn't comment on her looks but I responded that I expected it.  It was a terrible sight but I still had hope that she would pul through this, until she said on both days "I know I'm not not going to get well." 

The 3rd night my cousin stayed with her she was rushed to the ICU early the next morning.  When I saw her in ICU, she had internal bleeding in her stomach which was being drained out through a tube from her nose.  It was a horrible sight!! However, she could still talk and I told her that I loved her very much in which she responded the same thing back to me.  I was only allowed to stay with her for one hour which really upset me.  The next day, during my one hour visit, she was worst and intubated and I was extermely upset as I knew this was the end of the line. The good thing was she still had her mind.  She wrote on a piece of paper (which was hard to read) "Take me home if you love me."  I told her that I would ask her doctor but knew deep down that she couldn't be transferred home. I kissed her forhead which she was are of and again I told her that I loved her so much.She was breathing really deeply and I knew how sensitive she was because my body is the same way. 

The last day she was alive, the ICU called saying that we needed to come right away because they had to revive her once already and didn't know if she would make it.  ON the way there, I had a feeling that I would not see her alive, which was exactly what happened.  She died.

I was devastated beyound belief.  I wanted to die.  She was the only one I had because my 2 cousins turned against me after that, without going into details for now.

I buried my mother and have been in shoch ever since.  People don't understand my grief and all I've been doing is staying home.  I enlarged some pictured of my mother from 2 years ago, framed it and hung them on the wall right in front of my computer.  I speak to her every morning but miss her so much and can't stop crying.  I'm the only child.  I'm hurting so badly even after 6 weeks.

Thank you everyone who replied to my post.  I know that the only people who can relate to this particular cancer are ones that have had experience with it.  I am so grateful to this web site as it will help me and others to overcome this tragic loss, hopefully. 

Lainy said "I believe that Mother's never really leave their children and in time you will feel her all around you!"  I pray that it's true because that's what I want the most.

I am new to this web site but so glad that it exists.  My mother was diagnosed on Sept. 30th, 2012, (my birthday) and she passed away on November 29th, 2012.  She was overseasand I was greateful that I saw her the last 4 days of her life. I'm devastated as I loved her more than anyone in the world. She was the only one I had as she divorced my dad when I was 4 years old.  She was my hero!! This cancer is one of the worst that I've ever seen in my life.