What a mess....
The day after I posted this topic, I got a call that my TBILI was 10.3, so they wanted to put the drain in right away because of the holiday weekend and because my IR was about to go on vacation. I went in, they put in the drain in and I stayed until the 4th. My TBILI went up to 11, but they said that may be expected. On the 6th my TBILI was 11.3. Another IR upsized the tube from 16f to 18f and cleaned out debris in my ducts. I was draining crazy amounts of varying colors (brown/orange/green) for several days. On 7/13 my TBILI was 12. On 7/14 my IR told me to cap the drain and then on 7/15 my TBILI was 13.7. The IR told me to put the bag back on, which I will do tonight.
I'm so frustrated because this doesn't seem to be getting any better. I'm taking Augmentin, which I guess has some propensity to cause liver damage (but I was informed that most antibiotics do). My Infectious Disease doc won't change me to anything else until my CT scan on Monday confirms that my abscess is gone (the abscess had an anerobic bug, which is treated with the clavulanate potassium part of the Augmentin). If it is, she'll switch me to just amoxicillin.
My oncologist at MSKCC is also interested in seeing my CT scan results.
I'm seeing a hepatologist on Tuesday. I don't know what to expect and I don't know what else they can do. I'm hoping that the Augmentin is the issue and things will get better if I'm off of it, but I doubt I'm that lucky. I'm yellow but aside from being tired, I feel pretty well. I'm only itchy occasionally and the Questran helps that.
To make me even more freaked out... my CEA keeps going up by 0.1 every time it's drawn. It's 1.4 now, which I know is very low. This is from when it was <1.0 in the beginning of May (I finished chemo in mid-March). I just don't like the trend. I was at 4.1 when they found my (single 1cm tumor) recurrence last September and was 2.1 when they stopped seeing the tumor on my scans in February. They couldn't see anything in my last scan on 6/8.
I just wanted to tell my story. I'm so frustrated. I feel like I have been through the wringer. It's been tough for the past two and a half years, but the past 3 months have been absolute hell. The crazy thing is that none of this is from the cancer, it's all from the treatment. If the cancer comes back after this (which I know it's likely to do), I will be beyond despondent.
(I've edited this for spelling)