You are not logged in. Please login or register.
La fundación de colangiocarcinoma (CCF) ahora ofrece servicios de traducción en Español.
Por favor publique sus preguntas en Español y un intérprete le va responder.
Due to recent news about new cancer treatments, CCF is gathering information about your experience with genetic testing of your tumor. Whether you have or have not
had any genetic testing it is important to answer the questions to help us make progress in cancer research.
Take the Survey
Posts found: 6
Thanks. My mom hates ensure. She is losing at least a pound a day.
Any recommendations? My mom has been losing weight like crazy.
Thanks. The oncologist at the community hospital said she is not a candidate for anything but palliative care. Obviously, we look forward to consulting with someone with more experience. Thanks for all of your encouragement.
Thanks everyone. My mother's initial appointment is with Dr. El-Khoueiry. Hopefully we'll know more after this first appointment. I am apprehensive though as I cannot stay here in L.A. forever.
Thank you so much. I am hoping Keck can give us a better idea of what is going on. I feel guilty but I know I can't stay here in L.A. forever. Does anyone have a laundry list of questions that should be asked during the initial meeting? I've printed off some general "You've Been Diagnosed With Cancer" lists, but anything more specific to CC?
Hello. Where to begin? Last week, my 56 year old mother was diagnosed with cc; a tumor was discovered on her liver while undergoing gallbladder removal. Although my mother has lived with ulcerative colitis for as long as I can remember, this was completely unexpected. The community hospital oncologist staged her at stage 4 without any explanation and said that there is no hope. Obviously, we will not be seeking treatment from him. Mom does not seem very well due to the invasive nature of the surgery. However, we have an appointment at USC-Keck on Monday. My parents and sisters live in Los Angeles while I live in the Cleveland, Ohio area. I put everything on hold and came home almost immediately. Does anyone have any advice or encouragement especially as we head into our first consultation? Thank you.
Posts found: 6