Many of you may or may not be familiar with my mother's case, so just a quick recap. She was diagnosed in December with ICC with a large tumour of 8x9cm, two smaller ones in the liver as well as some lymph node involvement, she is also 46 years old. Having said this, after the biopsy was completed and a metal stent was inserted she started the gem/cis regimen in which she had some success. The largest tumour shrunk in half, one of the smaller tumours dissapeared and the other one was only 1cm. Her lymph nodes shrank slightly and that was that. She continued with the chemo until the doctor and her decided it was break time as she had already completed 7.5 cycyles by June. She started to experience strange symptoms after, pain in her shoulders, lower back etc. They ended up doing a repeat scan in July and everything was stable which was very good news. Unfortunatley, her condition worsened ... she ended up losing more weight, had bad fatigue, was burping all the time, had a fever here and there but nothing. We went to the ER and they did a chest xray for infections but didn't find anything and then two weeks later she had another ct scan (this is now September). When we got the results of her ct scan from September we were saddened to hear that her condition did in fact worsen, all the little tumours that had once dissapeared were now back again and active, her largest lymph node is now 4cm as opposed to 2.5cm, there are many more lymph nodes involved and apparently there are 3 nodules measuring between 2mm-6mm in her lungs. I couldn't believe it, the doctor on the other hand was concerned but said he does not want to give up even though we are calling in palliative care to ensure that pain is managed well a long with other symptoms. The doctor also decided that he would put her on Xeloda, 1800 mg for 2 weeks on and one week off. Seeing as her condition is not the greatest, has anyone been on this chemo regimen with advanced liver disease and seen success? I really am concerned, I need her to get better, feel stronger. She is not able to sleep as well, and complains of back pain all the time, she also has mild ascites.
If anyone could please provide me with some advice as to what they have done to combat liver disease that is advanced, it would be greatly appreciated. Unfortunatley, it seems as though Canadian oncologists have differing opinions about Cancer as opposed to Americans. I have seen on this forum that many people have used radiation, medical marijuana, and other chemo cocktails ... his response to radiation was that it was still being tested and hasn't been proven in terms of success but I feel like many of you have had success. This has become a very difficult situation, the doctor that she has is great ... he is not a negative person and I feel like he cares about my mother but I would like to exhaust all options to ensure that she feels better. Please share your experiences with me so that I have something to share with him and my mother so that she doesn't ever give up hope.
All the best to each and every one of you<3