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I saw the specialist at Princess Margaret Hospital on April 16th said that my liver is now resectable. The surgery is next Monday and I go for my preop in Toronto in 3 days. The chemo that I have been on for the last year has shrunk the largest tumor by 75 percent.
It is definitely good news!
I will keep everyone updated.
This Wednesday I go to have a CT Scan in Toronto and then have an appointment at Princess Margaret Hospital with Dr. Stephen Gallinger. I am hopeful that he has a plan for me. I have been following this discussion board for the last couple of months and I find it very encouraging.
I'm glad I found this sight.
It was very encouraging to read your post. We all need to have the hope and faith that you have.
After having an unsuccessful resection in December of 2011, I am now waiting to see a specialist in Toronto in 2 weeks. I have been doing quite well with the Xeloda/Gemcitabine treatments. I am starting round 15 on Wednesday. The tumor and lesions are all shrinking slowly.
I am hopeful for good news when I go to Toronto.
Thank you for the encouraging words. Good luck to you.
So far I have received a combination of Xeloda (oral chemo) 2 x a day for 14 days along with Gemcitabine iv on Day 1 and Day 8 (if my blood levels stay ok)
Apparently this is a clinical trial that they have been doing.
I am on my 13th round of chemo and so far I have been feeling pretty good. I'm just getting pretty tired from it all. I haven't lost my hair or anything like that and everyone who sees me says I look great. Like I'm not even sick at all. I have been off on Long term disability and I've been trying to keep as active and mobile as possible. The oncologist encourages me to keep active. I've actually gained weight (steroids) and am trying not to get too heavy. They have stopped the dose of steroids before iv now because I apparently don't seem to need them.
Not sure how long I'll be on this chemo. My case has been referred to a Oncologist Surgeon at Princess Margaret cancer center in Toronto. The chemo will continue as long as I can tolerate it and it is shrinking the tumor(s). I'm waiting to see if anything else can be done.
I'll tell you a little more about myself. I am 50 years old and when I was diagnosed I was 48. I have a 23 year old daughter and have recently remarried.
My surgery was done in Winnipeg, Manitoba at Health Science Center. My surgeon's name was Jeremy Lipschitz. The chemo treatment that I am having now is being done at the Thunder Bay Regional Hospital. I had complications after my surgery. An abscess at the incision site delayed the starting of my chemotherapy by two months. I am in the 13th round of chemo and have been very fortunate not to have pain or nausea. I did have a period of about 5 weeks after surgery that I was not able to eat and the smell of food was very revolting.
I would also like to say that when I was 5 years old I had a wilms tumor on my right kidney. I had the kidney removed and had cobalt treatment after the surgery (radiation). That procedure was done in Winnipeg, Manitoba at the St. Boniface hospital. Up to being diagnosed with this cancer, I had never had any reoccurence of cancer. The oncologist has told me that alot of child cancer survivors are now having cancers occur as a result of the radiation treatment as a child. Has any one heard of this before?
I am very glad I found this site. I look forward to having the opportunity to share with you all.
My name is Laura and I am living in Thunder Bay, Ontario.
In August 2011 the doctor found a large tumor on my liver while doing an ultra sound to see if I had fatty liver disease.
After numerous tests, I was scheduled to have a liver resection in December of 2011. The surgery was unsuccessful after they found the tumor had spread into the abdomenal wall.
I am current doing oral chemo (Xeloda) and iv chemo (Gemcitabine). So far the treatment is working and the tumor is slowly shrinking.
The blood work all indicates that the cancer started in the bile ducts.
It's been a real struggle to stay positive, but most days I am. I am so glad to have found this sight. I no longer feel that I am the only one in the world with this rare cancer.
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