1

(14 replies, posted in Introductions!)

Thank you Randi and Bob for sharing your experience! I don't feel alone anymore, and I feel like I am a big loving family. I cannot say enough to thank you all.
Have a blessed day!
Mao

2

(14 replies, posted in Introductions!)

Hi PCL1029,Thank you for your suggestion and recommendation!! It's really helpful, I am going to see another doctor in Tianjin for 2nd opinion tomorrow. I am booking an appointment for another doctor in Beijing, I will find out the best for my dad this month. Here are the results for my dad's blood test of tumor markers:
3 days before surgery:
Ferr               175.9
CA242           11.72
CA19-9          16.15
CEA               1.99
AFP               1.94
23 days after surgery:
Ferr               730.5(doctor here told me that ferr being high is normal for people had liver related surgery)
CA242            6.03
CA19-9          18.43
CEA               1.75
AFP                0.856
Thank you very much! And have a blessed day
Mao

3

(14 replies, posted in Introductions!)

Dear friends, also what's the best time for adjuvant chemo therapy, my dad had his surgery on Jan 30th. It's been almost a month, but I think he still need another month to recover, so that he can travel to the US.
thank you...mao

4

(14 replies, posted in Introductions!)

Thank you very much, PCL1029, Pam and Gavin, for the kind welcome and valuable information!! I don't feel alone anymore, and I know that I am in a community with kind and caring people!!
My father was treated at Tianjin Tumor Hospital, and his doctors are Li Qiang, Zhang Ti and Dr. Cui(I don't know his name).
Here is more information regarding my father. About 9 months ago, last May, doctor found my father had gall stones; since my father didn't feel anything bad, we didn't do any surgery to remove the gall bladder. Doctor didn't find any suspected tumor then, maybe because he only did ultrasonic. My dad kept losing weight, and he lost about 10kg last year. This January, I asked my father to do a ultrasonic again, he kept telling me he's fine, but I finally persuaded him to go to the doctors. Then doctor suggest that we do a CT on the bile duct area; and doctor found a tumor in the area where the bile duct comes out of liver and connection the gall bladder(perihilar?). Since this was a hospital treating gall stones, so we showed his imaging to the doctors at Tianjin Tumor Hospital. Dr. Li Qiang(his current doc) told us that this is bile duct cancer and he need to have surgery immediately. Then my dad had his surgery on Jan 30th. The testing result of the tumor said that the tumor is mid-poor differentiated adenocarcinoma(and it has grow out of serous membrane), the tumor is localized without invading to lymph knots or nearly organ(liver negative), and margins are negative. My father's tumor markers both before and after the sugary are all negative though, doctor told me that some tumor doesn't light up the markers. Any suggestions on this??

5

(14 replies, posted in Introductions!)

Thank you Lainy for sharing your experience! I will pay attention to the infection, doctor here told me that have injection of Thymosin two times a week will help to improve my dad's immune system, I hope this will help.
I am learning to be strong and I am the only child, and I am also worried about my mom. She had lots of pressure since dad's diagnosis. I am praying for my parents every day. I am so glad to find our community, and I don't feel alone anymore.

6

(14 replies, posted in Introductions!)

Thank you very much Randi for the input and sharing your experience!! It's wonderful to get support from the other side of the planet!! Doctors here are too busy with so many patients, and they never talk to us longer than 5 minutes. I am thinking about taking my dad to the US for follow up treatment, if we decide to do adjuvant chemo. So far I have contacted MD Anderson, since it's sister hospital with the local hospital that my dad had surgery at. Are there any other hospitals that you would suggest?

7

(14 replies, posted in Introductions!)

Hello everyone, my name is Mao, and I am from China. I researched on the internet and found this wonderful website,  I am lucky that I can speak English, so I'd think I would join and post to introduce myself. My dad is 58, and he's really harding working, and I would do anything to take care my dad and let him enjoy life. 
We found a tumor in my dad's bile duct this January, and my dad had his surgery this Jan 30th, doctor removed his bile duct, gall bladder, and a small part of his liver; and connect the bile duct inside his liver to his duodenum(whipple?). Result showed that the tumor is malignant, but it's the only tumor, the margins and lymph knots and other organs are negative. After research, I believe my dad's illness is called perihilar cholangiocarcinoma.  My dad had fever (39.1C) 6 days after the surgery, and doctors were able to put it down by anti-biotics. Later my dad was fine and went home, and after 4 days he had high fever again. We ended up in hospital, and doctor thought it was due to a virus infection, so they used drugs to put it down again. Well, my dad's temperature has been fine for the past 5 days, and we went back home again. Is infection and high fever normal for people after whipple surgery? Will infections and high fever happen very often?
Also, doctor here suggest that it's up to us to do chemo or not, I researched online, and it showed that it's not proven that adjuvant chemo treatment will really help.
Please forgive my broken English, and I really appreciate if you could provide some suggestions. 
Thank you very much, and have a blessed day!
Mao